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Teen Survives Severe Case of Stevens Johnson Syndrome

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Oxford, United KingdomA teenager has survived one of the most serious cases of Stevens Johnson Syndrome (SJS) ever, but the effects of the SJS could be with her permanently. Although she is lucky to have survived the Stevens Johnson Syndrome skin disease, the teen may never regain her sight—all because she was trying to protect herself from the flu.

The teen, Samantha Millard, developed Stevens Johnson Syndrome after taking Tamiflu to prevent swine flu. According to The Oxford Times (12/16/10), Millard took three tablets of Tamiflu and within 72 hours developed the life-threatening condition. Millard's case of Stevens Johnson Syndrome eventually developed into Toxic Epidermal Necrolysis Syndrome (TENS), a more severe form of Stevens Johnson Syndrome.

During Millard's ordeal she was on life support and lost the top layer of her skin. She also lost her vision, which has not yet come back, and had to learn to walk again. Since she began recovering, Millard has had two eye operations, but doctors are not sure if she will ever regain her sight.

Stevens Johnson Syndrome is an adverse reaction to medication that most people do not know exists until they or a loved one develops it. It can be caused by almost any medication but is often associated with painkillers and with antibiotics. The US Food and Drug Administration (FDA) recently linked an experimental thyroid cancer drug, Vandetanib, to an increased risk of Stevens Johnson Syndrome.

Initial symptoms of Stevens Johnson Syndrome include fever, sore throat and headache. In just a few days—in severe cases, a few hours—patients can develop skin lesions and blisters over most or all of their body. Many patients lose the top layer of their skin. Not everyone survives their Stevens Johnson Syndrome ordeal, and those who do often face months, if not years, of recovery.

Salient-News (12/06/10) recounts the story of a young girl, now nine years old, who has been recovering from Stevens Johnson Syndrome and Toxic Epidermal Necrolysis Syndrome for two years. She initially developed Stevens Johnson Syndrome after taking penicillin for tonsillitis.

Two years after she developed Stevens Johnson Syndrome, the young girl is 70 percent recovered, but must wear sunglasses all the time and has scarring on her lungs. The young girl may require medications for the rest of her life and could require further surgeries.

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READER COMMENTS

Posted by

on
I used Tamiflu to fight the flu and it developed into Steven Johnson's syndrome. This medication is pure poison. Please make people aware not to use it.

Posted by

on
A sore throat and fever is the first sign of Steven Johnson's Syndrome. You didn't contract it in hospital, you already had it when you went in. You don't have to take any drugs to cause it; some people just come down with it without any explanation, and bacteria and viruses can also cause it. Essentially, your immune system attacked your own body.

The morphine decreases pain, benadryl reduces itching, and the corticosteroid is believed to possibly reduce the immune reaction which is the cause of SJS. The hospital was trying to save your life and make you more comfortable and they did a pretty good job considering you're still alive when other people aren't so lucky. Furthermore, your hallucinations would have been caused by a combination of the intense pain, morphine, illness, extreme stress, and probably a lot of sleep deprivation. Sleep deprivation alone is known to cause peripheral hallucinations. You're not going crazy, and your 'spirit' isn't trapped on earth. You had a logical reaction to a traumatic event.

Anyone with symptoms of SJS, especially if taking any of the drugs most commonly known to cause it (NSAIDs, penicillins, sulfonamides, anti-convulsants, modafinil, etc), should stop the medication and seek medical assessment immediately. The sooner it is caught, the more likely you'll live and won't suffer serious longterm complications.

Posted by

on
A sore throat and fever is the first sign of Steven Johnson's Syndrome. You didn't contract it in hospital, you already had it when you went in. You don't have to take any drugs to cause it; some people just come down with it without any explanation, and bacteria and viruses can also cause it. Essentially, your immune system attacked your own body.

The morphine decreases pain, benadryl reduces itching, and the corticosteroid is believed to possibly reduce the immune reaction which is the cause of SJS. The hospital was trying to save your life and make you more comfortable and they did a pretty good job considering you're still alive when other people aren't so lucky. Furthermore, your hallucinations would have been caused by a combination of the intense pain, morphine, illness, extreme stress, and probably a lot of sleep deprivation. Sleep deprivation alone is known to cause peripheral hallucinations. You're not going crazy, and your 'spirit' isn't trapped on earth. You had a logical reaction to a traumatic event.

Anyone with symptoms of SJS, especially if taking any of the drugs most commonly known to cause it (NSAIDs, penicillins, sulfonamides, anti-convulsants, modafinil, etc), should stop the medication and seek medical assessment immediately. The sooner it is caught, the more likely you'll live and won't suffer serious longterm complications.

Posted by

on
Just like her i also just been diagnosed with steven johnson syndrom aug 4,2013lost about 15-25% of sight in my left eye I didn't get much detail on how long it would last but I was hostpitalized for 17 days didn't eat for a weak list weight and skin peel probly 95% of my body my face scalp neck back torso arms legs feet and hands became to peel off first started with little pimple turned into quarter sized water blisters most exploded that was on my buttox and back but most dryd up thank you god i also was having this flaming sensation that was occurring threw others body heat plus my scrotum was completely cherry red.rash .the doctors didnt know how I got this condition and didnt I still don't know what caused it but during my discharge a nurse told me it could of been a allergic reaction to a medication that I took while I was admitted there.thats what I thought the day I was told I was healthy I had no diseases or infection all my blood testes came back negative.ive been out the hostpital for 5 days now and feeling ok I'm having alot of side effect from the medication I'm taking.ive never been or admitted to the hostpital nore I never tooling any medication tablets.i told the nurse that they're supplying me with drugs I never herd if or ammuned to but they told me its good for me now I suffer from steven Johnson syndrom plus genatalia rash.my first time ever going to jostioal was the worst time ever I'm in the position to we're i rather die then go back.the IV would come out so whatever I was getting ill feel a sharp pain so they had to find a vein.i had the IV in about 4 to 5 veins then when they couldn't find nomore they wanted to insert a tube that gave me liquid and food I refused because I'm labeled healthy I rather waited for a vein to come back or just to inject it in my muscle I even got some big pill inserted in my butt. Don't know what that was for I refused most medicine but they insisted and I was in pain plus itchy plus burning if I felt the meds wassnt doing anything I didn't want to take it nomore I was receiving morphine the most morphine ,a steroid liquid and Benadryl and all medication only lasted for 25 minutes plus i couldn't sleep and if I did my eyelids would seal shut the Benadryl that was inserted it'll I want to say burn/sting sensation feel from the insert of my hand all the way up the arm after that I didn't feel nothing the itch burn and is in would cool down from 1-10 from an 8 to a 4-5 then build its way back up and I got the morphine every 3 hrs Benadryl every 4 hrs and steroid ever 4am my pain was a mess plus if i didn't page for the nurse for meds like I did at first I didn't because I didn't want to bother them like that plus I didn't wanna make it seem like I was addicted to the morphine I didn't want the morpjine I rather got the Benadryl but the morphine did help a little but they'll end up taking almost an hr maybe even two hrs to give me meds so I had to choice but to keep them on there job.i don't have insurance and i usually find a solution to curing myself and it'll work my cause of going to the hostpital was I had a soar throat and a fever over 100.next thing u know I'm diagnosed with a rare condition I don't do drugs I smoked cannabis not nomore now I can't even stand the smell and smoking pot was my thing plus i was into exersizing cannabis didn't give me any side effects but being hungry and working out plus cleaning.i don't drink alcohol I don't smoke tabbacco I look into everything that gets inserted into my temple I'm not aware of and to think what the doctors give you can cure u boi was I in for a ride.now the pain medication that I take I can't tolerate plus it led me to being constipated to the point ill bleed I had to drink alot of milk and do alot of pacing to get that just one turd out.ive had some much side effects to my medication that I believe I can die from taking them I just wanna get back to my old self and maybe become a body builder I can't ven hold my urine I can while I'm sleep but when I wake up I gotta go. I've been taking pictures of my condition hoping it'll approve apparently it had to get worse in order for it to start curing I wish this condition on nobody.the main thing is while I was in the hostpital I started to see children KIDS NO OLDER THEN SIX.theyll appear from my side vision my left and right side of pupil is but when ill turn to see them I couldn't just from the corner I even felt my pillow being fluffed I wanted to tell my gf but I didn't want to scare her but I had to ask her how many people are in here with us and she said just me and u I wanted to cry but I held it back and put on cartoons day and night ill see and feel someone no voices but the sight and feelings around me to be honest I felt safe while they were there i love children and for them to be around me made me feel better about the situation I was going threw pretty soon like three days later I didn't feel there presents any more..now this is in my head ID THE MEDIVATION MADE ME HOLUSIONATE WHICH I REFUSE TO BELIEVE THEN THERE'S NO GOD!!!!! I believe in god and I never talked about having contact with spirits I feel that there is a spiritual demonsion based on the bible theory to if u dont understand the basic instructions before leaving earth u don't leave your spirit is trapped on earth till h get it right but u have a certain time to before This world burns .thats what I believe and chose to stick now if u do understand u move on to another world with a brand new vessel aka body.now I'm stuck plus I think I have a short term memory loss I have to think like okay I need to eat or drink pea usually ill just do now I have to remind myself.plys I sweat for noreason and if I wipe myself skin comes of so I stay under a fan all day.I STILK DON'T KNOW WHAT MEDICATION LED ME TO THIS I WISH I KNEW BUT I TOOK SO MUCH MEDS WHILE IN THERE .

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