According to Robert Herriman, a microbiologist and editor of Outbreak News.com and the host and producer of the Outbreak News This Week Radio Show – a podcast based in Tampa – Stevens Johnson Syndrome affects about one, or two people per million. It is, indeed rare – but when it raises its ugly head, the results can be devastating. Some have died. Others have been left with horrible scarring, vision problems, and emotional trauma that can last for years.
It begins with a Stevens Johnson Syndrome rash, which was the first indication in Donna’s case.
“I had, like a flat, red rash on my face and my upper body,” she told the Outbreak News This Week Radio Show (03/17/17), adding that she was running a fever of 102 that lasted about a week. Donna also tells the interviewer that one of her fingers on her left hand presented with a raised rash, “and it just itched and itched.”
That’s how it started – and it wasn’t long until her Stevens Johnson Syndrome symptoms got worse – about a week and a half. Her finger worsened, with an SJS rash that appeared to escalate into what appeared to be a serious burn. “And my mouth was real bad – it was, like, raw inside. It was bleeding, there had been blisters and my tongue was real swollen and white. Then I had a rash on my face and on my arm that was almost like chicken pox.”
Donna had been taking antibiotics at the time to combat an infection in her leg. When she first went into the doctor with her finger and the fever a primary concern, her doctor’s first thought was it was due to the medications she was taking. The medication was not identified, but Donna said the doctor advocated she stop taking it.
“But then I had to go back two days later,” as the inside of her mouth was blistering up and getting worse. That’s when the diagnosis of SJS was made – and the medication Donna had been taking was deemed to be the trigger.
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Although Donna was not hospitalized, recovery has taken a year and she isn’t out of the woods yet. For one thing, her sense of taste has been affected. She also lost 60 pounds as result of Stevens Johnson Syndrome. “It was so bad in my mouth; I could hardly eat or drink. Even drinking water was hard….”
“I can feel with my tongue that I do have scars in my mouth.”
Many a plaintiff has followed up with Stevens Johnson Syndrome lawyers to consider an SJS lawsuit, given their assertion that drug manufacturers are not forthcoming that Stevens Johnson Syndrome is a risk of using the medication – and had they known about the risk, they never would have taken the product in the first place.