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Harvoni Controversy Continues

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Washington, DCLawsuits have been filed against the US Food and Drug Administration (FDA) and insurers, alleging patients have been unfairly restricted access to Harvoni, putting them at risk of serious health problems. While those lawsuits gather momentum, news has emerged that Gilead Sciences, maker of Harvoni, has now restricted access to its hepatitis C medication, further fanning the flames of anger about the drug.

Hepatitis C is a contagious liver disease that can be fatal. It is linked to severe liver damage, infections, liver cancer, pain and arthritis. With a 90 percent cure rate, and few known side effects, Harvoni is considered a highly effective cure for hepatitis C, but it comes at a high cost - a 12-week treatment program costs around $99,000.

Insurance companies are accused of unfairly restricting patient access to Harvoni by denying treatment coverage on the grounds that the patient is not sick enough to warrant treatment. Lawsuits filed against insurance companies allege the companies have rejected claims for Harvoni treatment by classifying the treatment “not medically necessary” and refusing to cover Harvoni until the patient’s liver is severely damaged enough. The problem is that once the liver is significantly damaged, patients can suffer life-threatening disease.

Patients who have filed lawsuits against their insurers allege breach of contractual duty to provide coverage and breach of good faith.

But insurers are not the only ones facing lawsuits. According to The Wall Street Journal (6/29/15), the FDA faces a lawsuit filed by two public health advocacy groups, alleging that it didn’t release clinical trial data for Harvoni quickly enough. The groups, Treatment Action Group and Global Health Justice Partnership, applied under a Freedom of Information Act to obtain access to drug trial information on Harvoni and Sovaldi - another hepatitis C drug.

The public advocacy groups say information from drug trials will allow independent analysis of trial data. But even though the drugs were reportedly fast-tracked through the approval process, the advocacy groups were told it would take up to two years to receive the trial data.

Now Gilead is reportedly limiting enrollment in its Support Path assistance program, a program designed to help patients obtain Harvoni treatment when their insurance won’t cover it. The Wall Street Journal (6/16/15) reports that the move might be an attempt to get patients to complain to insurance companies about the failure to cover treatment. Under the restrictions, patients who have insurance but do not meet the insurer’s criteria for coverage will not be eligible for the Patient Assistance Program.

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READER COMMENTS

Posted by

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I was put on it by the VA told them how it made me feel they just discounted it back then it was on TV nonstop. Now I'm tired all the time my joints are getting worse and you never here about the drug anymore . we were just used as test subjects!!!

Posted by

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I started Harvoni 2 weeks after it was approved late October 2014. Through the years since, I've developed severe chronic joint pain, facial swelling, left eye problems, neck problems, and now heart problems.

I hear so much about those that have had fatalities with this drug during and after treatments. Now, after reading all this, it makes sense to me what has happened. My disabilities have increased two-fold because of taking this drug.

Posted by

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HERE IS A GROUP....WE ALL NEED TO GET TOGETHER AND TAKE THEM TO COURT OURSELVES. WHAT DO WE NEED AN ATTORNEY FOR? 125 COMMENTS OF ILL; AFTER HARVONI, AND EVERYONE THINKS WE NEED A LAWYER....THE JUDGE WOULD HAVE TO BE A FULL IF WE DROPPED ALL THESE LETTERS ON HIS DESK..NO, NOT LIKE WHITE CHRISTMAS.......OR MAYBE...........

Posted by

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WAS PUT ON HARVONI IN APRIL OF 2017 TILL JUNE 18 2017..JULY 24TH 2017 LIVER CANCER AFTER HARVONI..I WAS HEALTHY PRIOR TO THIS...MY BODY..HBP FROM STRESS, BUT NOT BAD..I DID HAVE BI-POLAR AND WAS TOLD IN DRUGS.COM FORUMS..DO NOT TAKE IF U HAVE BI-POLAR..DO NOT TAKE IF YOU HAVE HEP B...THEY DIDN'T CHECK..THEY DIDN'T CHECK MY LIVER BY ULTRA SOUND...HE FELT MY LIVER...i AM SMALL AND WAS IN SHAPE. HE JUST FELT MY LIVER. HE SAID, IT FEELS FINE. I HAD NO PAIN...I WAS CHECKED IN 2009 FOR HEP C...IN SANTA BARBARA, CA PRIOR TO A BICYCLE TRIP...HOW MANY PEOPLE WILL DIE BEFORE WE GET HELP...THIS DRUG AND DOCTOR TOOK MY LIFE.....I HAVE A CHANCE IF I CAN FIGHT THEM AND GO TO GET TREATED FOR NOW liver cancer....joanne

Posted by

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Just getting information. a friend a mine took harvoni for 3 months cured her. she felt OK for a little while but now she is having issues and we are concerned. she is bruising easily, after MRI she has a cyst in her kidneys and spine, also she feels like shit. Pain is worst than before. I just need to know how to help her. What test do i need to ask the doctor for. Help

Posted by

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I too was diagnosed with hep c and started a 6 month barrage of it in 2015 . before I started the drug a biopsy was done on my liver and came back showing I only had stage 2 fibroses which is nothing .so I was diagnosed hep c free after my 1st 8 weeks but they kept me on it for another 17 weeks. its been 3 years now I have cirrhosis so bad Im pretty much locked at home . ive now lost over 30 lbs and am feeling the worst ive ever felt. I ended up in the emergency room cause of severe pain in my abdomen , so a cat scan was done and it caught the bottom of my lung in the picture. turns out I now have lung cancer . I used to be 5foot ten Im now 8 foot . I have bone desease and severe arthritis . I am going to die soon I can feel it coming and I know its from the Harvoni. and if you notice they don't use it anymore . hopefully the drug company will pay dearly but you really cant put a price on life my heart goes out to all of you former Harvoni patients I guess well all have a story in the afterlife , I wish I never had taken it

Posted by

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I can take it. I can dish it out.
But what happened to Margaret is so sad
It makes me so mad
That I can sit alone
Quiet as a stone
For a hundred thousand years
Before I explode.
The harvoni cured her hep c alright
The way the a-bomb won the war.

Posted by

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Started Harvoni june thru august of 2017.
By decemeber 2017 noticed-distended stomach-poor digestion,vision loss,varicose veins & my feet are now blue. Could not get into my doctor for 6 months and now he's ordered complete stomach ultrasound which is did today 6/26/18 along with urine analysis. My guess is bladder or kidney disease from the Harvoni. I had none of these symptoms prior to Harvoni. Im overly stressed out trying to manage all these side effects & getting my affairs in order. I wish I would have not taken Harvoni cause I feel completely overwhelmed & disabled.

Posted by

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My father died of liver and kidney cancer less than 1 year after taking Harvoni. He was doing FINE, took Harvoni and it killed him, dang near instant cancer. I am suing and EVERYONE that has lost a loved one due to taking this poison should do the same! They knew it would kill people, they knew it could reactivate Hep B and cause rapid development of cancer, they figure what they will pay in settlements is worth what they will make in sales. They KNOW it's killing people and they DO NOT CARE. Every Single Person who has lost a loved one should SUE. My Case Manager's information is below. Do not let them get away with this, you cannot get your loved ones back, but you can draw attention to this poisonous drug and maybe save someone else's life!!!


Posted by

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My hbeing seen by VA and husband was a veteran who was infected with hep C when given a blood transfusion due to a severe parachute accident he suffered while serving. He tried the standard Interferon and Ribovirion treats x3. The virus replication slowed down but was not cured. Genotype 1A. He was living a simple good life despite the hep C.
VA called him told him told him Congress ordered the VA to treat all vets that had hep C with Harvoni. He was put on the Harvoni in 3/2017. At 14 weeks he was deemed cured. By feb 2018 he had end stage liver disease and died on 4/22/2018 due to Hepatorenal syndrome . He was doing well before Harvoni then after using it died!
Please we all need to band together and demand this drug be investigated. All the deaths after use cannot be ignored.

Posted by

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*UPDATE from my previous comment Sept 9/2017* My father passed away 12/10/2017 almost 1 year exactly after finishing this drug. This stuff is poison. It's not ironic that thousands of people get deadly cancer after taking it. It's not fair.

Posted by

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I first responded on July 21, 2017 - since then there has been a new side effect - Breast Cancer - so now having to deal with this as have many others. I too relate this to Harvoni! When will there be a class action suit?? Waiting impatiently....

Posted by

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I took harvoni about 2 yrs ago and now I have inflammatory breast cancer the more aggressive breast cancer we have, no family history of breast cancer, the only thing I did different was harvoni and I believe that it caused my cancer and might not make it. 209-890-3106 please call me regarding this matter someone p!ease I don't have an email so I'm using my friends.k

Posted by

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Wife took harvoni Jan. 20 - Apr 15. She passed away on May 11, 2017. I looked over much of the documentation and two documents (There are many more documents).

One from a March 1, 2017 blood test said Beverly was HCV negative after forty days of Harvoni treatment. She saw the doctor on March 20th and after taking the medication for 60 days. They told her to continue with the medication for the another month?

The second is a exam with the Gastroenterologist on April 18, 2017, where it said there was abnormal liver functions. The gastroenterologist told her to see her regular doctor about the stomach pain. Beverly saw her regular doctor on April 21, 2017 who told her she would die if she did not get to a hospital. We went to the hospital later that day. They put her on iv. They kept her until April 27, 2017. They could not figure out the problem?

She tried to go back on on the 29th and 30th, but there was a long wait. She saw the gastroenterologist doctor on May 1st and her regular doctor on May 3rd, and they did nothing. I took her to a another gastroenterologist on May 5th. He gave her percoset. I took her to the hospital on May 7th. because she was not very mobile.

Holy Cross said she had liver failure and, she was transferred to UMBC (hepatology specialized hospital) on May 8th. They put her on the transplant list. They said she had a flair up of hepatitis B. This medication can cause this and it can cause liver failure because of this flair up. She was too weak and passed on May 11th. Death certificate said liver failure. If my wife never took this medication she would still be here. Maybe if they had given her 2 months instead of 3 she might have survived. They told her she was cured on March 20th and April 18th.

She was fine before ever taking this poison pill. Bevy was only 60 years old. I gets me is that on March 20th and April 18th the gastroenterologist said she was cured. It was misleading. I have all the documentation and exams from last year until May. As far as I'm concerned my wife died because these doctors did not know how to administer this medicine, and the medicine manufacturer is misleading the American public in there advertisement. They never mention death in their ad.

Posted by

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I am one year post Harvoni 3 month tx I had hep C the type A
40 years no problems or symptoms. I have been going downhill since I finished the program FEB 3, 2017 I WAS NEVER TOLD ABOUT ANY SIDE EFFECTS.... I have severe muscle spasms. diarrhea, sweating, extreme weakness and fatigue and am down to to 35% of my former self. Im losing my voice, coughing, difficulty swallowing, cant breathe. The gastro doctor who treated me says he never heard a bad word about side effects,I am the only one. B___S___ My bowels are going yellow on and off, He tested me and said I am normal and Hep C free. I WOULD RATHER HAVE KEPT THE DISEASE i AM A WORSE MAN NOW, EXTREME FATIGUE AND WEAKNESS.L i JUST TURNED 64 i HAVE A KIDNEY CYST AND A SPOT ON MY SPLEEN I am now seeing a neurologist, he is testing me and EMG SO FAR, NOW Blood work, an MRI OF MY BRAIN AND CERVICAL SPINE ARE ORDERED. AND MORE BLOOD WORK TO RULE OUT OTHER DISEASES. THIS ALL COMES FROM THE HARVONI. I AM MAD AS A HORNET , i AM GOIN DOWNHILL FAST i HAVE NEVER BEEN SICK OR BEEN TO DOCTORS FOR YEARS AND YEARS. I WISH I HAD NEVER TAKEN IT. PLEASE PEOPLE FIND A GOOD LAWYER TO TAKE OUR CASES BEFORE I DIE,,, I TOLD MY WIFE TO ORDER ME A COFFIN. PLEASE HELP ME

Posted by

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After taking harvoni for 8 weeks. One month later my stomach was huge, breast hard, ascites in my blood. Then test. Told me I have stage 4 liver cancer.......this pill did this to me and I know it, because I had no enlarged liver, pain, or big stomach. I had a slim stomach. Loss of hair..

Posted by

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Started harvoni January 2016 for HCV. I got is while in the Navy either in boot camp from those air injections (shots) or from getting a tattoo while in Hong Kong or Japan, who knows. It was not from drug use. Anyway, I now have Cll ( Cronic Lymphonic Leukemia) . Cancer does not run in our family. I was Bad sick before, I was constantly having to take a nap and tired all the time, but could have lived healthy if I had not taken Harvoni. I am not sure of my future but I am also now wishing I had of not taken that drug and just left well enough alone...

Posted by

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My father took Harvoni October 2016-December 2016, after having Hep C for several years. Almost 1 year after starting "treatment" he is now fighting for his life. Just diagnosed with bile duct cancer, he's lost 60+ lbs in TWO MONTHS! After reading this, I'm convinced it was this drug. So thanks, modern medicine. Thanks, FDA. Thanks, doctors! I have a feeling I am going to lose my father at 28 years old. I REALLY hope there's a lawsuit!!!!

Posted by

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My healthy sister in law took Harvoni for her Hep C and now, just months after starting it, has been diagnosed with Leukemia of an aggressive nature. Please don't take this drug. Prayers for all who are suffering due to the horrific side effects of Harvoni. Take it off of the market!!!

Posted by

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I went through 6 months of Harvoni treatment . and started having pain in my stomach back , had to stop working . have been to doctors and hospital . a month and a half ago started loosing weight at a lb a day Ive had a cat scan done just this Thursday and they found a mass in my right lung . all things point to a very aggressive cancer . the way things are progressing I don't know if Ill evan be able to get treatment before it kills me . I felt fine with hep c and now Im a dying man . the stories are all the same just about everyone who has taken this drug has come down with some sort of cancer and they are aggressive cancers . don't let your loved one take this drug there will be more lawsuits than sands on the beach but they wont bring back your life

Posted by

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I was diagnosed with HCV in 1999 by my PCP and underwent a liver biopsy with a great path rpt. I have received almost 100 pints of blood products in different forms after complications during childbirth in 1987. I did not have any symptoms and for years my viral load was very low. So it started slowly creeping up around 2012 and by 2016 I decided to accept Harvoni. Started on February 16, 2017 and was complete on April 11, 2017 - eight weeks - my load went down to almost undetectable after the 1st cycle (4 weeks). I did not have any of the disclosed side effects at all, however about 3 weeks in I started to have great knee pain. Hep C doc said it wasn't from the Harvoni, it's probably because you are overweight (never had this issue prior). So I have now been off of Harvoni for 3 months and it is not going away - some days are better than others, but it makes me feel like I am in my 90's - not my 50's. My new PCP said oh yes, that joint issues are definitely a side effect - my PCP doc, not my Hep C doc!! It has come down a little, but there are days where I can hardly walk. So, thinking back and after reading all the posts, if I had read these first would I have taken Harvoni and crossed my fingers that it didn't lead to cancer? Well, knowing how I carry a small first aid kit with me in my purse, in my desk at work, in my car, etc, because I do not want anyone to come into contact with my blood if there was an issue - Yes I would still do it because I have grandchildren and friends that I want to keep from being contaminated. I may regret it down the line with line with more a severe diagnosis, but I am trying to have a positive attitude and moving forward. I do feel for all of those that are dealing with more severe side effects than I and for the families that have lost loved ones. Hanging in there until someone files suit reference the side effects - I will definitely add my name to it!!!

Posted by

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OK. I've read a ton of the posts here and thought I'd share my story regarding my HepC and my observations.

I was diagnosed in 1995 after 5 years of being run around in circles by various doctors. I have never done any HepC treatment - only herbs. My viral load at diagnosis was 6000 which rose to 24,000 at one point, my Knodell Score was 13 out of 16, 16 being cirrhosis for those unfamiliar with the old biopsy scoring, and I had EVERY SINGLE SYMPTOM that the Inf, Inf/rib patients on the Hepc forum at the time were complaining of. It put me through menopause instantly at the age of 36, my eyesight went from perfect to needing glasses literally overnight, I developed a hiatal hernia, irritable bowel syndrome, insomnia, tinnitis, mitral valve prolapse, 4 separate types of migraines\, massive fatigue, some form of multiple arthritis, and my gallbladder stopped functioning properly and only works at 25% output.

ALL of this if looked at through a wide lense points to an "autoimmune response" to HepC - or at least that's what my doctor surmised. I had virtually never been sick a day in my life past childhood and even in childhood I was healthy as could be other than an occasional cold or flu. What I've seen in almost ALL of these reports are people who have no symptoms for the most part prior to treatment (saw it on the forums with the interferon crowd as well) - which tells me their immune systems don't function the same as mine. HepC does not damage the liver, your immune response does. Which I believe is why my viral count was low and my damage was high.

ALL that being said, what I think is going on here is that those with a hyper immune response are responding well to Harvoni but those with a normal or weakened immune response are being so immune suppressed that it is causing major issues for them - possibly even to the point of cancer.

One of the best doctors I had through this entire fiasco was an Internist/Oncologist who took one look at my blood work at the time and stated he had cancer patients with blood work better than mine. There wasn't an item on the report that was in the normal range, including my ANA.

I don't know if any of this will help anyone, but if you are contemplating taking Harvoni you might want to run this by your doctor and see what he has to say about your immune system and this drug. My cousin (which also brings up the question of genetics and immunity) also had HepC 3a and was symptomatic as well as disabled by the virus. He took Harvoni + Ribavarin two years ago, had virtually no symptoms from the drugs, was cured, and has not had any symptoms since. He is back to work and feeling like he did in his 20's.

I also just read an article discussing a specific screening test being done now (at least for genotype 3), and I have no idea if it was being done initially or not, but it may be a clue to what is going on as well. Granted this may simply be a screening test to insure that the Harvoni will work, BUT I'm not very trusting of the pharma industry so I wonder if this mutation may have something to do with the cancer appearing in certain people following treatment. IF you have the mutation they add Ribavarin to your regimen.

Ribavarin is an RNA inhibitor that also inhibits DNA (something they don't understand since it shouldn't do that). But an interesting side note on Ribavarin is that it also inhibits cellular inosine monophosphate dehydrogenase, thereby depleting intracellular pools of GTP. What is GTP you ask? It is an enzyme that controls calcium levels within cells. What happens when calcium levels increase in cells? Arthritis, heart complications, and kidney problems among other things. So my question is whether this mutation they are concerned about is causing the complications and Ribavirin added to the regimen prevents those complications = and they just aren't telling anyone the truth about it. Here is the blurb about the genetic mutation: {Baseline NS5A genotype 3 resistance testing should be performed, and ribavirin should be added to sofosbuvir-velpatasvir or sofosbuvir plus daclatasvir if the Y93H mutation is detected. The sofosbuvir-velpatasvir has a higher rating and is much less expensive.}

ALL OF THIS is from my own research into Harvoni because I would definitely like to get rid of this crap, but not if it results in cancer or death. I hope this helps anyone on here thinking about giving this drug a try - and perhaps some questions to ask your doctor before you do.

And btw - has anyone bothered to collate the data on this forum as far as which genotypes seem to be getting cancer following treatment?? I have genotype 3 which is where the Ribavirin info and trial data came from. Genotype 3 is noted for causing the majority of HepC cancer in the first place. So which genotypes are getting cancer following treatment?? And should Ribavirin be given to every genotype along with the Harvoni?? I'm loaded up with info now and making an appointment with my doctor this week to discuss this with him and get his perspective and recommendations.

Posted by

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If anyone wants FDA reports listing side effects, contact me at listenwithin at att dot net. Also if you took Harvoni and now have liver cancer contact Levin Papantonio - Attorneys in Florida is looking at these cases. Sorry for all the horror everyone is experiencing. #GuineaPigs

Posted by

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PLEASE, do not take this drug. My mother-in-law started taking it in Sept.2016 finished it in Jan. 2016, then she has been tested as negative for HepC. After 5 month in Jun 2016 she diagnosed with stage 4 cancer of Lung. The cancer has spreaded in her body (primer - lung, metastasis - back, spine, liver, adrenals ... etc. We sure that Harvoni caused a different cancer. Do not take this drug, she was living a regular citizens life before he started taking this pill. Do not take, bcause you can live with HepC for long time.
Please help!!

Posted by

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rob Rowlee here again,got some more tests done got colon cancer also kinda hard to understand this crap I have never had more than a cold in all my 59 years.

Posted by

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I took harvoni oct2015-dec2015. Cured mar2016. Then in sept2016 I felt a lump in my right breast. 2.4cm yup breastcancer. I'm really scared as I thought it was mabie a mistake so I had the lump removed. But opted out on chemo&rad. But did start tamoxaphN 1month ago. Now that I've read all these blogs. I'm really scared. I faught so hard for a cure due to a deepsearing chest pain I had fr 9years n harvoni took it away along w mucle&joint pain but what did I get in return? I should have never faught so hard.. I'm 47years old.. so what now? If you haven't taken harvoni yet? Don't... until all the stats come in on how many ppl are getting diff forms of cancer within a..year of taking it.im very scared after reading all these ppls blogs..n that almost every1thats taken harvoni is getting fast growing cancers?? God help us all.

Posted by

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march 2016 started harvoni for hep c,march 2017 have liver cancer,been going back and forth to vcu in Richmond to get treatments????????? and put on liver transplant list.rats!!!!!!59 years old.

Posted by

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I have had HCV for about 40 years -tried interferon ribavirin -did not work almost killed me, they just ate well and lots of cleanses supplements accupunture trailing running, excercised every day. . Started feeling bad no energy and just crummy like the flue from Hep C . Dr urged me to on Harvoni Promised me NO SIDE EFFECTS just headache and a little fatique. Well that was not true I felt bad, cracy, behavioral changes and lost hope. stopped 10 days before the end date. HVC was gone/ Now I have peripheral neuropathy, loss of vision kidneys hurt, feet swollen and ache hands are achey drop things all the time. Loss of memory and digestive problems. Like my gut is not digesting, distended stomach. just got ultrasound June 7th waiting to results. After reading these posts I am sure the Harvoni caused contributed and has damaged mitochrondria and many other things.
By the way I DID NOT have any of these symptoms before the Harvoni . It has been a year and 3 months since I went off the Harvoni. God help you all you are in my thoughts and prayers...

Posted by

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I was on harvoni 18 months ago and what a horror story! I was on tegretal and phoenarb fur ceicures but had to be switched to keppra in order to take the harvoni. Shortly after changing meds and put on harvoni, I came down with peripheral neuropathy. My neurologist blames it on the hep c and my hep c doctor said no way would I have gotten it from the harvoni. Either way one of them doesn't know what they are talking about but I guess denial is their way of saying they don't know..
Either way I feel as though I was talked into a situation and if I would have known I would get neuropathy from one of those drugs, I would have stayed on the original meds and opted out of taking harvoni and keppra. Life was fine until then but doctors just like big pharm!!

Posted by

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DO NOT TAKE THIS DRUG! I can't begin to understand why anyone would take this poison for a condition take has not ended their life by now, common sense should tell everyone with HepC it's something that can lived with. My grandfather had Hep C when he died in 1983. He died of old age. Take this drug and you will died of cancer you never had before. My father died after taking this drug, he had Hep C for over 20 years and was fine before he took Harvoni DON'T NOT TAKE IT!!!!!

Posted by

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Hi Community,

I have the same story, my brother had the Hep C virus, but it was being maintained. Then he took the Harvoni treatment in June 2016 and July 2016 he was diagnosed with Liver Cancer, treated with the chemo embolization's and became more aggressive. He has now been told by his doctors their is nothing else they can do, but get your affairs in order. Their must be something we can do to stop another family from losing a love one to this horrible disease.

Posted by

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I am 60 years old and was diagnosed with Hep C in 2012. (Although no one bothered to tell about it until 2014) I am almost one year post the treatment of Hep C, with Harvoni. I am now experiencing some of the worst illnesses I have ever had. I have kidney failure, as of 10/2017 blood test. Never before did I ever have any type of kidney problems. That's not the worst part of what I experienced in the last six months of life. I have now gotten a compromised immune system. I have been ill for six weeks with very high fever, flu like symptoms, my bones ache, I am unable to touch my skin at the time I have fever, due to the immense pain of a mere touch. I have had the same type of illness for a total of 5 out of six weeks. If I was ever told about the possibility of these illnesses I would of of never opted to take the Harvoni. They did not study the long term effects or fail to advise anyone about the potential of the life threatening illness that is associated with Harvoni. This drug has ruined my life. I hold Gilead responsible for this, all's they cared about was making their 21.8 billion dollars in the first year the drug was approved. The FDA and Gilead sacrificed my health for their pocket book I am so mad there are no words to express how i feel about this drug manf.

Posted by

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I took Harvoni last year in July. I was diagnosed with bladder cancer 1 month later, I'm only alive today because I stop taking the drug

Posted by

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I am saddened but yet happy to see so many people talking about the horrors of Harvoni. That means more people may be able to due research BEFORE taking this poison so they can be saved. Hep C is not a death sentence. Unfortunately more and more people are showing up with aggressive liver cancer and dying quickly after being diagnosed. Please people.....if you have taken Harvoni or any Hep C medication PLEASE get yourself checked immediately for cancer. You do not have to have a damaged liver for cancer to appear. It is happening to those who had healthy livers. Also if you want an FDA report and also a similar report from England that outlines side effects of Harvoni write to me at listenwithin at att dot net.

Posted by

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My husband died of a very aggressive undifferentiated cancer six months after starting Harvoni. I left a comment here in 2016, and I continue to monitor this site and reading of so many other similar cases. You may be interested to know that more cases are showing up here: hdrug-injury.com/druginjurycom/2017/01/sovaldi-liver-cancer-harvoni-associated-side-effects-direct-acting-antivirals-medications-hepatitis-c-drugs.html

I believe, with every fiber of my being, that Harvoni triggers very aggressive cancers.

Posted by

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Brief description of your legal issue:
I am concerned about the Hepatitis C medication, made by Gilead, called Harvoni.
My dad had Hepatitis C for many years. Doctors told him with his health he would die of old age before he would die of the disease. When Harvoni, a cure for Hep C was released we thought it was a miracle! My dad had a ct scan of his liver done in September of 2016 and it was completely clear. He was given the ok to begin his 18 week treatment of Harvoni. He took his medication as prescribed and his treatment ended in December 2016. Tests showed my dad's Hep C was not gone. He fell into the 4% that Harvoni does not work for. We were all discouraged. By the end of January 2017 my Dad was feeling terrible. 69 year old man, very active and ate a fairly healthy diet had no energy. He began having symptoms such as itchy skin, feeling of fullness, distended stomach and abdominal pain. He tried to tough it out thinking it would pass. He couldn't take it anymore and went to the doctor on February 16, 2017. A ct scan was preformed and it revealed my dad had liver cancer, Heptocellular Carcinoma, and a tumor in the main vein in his liver, the portal vein. Given the diagnosis and severity there weren't any treatment options to save my dad. He passed away April, 1 2017. I can't shake the feeling that Harvoni had something to do with this. I have read about other people who's stories are all to similar.
Please call me if you need more details. If this drug is causing liver cancer it needs to be stopped so another family doesn't have to watch their loved one go through what I watched my father go through. Thank you for your time.

Posted by

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Harvoni cured my dad's Hepatitis C sometime last year. He died last week from Signet Ring Cell Adenocarcinoma.

It was very quick. He went into the hospital a couple weeks ago for pneumonia symptoms. It was a week before he was healthy enough to have a biopsy of his lymph nodes (as his white blood cell counts were not responding to antibiotics). He died two days after the official diagnosis. The doctors were not sure where the cancer had originated, but I suspect it was in his liver. It was all over his abdominal region by the time it was discovered.

I have yet to request his medical records, but I assume I’ll have to hire a lawyer to get those from his MD. I assume I should find prominent law firm adept in pharmaceutical liability.

Posted by

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I was "cured" of my Hep C. I took Harvoni for 10 weeks and managed through the side effects I was TOLD about. The last two weeks out of 12 the side effects got worse and worse. I was in a fetal position in bed as my husband took a picture and told me to stop the Harvoni, 5 days short of 12 weeks. I went to my PA since I was so riddled with BONE and JOINT pain, along with the fatigue. Long story short......I have blood cancer! They are calling it Atypical CLL which also falls under the umbrella of Lymphoma!! This is crazy! I am so mad that I was not informed this could happen. I also was not aware Harvoni was only approved in Oct. 2014. Damn, I am mad........ Has anyone started a law suit? Gilead will not call me back.

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DO NOT TAKE HARVONI! I underwent HARVONI Treatment for 24 weeks and it RUINED MY LIFE!!! I feel confident that Gilead did not properly test this drug and MORE RESEARCH AND TESTING MUST BE DONE!!! I am now basically CRIPPLED and MENTALLY IMPAIRED - PERMANENTLY - from taking this drug! My joints have been permanently damaged, muscles and connective tissues are breaking down, my vision has been ruined, I am unable to think properly, I have permanent memory loss, I have permanent loss of motor skills, my hearing is bad, I have worsened liver damage, my digestive system is damaged, I suffer from hallucinations and hear strange voices, I have become paranoid, I now have a severe nervous condition, I can no longer sleep, I have severe dizzy spells, and the list goes ON AND ON!

I willingly underwent HARVONI TREATMENT, but I am CONFIDENT that information about SIDE-EFFECTS was withheld from me! I have aged probably 10 years, in the last 2 years, and am confident that the 24-WEEK HARVONI TREATMENT I underwent has shortened my life! Each day, my condition worsens - and I AM MAD AS HELL!

I am finding out that many, many other patients are experiencing the same problems that I am suffering from! I WISH THAT I HAD NEVER HEARD THE WORD HARVONI!!! I guarantee that I am seeking LEGAL COUNSIL and GILEAD WILL PAY DEARLY FOR KILLING ME!

I WILL NOT BACK DOWN! HARVONI IS NOT SAFE!

Feel free to contact me through this website. My e-mail is available! I would be glad to elaborate what I have been through with this drug! DON'T BE MAD AT YOUR DOCTOR! BE MAD AT GILEAD - I KNOW THEY HAVE LIED TO US ALL!

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PLEASE any one with info one the DRUG please contact me and my Husband , he went through the treatment over a year ago , and sense then he has heart problem's and has had to have a pace maker put in , his health seems to be going down hill sense the treatment ,, DOC don't or wont say the reason or the cause .... is there a attorney covering a suet for this drug and if so how do we get in contact with them .... PLEASE HELP , I DONT WANT TO LOSE MY HUSBAND BECAUSE OF A DRUG THAT WAS SUPPOSE TO CRUE HIM OF HEP C ......

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Interested in progress

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DO NOT TAKE THIS DRUG! YOU CAN LIVE WITH HEP C, YOU WILL NOT LIVE LONG WITH THE TERRIBLE CANCER THAT COMES AFTER TAKING IT! MY FATHER TOOK IT FOR 12 WEEKS FROM OCT 2015 TO DEC 2015. MY DAD WAS DIAGENOSED MARCH 2016, HE DIED OF STAGE 4 TERMINAL IN APRIL 2016. MY FATHER WAS FINE LIVING WITH THE HEP C BEFORE HE TOOK THIS PILL, HIS DOCTOR KEPT PUSHING IT ON HIM. I BELIEVE SHE SCARED HIM, NOW HES GONE. DONT TAKE IT!

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I was commenced Harvoni treatment in August 2016. The virus has now been cleared from my body although I have been told I will always have the anti bodies so cannot be a donor of any type. Unfortunately now, 5 months after the Harvoni treatment, my blood test showed some mono-clonal B Cell abnormality and it was recommended I have a bone marrow biopsy. I have now been diagnosed with mild onset B cell Non Hodgkins Lymphoma. I had no idea and was not informed when offered the treatment that so many people were having cancerous side effects. Out of the frying pan and into the fire.

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Coming up on the 2 year mark since taking Harvoni. Still have not been able to get a referral to even a GP from my nurse practitioner. Instead I was sent to a naturopath who didn't help. Am exhausted all the time. Rarely leave the house. Don't seem to be able to digest food anymore. Am now afraid I am dying of malnutrition. Waiting for the class action lawsuit. Hoping it happens before I give up or simply die.

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Took Harvoni for 12 weeks, Hep C clear, but stage 5 kidney failure as a result

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Do not take this drug. My father started taking it in Oct.2015 finished it in Dec. 2015 tested negative for HepC, in Jan.2016 he diagnosed with stage 4 cancer, he had developed 5 tumors in his stomach. I might add that my father previously had colon cancer in 2012, but all of his colonoscopys always came back negative for any cancer after. I think Harvoni caused a different cancer in my father and I hate his doctor because she kept pushing the drug on him and scaring him so he trusted her over me. My father died April 16, 2016. Do not take this drug he was living a regular senior citizens life (sugar check, pressure pills, aspirin, & imdur, regular physicals) before he started taking this pill. Do not take you can live with HepC my grandfather lived with it so can you.

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My mother died after taking Solvadi & Olysio. It's about time Gilead pays for these horrible drugs. They deny some people, then like my poor Mom.. her doctor puts her on this drug... at 80yo, for no reason, and she dies 6 months later from horrible complications all related to this drug :(

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I started a 24 week corse on HARVONI. Yes I read all the negative complications and told my doctor about them and my concerns. He told me he hasn't seen any really bad side effects. He said the people who had bad side effects and supposedly developed cancer after treatment more than likely had cancer before starting HARVONI. He said I was in great shape and this would cure me. When I asked him if the lumps on my liver the scan showed up could be the start of liver cancer, he replied no-one would really know for sure unless they did a biopsy and then they might miss the area that it was starting in...Hmmm. HARVONI is like going on chemo to me. If it doesn't cure you it will help kill you. I watched two friends with HCV die a dreadful death recently so I figured I don't have much to loose at this time...

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I started the Harvoni Oct 2015 finish Jan 2016 three days I was diagnosis with 2lb thymona in chest had surgery March of 2016 was cancer needed 28 treatments of radiation . Loss alot weight soon after tasking the medication . It was a miracle that the tumor was found . Now it's 2017 I was hospitalized for double pneumonia .Now Severe stenosis of the celiac artery . Been seeing one doctor after another . Not sure what is happening here but really won't like to know if harvoni has anything to do with all these diagnoses . Specially the tumor in my chest .. So please if there's anyone that knows of this please let me no Thank you .

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I have seen all these comments and certain agree that Harvoni is not all it is cracked up to be. Hundred, if not thousand have been injured by this drug. I secured a listing of reported problems that were made to the FDA and I will gladly share with anyone who wants the truth. Write to listenwithin at att dot net. As far as legal action, the drug is too new and the only suits out there are entities trying to get info, those who want to take Harvoni and have been denied access and there is a new one out there for those who had their Hep B reactivated. I am sorry for all of us who have been injured and know that justice will come at some point.

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I started Harvoni last June of 2016. I had a low viral count of 4.5 million, I had contracted HepC in 1977 getting military shots upon enlistement. I didnt even know I had it until 2005. I waa energetic, motivated living a productive life, married even had a kid who didnt contract it, neither did my wife. Well I was told I was the "perfect candidate" by the VA becauase of a low viral count and because I had no liver damage. Well after completing Harvoni, my life is now totally opposite. I am bedridden most days(99.9%) due to swollen feet, legs, hands and all joints, ALL so sore its hard to move, I also suffer with SEVERE nerve pain down my legs, in my lower back, SEVERE kidney and liver area pain, extreme headaches, cant stay awake, I am always so tired but due to SEVERE pain I cant get much sleep, its crazy. I have lesions and boils I had never gotten, I have ringing in my ears, shoulder and knee pain that is excruciating. I could list about 30 more but what really scares me is my vision is blurry, my head is so foggy and my memory loss is really bad. All these issues started while on and actively taking Harvoni. I was told many of these werent listed side effects by tbe VA yet so many people have experienced the same things, I was told once I stoppef treatment they would clear up if Harvoni was doing this, well it hasnt, its actually gotten worse, I keep getting told that Harvoni has long since left my body but the damage it has done is no joke, its been life altering.. I was told I was the "perfect candidate" because I had none of these issues or any issues HepC causes. I was told by doing the treatment it would only make me healthier and add years to my life.... Well I had NONE of these LIFE ALTERING issues before taking this so called Miracle drug. I am so upset that Gilead was allowed by the FDA to approve this drug without all clinical data. Had I known what Harvoni was going to do to me, I would have kept my HepC, I found out by accident I had it, I was a real productive member of society, I worked hard, I played hard and I was healthy in every other aspect except this hidden disease. I am now 9 months post Harvoni, many if not all I pray at night that I wont wake up in the morning. I cant work, I am bedridden and my life is in shambles thanks to Gilead, the FDA, the VA Doctors for promoting this total life altering drug this is. If I didnt mention being depressed its because before Harvoni I wasnt, now, my life has no value ir quality. My medical history proves I had none of these issues, I understand age can give us all a little arthritis or age pains,,, what I have and what I am now going through due to Harvoni are not those things..... I would GLADLY take my HepC back, I would give anything to step back in time 9 months ago..... Shame on Gilead and the FDA, all for the almighty buck. Harvoni has taken away EVERYTHING from me, financially its ruined me, medically its created about 35 - 40 medical problems I never had and it has reduced me to less than half the man I used to be... I only wish I had a legal option... Gilead should be ashamed of hiding and not telling us ALL the truth about the real possibilities

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Not dying from Harvoni yet - My life for their fat pockets? Three weeks after my "cure" my friend sends me a text to say she is glad I am alive...why I ask with an lol! She said a woman she knows just lost her boyfriend to Harvoni!
Day two of Harvoni 2016...2 pills!

I am so confused,it sounds like they are giving it to people that do not need it - why?
I was so gullible as to the ways of those in POWER and their corruption, just because an Illuminati puppet Star named Pamela Anderson took it...oh that means it's safe right? NO!
I get seen in March 2017 a six month follow up and to have blood drawn for a Alpha_Fetoprotein test.I will report back with the results. I honestly think I am going to have bad news - just being honest.

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My mother got diagnosed with cirrhosis a year and a half ago , 2015 She started Harvoni on March 2016 and did 24 weeks treatment.she got cured of hep C ( which she got during blood transfusion in 1986 ) she used to do parasenteses every week for 6 months in a row pulling out 4-5 litters every time . Her accites stoped after taking Harvoni and her Mel score dropped tremendously down . We were all super excited and for her especially after the crazy long wait to get this medicine which we were praising like it is "God " . I'm the only child and the responsibility I have to help mom is so much bigger than having siblings.
The doctor ordered an MRI a week ago and in two days I got a crazy painful phone call from her doctor saying "I'm sorry, your mom has liver Cancer and we need to see you ASAP )
Here comes my question: is Harvoni a life saver ( as it is promoted) or a KILLER ???
I have 3 daughters and my mom helped me raise them , and my 2 oldest ones are getting married this year . One on February and one on June . As we do bridal dress fittings with them and nana iAd always present , all I see is tears in their eyes, worring if their nana will be on ? Will she make it to their wedding? Their nana that raised them , loved them . We are questioning ourselves if we did something wrong letting nana use Harvoni.

I know it is not scientifically proven, but I have a terrible feeling about this Drug !

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my mother had Hep C for 25 years. In September 2015 her doctor pushed her to start Harvoni treatment. She did. Finished the treatment in December 2015 and was diagnosed with liver cancer in March 2016. Tumor in the portal vein. Where there had been no tumor before (she had CT scans and MRI's that didn't show any cancer prior to this). She passed away in August 2016 from liver cancer. After reading these posts I now believe she would still be with us had she not taken the Harvoni. I should have researched but you trust the healthcare professionals too much... I hate to think the last year of her life was spent mostly sick and fighting cancer and maybe needlessly. She wasn't even near end stage liver disease before she started Harvoni, but soon after finishing her liver health took a downhill slide very quickly...

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I have been reading here a long time
It had been strenght to me in my decision to say no to HCV treatment.
Was told I have been infected for about 11 years, fibro F2-F3. Enzyme tests only a little bit high.

Unfortunately I ran into a control situation and the gastro department tried to force me into taking Harvoni.
That has been very aggravating as I understand and believe that I have my own right of choice in this matter.

Some time has gone by now and they concluded that I do have the right to my choice.

But now I am being offered a chance to take Epclusa.
They are handing me much the same line, not saying much about it all except I will have a smaller headache.

I'm in the dark about everything else and very much alone. It is a new drug and like with the Harvoni all they care to or can mention is a good chance of being cured and a small headache.
On top the laws now protect the pharmaceutical company's and they are no longer liable if a patient dies or is hurt by their drugs.

I certainly do not trust this situation.
Also I at my age will in probability
not see the time that the virus kills me.
Life has had enough of problems without having to stand against their pressures.

Posted by

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Hi I have been looking for someone who would help me with a law suit against the drug Harvoni if you know of someone please help. My husband started on harvoni January 12 th 2015 and on March the 30th had a very bad heart attack and the hospital told him his heart was fine. After that he just got worse and worse, His last treatment was April the 3rd 2015 only 3 months and he was fine and doing good before ever starting this treatment. He got to were he could not breathe so we had to got back to the liver doctor and hospitalized and after one day of being in the hospital I was told that his heart had stopped pumping blood to his kidneys and that his heart was only beating ten percent. After more test they came and told me that he had suffered a bad heart attack a while back and would not live through the day. he passed away 2 days after taking him there. he only lived 3 months after taking harvoni. what a shame that you can be fine and then put on a drug that was not fully reserched and die from it but can not get any help so this want happen to anyone else.You can live longer with hep c then taking harvoni. if you know of lawyers to sue them for wrongful deaf please let me know.

Posted by

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Oh God...I have just read all these comments and I'm terrified. I've only been taking Harvoni for a week so far, after being pushed and pushed by the liver team to go on it (I don't know why, as I have a tiny amount of virus present and no associated health problems, not to mention I had to have a hysterectomy 6 weeks ago and I'm still recovering from that but they were DETERMINED to get me on this!) I was not told it could re-activate the Hep B virus. I was told it was all peaches and cream and there were practically no side effects. Now I'm reading your comments and I 100% believe you that this drug was to blame. I know what it's like to be dismissed by doctors who just don't want to know. They're just going to say "well you already had liver disease it could have happened anyway" There's research showing that extremely fast-growing and aggressive tumors are being found in some people AFTER finishing this treatment. Harvoni is so new that even the drug companies probably haven't decided what to do yet! I think they should have tested this drug for much longer before releasing it to the public. I don't want to become another statistic. I've never had such a difficult decision to make...do I stop this or carry on and finish my 8 week course?? Good luck to everyone else on here I wish you all well. Keep fighting!

Posted by

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Hello...I am writing to you to see if you can advise or direct me to where i can go to begin a class action suit against Hep C treatment cocktail of Ribavarin & Sovaldi. I am speaking about the effects AFTER treatment has been completed. It has been 3 years and serious side effects are ruining my marriage. Can you assist? ty

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I'm so sorry to everyone's horrifying stories. I was going crippled and couldn't get out of bed before her Ronnie. Gilead paid for my treatment and it seem like my health was coming back and I return to work for six months. I finished my treatment in June 2016 it is now January 2017. I no longer can work, or have any time during the day without excruciating pain and fatigue. I feel sick all the time, and it's only getting worse. I am afraid to get my liver and bile ducks checked out because I do think the worst, but I got to do it. God bless everybody here and their families, I pray you find comfort Through your faith, I know there something better on the other side. But we who have been through it and no, get the chance to fight and inform everybody who is deciding on this treatment. I'm glad I found this website, because it gives me answers As to what I'm going through. I'm glad I'm not alone, but wish it was for a better cause.

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If anyone wants to list of side effects that have been reported to the FDA but nobody is talking about just email me at listenwithin at att dot net. I am two years post now and have a very real decreased quality of life. Another victim of this drug. Wish I had known ALL the side effects before taking Harvoni.....then I never would have.

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To Nancy Aziz, my father took the Harvoni almost with the same time line as yours. What you outlined below was almost exactly how this horrible drug killed my dad. Even his diagnosis was same time frame. Only thing is that my dad lasted for two months more. There are too many people getting sick and dying from this drug as the postings here show. I'm certain the medical community will say that this isn't scientific and that they don't feel cancer is a side effect - but then again the pharmaceutical company probably did the study themselves. A class action suit to stop Harvoni is more in order.

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I began a 90-day Harvoni treatment in September 2016. I have osteoarthritis with occassional knee discomfort. About the third week of treatment, my knees began to painfully ache constantly. The pain continued to increase, and now at the end of the treatment, I can barely come to a standing position or go up and down the stairs without excruciating pain. My pain medication which I only used every three months or so is ineffective, and I take it on a daily basis now. I believe that I have permanent knee joint damage as a result of taking Harvoni. And, the damage seems to be escalating if the pain is any indication.

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I had a viral count of 8,000,000 the 1st doctor said you have had Hep C for 40 years...and not problem...you could go another 20 years without a problem...I was 68 years old at the time...contracted it in the 60's [drug use] ...That doctor left the clinic...the next doctor suggested that I take Harvoni....it wasn't but month after treatment they found a FAST growing tumor in my small intestinal track...non-Hodgkin Lymphoma. I am now taking Chemo RCHOP ...I am very suspicious that I contracted it from the treatment, while on the drug...I was informed that the Harvoni lowers the immune system...allowed the cancer to form???

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I was treated a year 1/2 ago since then it has been hell. I was never this bad before the treatment. I had a life and a body. (Vertigo, falling dizzy spells, severe spinal nerve joint and leg pain, Brian fog, memory loss, Hair loss, word search, blurred vision and slued speech which comes and goes). (I went from walking normally now to using a Cain, shower chair, back brace, stroller and now a electric cart No energy or stamina left in my body. The depression has worsen along with the anxiety and mood swings , When will it end? I pray every day for god to give me the strength to get out of bed. Much less quality of life now then I had before I started treatment.. Constant pain every day from the moment i wake to the moment I go to bed. (HELP)How long will we suffer?????????????????????????????????????????

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Had Hep C from blood transfusion when I was 18.
Was told to take this miracle drug Harvoni September 2016 for 12 weeks.
Had severe headaches, irritability and weakness with fatigue.
The last 10 days I got worse and worse. Had to stop it 5 days short of the full treatment. I could not get out of bed. The fatigue, joint pain and flu like feeling came on fast and relentless!!
My blood count is off the chart right now. Waiting on getting definite diagnosis of Leukemia ~ CLL
Are you kidding me!!! I am so sick and so upset. If I would have been told I would have chosen NOT to take Harvoni.
Funny, how Harvoni reps called me until I got so sick. Now I don't hear from them. Be AWARE of what can happen!

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Shortly after completing my Harvoni drug therapy last June 2015, I started noticing more increased joint pain and loss of feeling in my feet.I became more confused, (brain fog) and irritable. Have had increased back pain too.l This past February, I was diagnosed with inflammatory arthritis, and 94 % nerve damage with peripheral neuropathy in both of my legs and feet. I have fallen several times due to this loss of feeling, and my feet and legs just "giving" out. I have constant pain throughout my body, and crazy, misfiring of the nerves in my lower extremities..Physical therapy and pain meds do not seem to help at all. I now walk with a cane. I also have a nodule in one of my liver bile ducts. I will be having another ultrasound of the bile duct in February to see if it has advanced. I had hep-c for 43 years with very little, if any symptoms, other than fatigue. I didn't even think about it because it didn't cause me any problems. My doctor however, talked me into taking Harvoni by expressing it was a cure, and that I wouldn't have to worry about getting liver cancer. Since then, I have been miserable. I'm sleep deprived due to being awakened from pain, and insomnia. If I had known I'd be dealing with these issues before taking the meds, I never would have done so. Has anyone else here been diagnosed with the neuropathy?

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The reckless practices of medical providers and its government oversight agencies continue unabated because they do not esteem the value of life! On September 20, 1985, I suffered a heart attack. This period of time was at the height of the HIV/AIDS epidemic so, I being a rational person saw the risk of becoming infected though infected blood through transfusions. I voiced my concerns to my Kaiser Permanente primary care doctor and to the cardiologist that was assigned to treat me. I also asked them to allow me to provide my own blood or my selected blood donors so that blood could be banked for my use in case surgery became necessary. My concerns and requests were documented in my medical records, but they were ignored. I was scheduled for angioplasty on October 28, 1985 at Kaiser Permanente Sunset medical center in Los Angeles. That procedure (My medical records do not indicate that an angioplasty procedure was ever done) turned into emergency heart surgery in which I was infected with a disease that gave me so much pain that for some time drove me to consider suicide (yet you will read and hear the constant false propaganda, paid by medical providers in an effort to conceal their butchery, that Hepatitis C gives no symptoms!) Kaiser Permanente doctors took 11 years, after I became infected with their infected blood, to report to the Department of health services that I had HC. Kaiser Permanente doctors did their utmost to conceal the harm that their reckless practices had caused. They ignored my complaints of my torture filled symptoms, my medical records were altered and through medical processes made attempts to kill me because I complained about their abusive harmful practices. Earlier this year I underwent the 12-week HC treatment with Harvoni pills which cost $1,000/pill. I was short changed one pill! Recent blood tests indicate that my body is free of Hepatitis C but now I am told that my liver is compromised with cirrhosis which can turn into cancer, so now I have been told that I am to get a liver test done every 6-months to check for cancer. Harvoni has caused severe swelling of my feet and other parts of my body especially in areas of the body that have undergone trauma in the past. Harvoni also has caused severe arthritis pain and from all appearances all these adverse side effects are being hushed and not being given attention. So it appears from all observations that the goal of medical providers is to create epidemics which harm and kill and then to have the victims and the general public to bear the cost of their butchery! Glaring examples of such butchery were displayed as follows: 1. when I underwent an angiogram procedure for the 1st time after the heart attack. At that time the mortality rate for angiograms was 2%. After completion of the angiogram the doctor that did the angiogram asked, the group of other doctors that had observed the procedure, if there was someone who wished to repeat the procedure. One doctor volunteered and repeated the procedure without documenting such procedure in my medical records thereby placing my life in double jeopardy! 2. In late 1996 or early 1997 after I read a medical article that Hepatitis C damages not only the liver but also other major organs I demanded that tests be done of my liver and of my kidneys. A scan using radioactive material was done of my liver at Kaiser Permanente Downey medical center but my request for a test of my kidneys was ignored. Later I was informed that the scan found no problems with my liver; however soon thereafter I injured my ribs and had to go to ER to be checked. The doctor that checked me ordered X-rays of my ribs and as I handed him the x-ray films he asked me what I had been doing. I asked why he asked that question and he replied that the x-ray film showed that my liver was very inflamed. I replied that the inflammation of the liver was caused by the diseased blood transfusions that I had received during heart surgery that was done on October 1985. Then I pressed the doctor about the condition of my liver. The doctor only said that my ribs were O.K. and said nothing further about my inflamed liver. After that I had several ultrasounds done of my liver and all of them indicated that there were problems visualizing the condition of the liver and recommending that a scan be done. No scans were done. 3. On January 31, 2005, I underwent a 2nd heart by-pass surgery once again at Kaiser Permanente Sunset medical center. Right after the surgery two medical personnel, one of who was wearing a white medical coat, made an attempt to kill me after discussing in my ICU room the method they opted to use to get "rid of a problem." My head was lowered and they quickly walked out of my room as liquid started flowing into my lungs through the breathing tube that was in my throat. I made noise by pounding the back of my right arm and hand on the bed side rail, which was raised, with all my strength. As I struggled with the drowning feelings a young nurse walked into my room turning the lights on and fixing her long hair and eye glasses. But right behind her also walked in one of the two medical killers. I identified the killer to the young nurse with gestures. This killer might have been the nurse's supervisor. Two years later the media publicized the disappearance of a young nurse and as I viewed photos of the nurse I recognized her as the young nurse that had inadvertently saved my life. Later the decomposed body of the nurse was found in a trash can in the city of Arcadia. The media identified the nurse as Liya "Jessie" Lu . I truly believe that Liya was killed because she botched up the attempt on my life and because she saw me identify one of the killers to her. Before Liya disappeared I used to received late night telephone calls that were made by a woman that talked in a language that sounded Asian to me. The caller always quickly hung up as soon as I answered the call. After Liya's disappearance those calls stopped.

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My husband has had HepC since the early 80's Never seemed to have a problem. Doc said, OH TAKE THIS NEW DRUG AND CURE IT! He took his last pill the day before Christmas 2015. Oct 2016, a routine ultrasound shows he is full of Liver Cancer!! In March 2016, all was clear! NOW, suddenly, the only treatment available is the Y90 Radioactive Implants! Its inoperable, told he has 6 months if we don't get the treatment started asap! I ABSOLUTELY BLAME HARVONI!! DONT TAKE IT!!! You can LIVE with Hep C.. Harvoni will kill you. My husband just turned 60. God I wish we could turn back time and say NO to the "cure". What can we do!!???

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To all that are or that are planning to take Harvoni:
My fiance is currently taking Harvoni as fear of more liver damage (because of the Hepatic-C virus)will occur If the virus is not stopped in its tracks. He has been on HHarvoni (with a promise that he will be cured.) for 5 weeks. The changes are terrible. He gets mad all the time, forgets daily activities, and sweats. This Harvoni has not been tested enough to know future consequences. You think it's killing the host that produce Hep-C but forget what else it has to be doing. It is 2 very powrful drugs fighting a thing that has taking years to infect "the liver". 3 months of pills and it's gone? Oh yea it is but it will bring on something else that worked hard along with the now infected liver. please take caution and look, read and research Harvoni before taking this POISON. I CAN TELL YOU FROM THE BOTTOM OF MY HEART ITS NOT A GOOD THING FOR YOUR BODY! Read up on all the situations that other users have derived after treatment. Stay safe and God Bless all the families that have lost loved ones possibly because of HARVONI!!

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My husbands insurance made him wait until he was sick enough to take Harvoni. He did the 12 week course of Harvoni and has since been in worse health since he quit this drug.

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I finished my Harvoni April 2015, soon after I developed a cancerous tumor on my pancreas, cyst on my liver and 3 on my lungs. Just had surgery to remove part of my pancreas and my spleen. I only know of one other person (friend of a friend) whom also took harvoni, he is dying of cancer tumors which spread (pancreas,liver,lungs) After reading all these comments, I'm convinced it's from the harvoni.

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My father contracted Hep C in the 80s. He did several different treatments over the years including interferon with little to no change. He took a 24 week course of harvoni that ended in Jan/Feb 2016. At the end of the treatment he was cleared of Hep C. Within a couple of months he began to lose weight but was also going through a divorce at the time so he didn't think too much of it. He had a CT scan done in June/July of 2016 where a mass was seen on his liver. A few weeks later a biopsy confirmed that it was cancer. He was originally diagnosed with hepatocellular carcinoma (liver cancer) but later got a second opinion from a specialist in a bigger city/hospital where he got a different diagnosis of cholangiocarcinoma (bile duct cancer). This diagnosis was given to him mid-September 2016. By this point there were no treatment options as the cancer was too far advanced. He passed away on October 17, 2016.
After reading all of these other people whose loved ones have experienced similar situations I'm more curious than ever if harvoni had some part in him developing this cancer? My mother is convinced it's the cause. Is there anywhere else that people are talking about this?

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Freeatlast,

"....I will not credit the stories here that have no basis in science."

Guess what Freeatlast, we have no need for you to credit our stories and many wish you would just shut up.

For a man of Science your statements are very unscientific, making you a bit of a laughing stock unfortunately. It's more than annoying that your abuse was slapped down at another forum and so you now come again to harm others through such arrogant invalidation.

I'm happy that some people are cured via Harvoni without or with minimal side effects, as was I (cured with one of the components of Harvoni...Sovaldi, and with minimal side effects). However, for me to claim that my results are scientific whereas others who developed problems are not scientific and in error would be ludicrous. Freeatlast, your results are no more scientific than those experiencing problems. We are the first generation of pioneers taking these new DAA's OUTSIDE of the initial safety tests they ran and the initial tests do not apply here.
REPEAT -- Your experience does not equate to reality, and we are not in a scientific test at this moment.

Studying the research, you will find that even the researchers admit that side effects have and do occur long after the testing period is over. So we can't claim, even those with no current side effects today, that any of us will not have them in the future.

And, have you noticed that you don't seem to find all these reports of negative side effects from other DAA's for the most part outside of Harvoni? That in itself should be a red flag that there are MORE problems with Harvoni and lend validity to those claiming problems with it -- well for a man of science it would.

Just because you can't comprehend how DAA's could cause cancer does not mean there is not a correlation. It might, in fact, just mean you're ignorant. Reading through the effects of many medications, including DAA's, I can easily see how these drugs damage mitochondria. We all have varying abilities to cope with this, and it appears some people were damaged severely while others like us sailed through it (as far as we know).

Second, a man of science should know that while SOME reported negative side effects are indeed a coincidence this does not mean that all are! Yet you are absolutely certain that all side effects are all a coincidence and mainly a product of confusing correlation with causation.

Really Freeatlast, look at all these people reporting problems. Don't you also remember all those on the other forum too? And have you read all the people reporting adverse effects on the FDA website? How many people have to tell you their experience before you believe that maybe your experience is not the only one that counts!
I'm starting to get the feeling that after passing gas you would need to find an Abstract to make sure it really happened.

Please, everyone, keep reporting your experience and ignore those who seem to exist to invalidate others. Only by making known what is happening can we create changes so that the drugs are not so damaging.
There are ways to minimize damage to mitochondria, and this information should be given to everyone as a followup after taking any medication.

Furthermore, these tests to determine the safety of drugs should NOT just be done on the most healthy -- this is the crux of the problem as I see it -- these drugs are created for the most healthy and if you're a person with problems to begin with you are just seen as collateral damage :( And then BLAMED as a person who just had a pre-existing condition.

I know scientific experiments need to be set up this way initially, but we should push for testing on those who are not so healthy too...especially since in this toxic world we live in now most people are damaged with chronic health conditions.

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Hello
My father had also lived with Hep C since the 70s. He took supplements and followed a good diet, no alcohol,etc and at 73 when harvoni came out was given it despite being diagnosed with liver cancer. The harvoni cured him of the hep c but it came back, and within months he was dead. I truly believe that if he had not taken the Harvoni and the hepatitis hadn't come back so aggressive we would have had more healthy time together. Reading these posts makes me feel like Harvoni is a killer. I'd love to hear if anyone has sued the doctors and had success. I'm surprised that they gave my dad Harvoni at all if he had cancer.

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Harvoni is a miracle drug. After two impossible attempts with ribovarin and interferon which were long term nightmares, with every side effect listed other than suicide, Harvoni was painless, without any side effects, and cured my Hep C after 35 years with the disease.

Coincidence is not correlation. Many Hep C sufferers were alcoholics or drug addicts, many are up in years (as am I), many most likely had other illnesses brewing that coincidentally manifested after Harvoni treatment.

Harvoni stopped the replication of RNA in the Hep C virus--a brilliant approach. How this could cause metastatic cancers elsewhere is beyond me. With some here saying that doctors gave them explanations of the additional ailments, but they prefer to believe it was the Harvoni--well that sums up the evidence based explanations given by most of the participants in this thread.

I fully sympathize and empathize with the persons who experience life-destroying illnesses and diseases. I will pray for them. But I will not credit the stories here that have no basis in science.

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My husband has had Hep C since the 70's. He was on meds for this twice the ribulvarin and interferon and it always came back. Always working until he retired in 2013 and we moved to Florida. Stared seeing a GI doctor who claimed he needs to be on Harvoni as they have found great results were the virus is cured. He did the 12 week treatment no side effects in 2015. In 2016 he has developed acitis and has to get drained every two weeks. He is fatigued and has lack of energy. I truly believe this is due to Harvoni. He was a drinker in his day but quit in 1988.

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Huh? So many comments about cancer in response to a more than 1 year-old article about the price/difficulty of obtaining harvoni?

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Just wondering here I've just finished 6 months of viekira pak/rib . there's only posts about harvoni.can viekira cause these symptoms aswell?.

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After my father's treatment with Harvoni he was diagnosed with liver cancer that spread very rapidly. He had hep C since 1979 and lived his entire life with no complications. Started Harvoni because the GI dr recommended it and now he is decreased.. After reading all of this I am convinced Harvoni caused the liver cancer. Before the treatment began he was very active, hard working person. He went to his drs and did bloodwork often and there was no signs of cancer.

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I took Harvoni for 12 weeks, which was hell. I couldn't think straight, was scared to death, didn't know who I was or where I was sometimes. Was driving when this happened, didn't know where I was and where I lived, it was horrid. I broke out it horrible pain and red spots, then hives 5 separate times during this 12 weeks. I went to ER 2nd time. They couldn't explain, and I let all my dr's know, none could explain it either. I now think I was allergic to Harvoni! I have more neuropathy too. It was a horrible 12 weeks and got worse. I still feel it. It's been almost a year!

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I finished 24 weeks of Harvoni in December 2015, felt better than I had in years all through January 2016 then it was like a curtain dropped, I feel bad all the time, I'm having a hard time believing everything is fine. The follow up test showed clear of virus and I was told if it was positive at any point after that it would have to be a new infection!? Huh? I failed treatment 3 previous tries. 2 of them full year showing I cleared at the end then it showed up positive later, after only a couple months but I don't think they can check at 3 months with Harvoni and call it good. I am tired, I can't sleep, I itch a lot and half of the night. I was wondering if there was anything on longer term response to Harvoni, I am glad I found this. I will insist on being taken seriously when I go in to the doctor again

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Hello, I have just finished the first 4 weeks of treatment, I go to see doctor tomorrow and blood work for viral load. At start I was low, very low 2270000 I have had Hep C since the 80s, i have had 2 liver biopsies in last 10 yrs and my liver is fine. I have not had to many side affects,,tired,,so forth, but now after reading these posts. I am very scared and wonder if its worth taking the other 2 bottles???.

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Ok I am on my second bottle of harvoni I'm just learning that harvoni causes liver cancer , I'm reAlly scared now can so done please give me more information

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My husband died June 11, 2015. He had carried the Hep-C virus for many years, controlling it with a good diet, milk thistle, and good genes, basically. He came from a long lived family. Before taking the Harvoni, he had had a range of tests (blood work, MRI, sonogram of his liver) to determine his eligibility and everything came out normal. He had also several months before in August 2014 had a colonoscopy, all clear. He began the Harvoni treatment at the end of 2014 and completed it in early 2015. The initial blood work indicated that the Hep-C was cleared from his body. We were so relieved. This was January. But then, late January he felt pain in his neck and back. Had a couple of massages as his doctor was booked up for a month, saw a chiropractor on March 11, and she got him an emergency appointment with his PCP. The doctor ordered X-Rays and called him on his cell as he was driving home to have him come back for an MRI. There was something suspicious on his spine and cervical vertebrae. He was admitted to the hospital the next day, treated with antibiotics under the assumption it was an infection of the spine. The week after that he was at UIC hospital having his neck operated on and a titanium plate inserted. They had removed as much as they could of a bone tumor. His skeleton was being eaten alive by cancer. It was in his femur, his ribs, his spine. There were tumors throughout his lymphatic system. I would see them spring up almost over night. He was stage 4 with 6 months to a year to live, in incredible pain, which he bore with grace. They gave him radiation to try to control the growth of one of the tumors on his spine so that it would render him unable to move and might relieve the pain. He wondered if it was the Harvoni, and we asked doctors and nurses about it but they couldn't find anything to suggest that. Prior to Harvoni, he had no symptoms, no cancer in his family. Yes, he smoked, drank wine, and was relatively sedentary, but he was also only 63 and in good health except for the Hep-C. The doctors could never identify the source of the primary tumor, they called it undifferentiated, the worst kind. It spread like wildfire. By the time he died, exactly 3 months of that visit to the chiropractor, he had cancer in his stomach, bladder, kidneys, adrenal glands, soft tissue, and skeleton. I have been searching to see if others had a similar experience after taking Harvoni. Finally, this site. I think of how many times he and I sat watching the pharma commercials on tv and wondering why anyone would take a medication that listed the possibility of cancer as one of its side effects. I wish we had had that same thought when the promise of Harvoni curing his Hep C materialized. I wish he had waited and that my distrust of these drugs had kicked in and cautioned him to wait. But we didn't. My husband loved his children and grandchildren. That he didn't live to see his grandchildren grow up is the saddest thing to me. That he suffered so greatly will haunt me the rest of my life. Please don't take Harvoni until these cases are investigated. The irony of being cured of a relatively benign Hep C load and dying soon after is brutal.

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My father passed away a month after completing his harvoni treatment. Similar to the rest of these stories, it started with emergency gall bladder surgery, to bile in his abdomen, blood clots, colon cancer and one thing after the other ending up on a ventilator and he never left the hospital. I found this page when he first started getting sick and worried that my dad was in the same boat as everyone else. I've come back on here 3 months later just to see that there has been more comments of the same thing happening to more people. My father had hep c for 40 years and lived well with it. He was happy when he got the chance to get harvoni and get cured of the hep c and was hopeful he would be healthier and live even longer. That harvoni treatment did the opposite and killed him instead. I truly believe that. I really hope they find more research on this to prove us right. This isn't just a coincidence that all these people have the same story. If you are considering taking harvoni, please don't take the chance. And I would like to know if there is any legal actions started for this matter and how to get involved.

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I just started Harvoni. I'm on the second week. I am feeling ok right now. But when I mentioned any of the patients who got cancer or this lawsuit to my doctor or the manufactuer of Harvoni, they have no idea what I'm talking about. This scares me. I'm praying I will be ok.

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Hello All,

Been reading all the comments here. I have lived with HCV since 1989 from blood transfusion and plasma, it saved my life but they did not screen back then for the virus..

A Nonresponder of the awful drugs, Interferon and Ribavirin ,which almost killed me and left me with auto immune problems. Hair fell out. rashes and low white blood cell count . After that the Doc took me off. I was not myself and my friends noticed changes in me.

Waited for years like many in hopes for a wonder cure in the future. Lived with chronic HCV for almost 27 years. Developed into stage 4 of 4 almost 10 years ago. They gave me 5 years to live but with careful diet and milk thistle I manged to make it to the drugs I have been following online for years before they became one. Harvoni.

They put me on for 24 weeks and my insurance to my disbelief covered it all. Humana. I have been cured of the dragon but still feel fibro all over and I have Esophageal varices recently discovered when I suffered a pancreatitis attack. Bilirubin shot way up and they kept me for 5 days. They found that my bile ducts where swollen like I had a blockage but could not explain why. So they called it idiopathic . My liver took a hit and now I have to be on beta blockers for the rest of my life along with water pills.

From reading about the many posts here of liver cancer and swollen bile ducts makes me alert to ask my Doc for cancer test.
Stay strong to everyone.

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I'm going to the doctor because hep c has been attacking my liver..2 YRS of aggravation,as 1995 I contracted hepC&B.I was OK..3/5 YRS ago it put liver in stage 4. W some large mass I VE had since after my intial near death attack from 2viruses in 1995. So Iv ALWATS had TJIS mass. (Probably a blood vessel) tested now w 4 MRIs &blood work ..still Dr.s insist more tests (Cancer?) I was so frustrated ladt year I quit going to Dr. As I simply wanted to stop Hep C from pummeling what's left of my liver. I decided after more unbearable symptoms to try @Yale. I am once again doing more same stupid tests.UNTIL I READ ON THIS CANCER ISSUE I WAS ready TO TELL DR.I REFUSE MORE TESTS..ID REFUSE CANCER chemotherapy IM IN NO POSISTION TO FAIR IT. IM 47.IM NOW GLAD AT LEAST I READ ON SITE IT CAN MAKE CANCER APPEAR OR WORSEN FAST I AM SCARED ALL COSTLT MRIS,TESTS, DR.S INSURENCE (STATE) WILL DROP ME (SPENDDOWN_CTS ANSWER TO GELPING SOMEONE DIE OF STRESS RELATED EXCELLERATION OF AILMENT CAUSING TESTS IN FIRST PLACE (isn't our system just so clever!?) I JAVE been mortified over fact people can't access drug made for them! Guess drug can't make optimal $$if hepc stopped spreading..(I'd seen on sites drug course of 12wks is 1500$ in India and other places too.) Its revolting way our priorities w people &what passes for quality of life is!(frankly I STILL WOULD PREFER TO LIVE ALOT LESS TKME W SOME COMFORT...NOW I GUESS ILL ALLOW ONE MORE TEST &SPECIALIST. IM GOING TO READ MORE ON CANCER &harvoni ASAP.AND THANKS TO ALL WHO share THESE PAINFUL EXPERIENCES..IM SO sorry U JAVE TO EXPERIENCE SUCH PAIN. P.S. I KNOW ONCE 7 YEAR'S AGO MY LIVER FAILED. I GOT SO SCARED when I LEFT HOSPITAL I STARTED A PROTICOL OF VITAMINS,AMINO ACIDS AND MILD EXCERSIZE W CAREFUL DIET. IIN LESS THAN 3months my Dr was amazed it seems (according to Dr.) A ll clues of hepc in Blood were gone It seemed as no liver problems or reason to look into hep c. (All norm) I still had hepc. I n few trs got stressed it went back. STRESS I THINK got my hep c to attack. Please get well Godspeed to all.

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Hello ...

Thank you for all your comments and honest sharing... I just received Harvoni and do not begin until Sunday.... Of course, I am not alarmed and will be praying for a clear answer... What I can do is just know that you all have made an impact on me....

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I have just been diagnosed with liver cancer and have just finished 24weeks of harvoni .i have survived with hepatitis c since the seventies. I was told by my hepatologist that I would probably live a long time with limited cirrhosis but he recommended harvoni and I listened. Do your due diligence before you go on the harvoni program. Good luck.

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Thank you for your stories, so sorry that you have lost loved ones, or your own health. I was diagnosed in 1970, but never drank, smoked, nor used iv drugs. Mever ate fast food. Recent years, after invasive biopsy, my hepc started to advance, stage 2 in 2011.
Have tried to get Harvoni, but not sick enough. Liver was swelling by 2014, very sick & I was put on a wait list in early 2016, so started doing all alternative meds, tumeric/coconut oil/black pepper, high dose food grade vitC, ginger juice & organic lemons every am, beet, cabbage/ broccoli etc juice every pm. Avoid any GMO foods, eat only natural foods. No sodas for 10 years. So returned to doc, had fibroscan at 4.5, viral load down to 1 million from 20 million, enzymes in low to mid normal range. Not going to take it, doc said with low fibroscan could not get it anyway. I am so grateful to avoid Harvoni, & appreciate all the warnings posted here. Will continue my rigimen as much as I can afford, had a inheritance that went to pay for much of that, plus used cannabis oil when was in Ca, sure that helped also& oregano oil, I grow oregano. Please be well , and educate yourselves before going the Harvoni route.

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So the news we have dreaded is here my dad is in liver failure so so sad god please save him

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So i sit and read these posts as my dad lies in a hospital bed getting worse by the day.....our story he was diagnosised with liver cancer one yr ago he has had hep c for more then 20 years and was doing well able to travel live a normal life.... He recieved treatment ( y 90) and chemo which he could not tollerate in oct 2016 his tumor markers dropped and he had quality of life untill now 8 weeks ago he started havoni and ribroviran after 4 weeks of treatment his cancer has exploded drs cant find it he is jaundice swollen cant eat weak... liver functions which were normal even with the inoperable liver cancer are now horrible as is amonia levels bellyrubin tumor markers he is being drained from liver and stomach and was told by his provinding gastologist im so sorry somtimes this happens with harvoni wow the drug we fought so hard to get (denied three times prior to the cancer by insurance )could now be the cause of his decline ??? Prayers please im so sorry that so many others know this pain????

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8 weeks of Harvoni finished a year ago. Left with chronic pain in my face & overwhelming fatigue with brain fog. Can't get my healthcare provider to believe me or refer me to a specialist. Instead I'm being pressured to take Gabapentin while I wait the 3 years to get into a pain management program.

8 weeks of Harvoni made me sicker than 45 years of Hep C. Honestly, I wish I'd never agreed to take this poison.

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I have been on a down hill spiral since Harvoni. Dr. doesn't do much other than blood work. Liver normal numbers. Joints, neck, back surgery done and still worse than be fore meds. Not to mention it has totally messed with my mind. Harvoni is a bad drug. I tell my wife every day had I know then what I know now I would have never taken this drug. It needs to come off the market until they see how many of us they have killed or are dying from this drug.

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My father finished his Harvoni a couple months ago and he too has now been diagnosed with liver cancer. No one will admit it's from the Harvoni, nor can we say for certain, but he didn't have liver cancer before he took the drug. Now all doctors are running away without providing any treatments or hope. Coincidence, I think not. Sounds like too much money for big pharma to lose, what a sham.....Greed will lead humanity to a dark place if we don't wake up people.

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Was at Toronto General hospital seeing nurse. She said my fibrosis test was 4 kpa f0 stage. Also ok to take medical cannabis while on harvoni which I haven't started yet. Only follow with her is blood work every month no other tests or viral load count.
Had hep c for decades still f0. Lowest scale. Liver still good.
Have depression and don't know what to do. Received first month pills, cracked seal to look at them. Can I return them. Don't want to cure one disease to create more. Quality of life now is fairly good minus depression.

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I THINK THIS DRUG CAUSED MY HUSBANDS NON HODGEN LYMOPHA TO RETURN. hE HAD IT ONLY IN HIS NECK 4 YEARS AGO AND HAD CHEMO. Cancer going for 4 year. HIS LAST TREATMENT FOR hARVONI WAS IN jANUARY AND IN aPRIL HE HAD SUCH PAIN AROUND HIS AORTA. WENT TO ER GOT A CT SCAN AND IT ONLY TOOK 45 MINUTES FOR THEM TO TELL US HIS CANCER WAS BACK. This cancer is growing like grass. He has one on the aorta size of a quarter at that and now its the sze of a newborn babies head. Small baby. He has 5 masses. He was told stage 3 and 9months to a year to live. I beleive this drug cause this to come back. Plus his cp was going and now it is back worse than it was. Can not win

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Thanks for sharing all your stories. I am right now living the same nightmare. My husband a Veteran was diagnosed in 2012 with Hepatitis C and for several years he went untreated because he would not give up his drinking (social). Then in 2015 the VA/government decided they had been wrong to deny the veterans so they invested 500 million in 2015 to begin treatment. Those veterans who were denied where called in and offered a miracle. That was a joke! He was started on two new drugs Sofosbuvir 400 mg and Daclatavir 60mg in September 2015. In October he went through all test including CAT scan that showed fatty liver and a modest amount of fluid. He was called by his Infectious Disease doctor after these test and Ribavirin 200 mg was added because of the fluid. He ended his treatment in Dec 2015 and retook viral load which showed he was not cured from Hepatitis C. In Jun 2016 he started to have pain in his right shoulder and was taken to hospital where another CAT and Ultra Sound was performed discovering 2 tumors. While in hospital doctors performed biopsy discovering liver cancer (HHC). We have now been told by the UAB tumor clinic that there is no cure and will be no transplant because tumors are too big. Guess what here is the same old story I have been reading in each one of your post. My husbands has 6-8 months to live! Now his medication was not Harvoni but, still new anti-viral medication and FDA approved. I fear that many of these veterans are being offered this magical cure and so many don't realize what is coming. I guess this is one way for the government to get rid of Veterans receiving disability. I am writing this post in hopes that many others that were treated with the same drugs as husband comes out and share their story. A lawsuit should be filed on these drugs!

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I finished 12 weeks of Harvoni back in Feb early March 2015. I am virus free but I am weaker now than ever before and my depression has gotten worse. I have no energy and no strength. I tell my doctor but they say it is now from the harvoni. I wish I could get me health back. I was told that I contracted mine from a tattoo while in the Navy in another country. I have since found out that it could have been contracted from the high pressure injections shots while in boot camp. I don't know, but I wish I could get able to work again and feel normal. I am 61 years old.

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I was diagnosed as being Virus free since my 28 days of taking Harvoni, no side effects, no complications I just took one pill a day for 28 days went and saw my Hep C Doctor 2 weeks later (after my last blood test) and was diagnosed as being hep c free and I feel great !

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I took harvoni in 2015 while on treatment I developed UA problems problems I right after treatment ended I developed breast symptoms my entire right breast where I previously had cancer treatment 5 years ago became red, inflamed, with a hard mass over the entire top of the breast,years look like inflammatory breast cancer it continue to be a problem doctors state drug reaction and I should have mascetomy. I continue to have doctor visit and they freak out no explanation just drug reaction. My vision has to gotten really bad eye doctor said I have cataract and was amazed at how quickly they came 0 last examine to needing surgery right away almost the the worse they can be without being total blind. I believe it is all from taking this suppossed miracle drug harvoni no test enough before released.

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My son had a blood transfusion that cause Hep C.
Otherwise he was completely healthy, feeling great. 2 weeks after finishing the 12 weeks of Harvoni he died INSTANTLY...it stopped his heart.

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My husband took Harvoni and he told me that he was cured of his Hep C. But, he died after being off the medications for approximately 2 months. The coroner said he died from complications of alcohol abuse and hardening of the arteries. I think it was the Harvoni.

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I'm reading the posts and so many of our tragedies are wayyy too similar for it not to have anything to do Harvoni. After my husband passed in June 2016, I called the doctor that prescribed it and he was totally in shock. He did some research, called me back and said "he didn't find anything to substantiate my claim. There has to be something that we can do. As I posted earlier, my husband passed away of liver/bile duct cancer a/k/a cholangiocarcinoma. There were so many infections leading up to his death. It was a nightmare but he was a fighter and an amazing man - the love of my life. Anyway, after the surgery to remove the tumor that appeared out of thin air after 12 weeks of taking Harvoni, he developed SEPSIS. Please everyone goggle SEPSIS if you don't know what it is. If you or anyone you know is going through bile duct problems, unexplained tumors, liver cancer and have surgery, BE ON ALERT and stay on top of the doctors about SEPSIS. http://www.sepsis.org/ Every time I see a commercial for Harvoni, my heart breaks that it's still even on the market. No one is really listening to us but I'm sure some doctors/ nurses and pharmaceuticals have visited this page as well. How many people have to die or be adversely affected before someone will listen.

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My sister was given Harvoni in March of 2015. Prior to Harvoni, she had to go through all kinds of scans, blood tests etc to ensure that she was in otherwise good shape. Everything came back great. By June of 2015 she was considered HepC free.
The celebration of renewed life began. More exercise, completely organic food, healthy environment, happiness and optimism. By July 2015 her side hurt. Her GP said she was overdoing it and to slow down a bit. Nothing to worry about. August 2015 more pain. Same suggestion from GP. October 2015 pain is bad enough that her liver doctor scheduled a biopsy. November 2015 She has stage 4 adenocarcinoma. May 2016 she is dead. I blame Harvoni.

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I went through Harvoni treatment, ending in Oct 2015. In Feb 2016, I ws admitted to the hospital for pnamonia or respitory bacteria, never got a real answer. while in there, they found a "mass" on my bile duct. Which, in one opinion, was not a mass but a super enlarged bile duct, Had 3 E.R.C.P.'s since...no answers the Doctor don't think it's cancer but...but...but what?? I been say I've had an infection for months. NO_ONE will listen. Now I have no Pc dr. Been total sick that I even missed the month of may. Ive been to the E.R. ...no answers, they think I'm an idiot. They will not check anything for me. I constantly hack like pnamonia. The Dr. who prescribed the Harvoni said I should be grateful its being paid for. I tried fighting it. I actually stopped taking it a week in and was bitched at by the dr and nurses saying I was ungrateful. Ive been so seek. I can't find help. I can't function. Before Harvoni, I was at the Doctors 5 times in 15 years. Never, ever sick before. Where can I get answers?
Where can I get help?

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I have been reading all these reviews. My husband passed away from liver cancer 3 weeks after being diagnosed. He also too Harvoni for 12 weeks last year. Before taking the drug he was doing really good, good ultrasounds, blood work and all. Then bam, he starts hurting really bad and we go to ER and find out he has liver cancer with a mass in the bile ducts. You will never make me believe that Harvoni didnt cause this. I will not set back and do nothing about this.

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I am another person who got pushed into taking this med. I was stable with no brain fog, stable labs for over 35 years. I must have gotten Hep C back in the 1970s. I BEGGED the doctor not to make me get on it but was PROMISED there were NO SIDES~ GUARANTEED no sides and that i wouldn't know i was on it. If i didn't take it move over, she had to many "greateful" people who would gladly accept. She was the doc she wanted to treat it. We have been wating long enough in a threatning kind of way. Kind of an emotional blackmail looking back.

Three days into I knew immediately i was not the same me, it was like i swallowed steroid, LSD and some other form of poison. I called the co hotline only to be told, you are the only one reporting those side effects.

Walking around my house with sunglasses senstive to light, noisei, spasm thoughout my body collaped at night from stress, when i woke up in the AM i dreaded opening my eyes because another day of Harvoni had to pass though my system.

Tinnitus, suicidal thoughts that went round and round in my head non stop. I went from normal to rage to CRASH in some deep dark hole and no i am NOT bi polar. i felt like some evil twin entered my body i cleardly felt a loss of connectinn to reality. My attention span was that of a knat and felt like i aquired Alsheimers overnight. B/P was stroke level on meds and once stable was 190/120 when i went to the docs office.

How can we keep you on the med said she? How? i said by putting me in a hospital with a 24/hour nurse and doctor even then i just can't do this. All my labs were STABLE within range for over 30years PRE HARVONI. Now i am a mess.

Now, i have RA, depression and sadness that is quite unbearable. I had some muscle skelital issues but was doing quite well last year, my b/p med is double and not really stable. I walk around with constant "aura" upon waking, joints are all inflamed, some kind of nerve damage to my neck, and throid is off. Waiting for an MRI of my brain in a few days. Who knows what they will find. New team of docs says this is happening more often as its a new drug and just now are people having the same complaints.

Its disgusting that my doc KNEW that side effects were reported she is part of the teaching hospitals TRIALS. Having joint back pain i would have never been a candidate for this drug. It also left me with auto immune disease and zero attention span. So for 2 wks of hell i am now facing losing my apt, can't work and basically will be homeless and sick with al these NEW issues thanks to my doc that i trusted but was blind sided by money. Never did i get a call asking me how i was doing and as i take my medical out of that hospital the few depts i am still in does nothing but COVER up, that what i am expereincing is CLEARLY a result of Harvoni. Nothing changed, only that awful 2 wks of harvoni. let me be clear, my Hep C panal was pretty normal now i have the virus back with vengence. My life as i knew it is ruined.

DO NOT GO NEAR THIS DRUG it was made for people with late stage liver disease, yet because it was such a money maker they pushed it through trials, it was NOT a safe or suggested drug for people that were stable, it took the ACLU to go in and un leash that reality. It saddens me that my doc sold out to big pharma and clearly was recklass and negligant when she put a person who was stable in this med. What happened human life stopped mattering? Yet all they talk about is the profitable stock. At whos cost the VETS, Native Americans or anyone they can price gauge. Sickening.!

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This drug has cured my step dads Hep C, but he now has a blood cancer (found 2 days after the all clear), and damage to his liver and kidneys.
He had been being treated for the Hep C and was living with it. Then came Harvoni. It's talked up so much, and the VA gave it to him. It did cure him, but he has been diagnosed with MDS-RAEB2. From what I have read about it, it's like leukemia.
He started going through chemo and blood transfusions, and he was going to forego the bone marrow transplant, thinking he had 5-7 years. He made a bucket list and was going to live his life. Then the doctor told him he had months. So he decided to do the bone marrow transplant. That was 6/10/16 at the Mayo Clinic/Hospital in Rochester, MN and he has not been ok since. He had been confused/hallucinating. Then, on Saturday the 25th, my mom said something wasn't right and thank god the doctor took her seriously. They did some tests and put him right into the ICU. I sped down there, and within 10 minutes of me getting there, he went into cardiac arrest. THAT was such a traumatic thing to see. He's such a strong man. It broke my heart. My mom fainted. He was gone for 8 minutes. He has been under sedation since. He has a lot of fluid build up, so they started continuous dialysis. He is on a ventilator. Today, they're going to do an MRI to make sure his brain is ok (one pupil is bigger than the other, and not coherent during the sedation vacations they have been doing daily), and then pending the outcome of that, a lumbar puncture. They were supposed to have done that on Tuesday, but there was too much fluid/adema going on. They're going to pull the vent and stop the sedation to see what happens. PLEASE pray for him. I wish he had never taken that stupid drug!! He was living just fine with the Hep C! DO NOT TAKE HARVONI!!

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I did 12 weeks of treatment and it has been almost a year. I have not felt well since. It just keeps getting worse. I am so tired I cant hardly function, I am sick at my stomach all the time and now I am itching. I made an appointment with my doctor this morning, to get some blood work and a sono.

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Update - PLEASE DON'T TAKE HARVONI or at least think long and hard about Harvoni. Doctors assured us that it was safe, minimal side affects and that it would cure Hep C up to 98%. We were never told that it could have an opposite affect and cause liver cancer. My husband passed away on 6/10/2016 with liver cancer which HE DID NOT HAVE prior to taking the drug. Yes he had HEP C but again he was managing. He did not have cirrohosis, fibrosis or any of that and his liver was functioning well. A tumor appeared at the completion of his 12 week treatment on the drug. PULL IT OFF THE SHELF or at least tell people about the possibility of this horrible. I truly truly believe that he's no longer here due to taking this drug. What can we do!!!!!!!!!!!!!

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DO NOT TAKE HARVONI. My father was on the drug for 24 weeks, the max. In October of 2015 he finished his treatment and all was well. No Hep C, and no cancer. But a few months later my father was sick and U of M in Ann Arbor shared the horrible news that my father developed cancer in his liver and it has spread through his body and even on the bones of his skull around his eye. I'm writing this as I sit next to my father on his death bed as he takes his last breaths. Please, please help spread awareness so we can get this drug off the market. My father would have never taken the drug if he knew this would have happened. So I beg of anyone thinking about taking this drug to really think it through because Gilead and the doctors mentioned nothing of cancer.

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Can someone please tell me how you found out you had liver cancer and what where the symptoms?

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Don't take this drug. My husband had hep c and was managing. After twelve weeks of treatment he has advanced liver cancer. Recently had surgery and 75% of his liver was removed. Started with emergency gall bladder surgery, escalated to stricture bile ducts and now advanced liver cancer. He's currently fighting for his life. I truly believe Harvoni caused this escalation. He didn't have cancer before taking the drug. Please consider everything before using it. FDA should pull it immediately. Hopes this helps someone.

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I finished Harvoni over a year ago and am now virus-free, and my liver enzymes are normal.However, I am left with severe joint and muscle pain as well as almost constant tinnitus. I would never have taken this drug had I known of the permanent damage.

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I too do not recommend this drug. Unfortunately, I got sucked into taking it after it getting rave reviews by my doc. I am no longer with him. I am 14 months post treatment and sicker now than ever. My quality of life went from 10 to 3. I have not been checked for cancer yet, but I now have decreased lung capacity, heart issues, neuropathy, joint pain, constant headache, tinnitus and chronic fatigue. This stuff can be poison to some. I have FDA reports that list hundreds of problems people are encountering and there have been a number of deaths that no one is talking about. This is unacceptable and devastating to those who took this and are now suffering much more than they were before. There will be a class action I am sure. The drug is too new at this point to take it on so I have been told.

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My husband died in Jan. 2016. He did the 12 week treatment of Harvoni starting in April of 2015. He kept getting worse after treatment. Had to take him for blood transfusions & removal of fluid around the abdomen. He lost weight & was at 140 lb when he passed. He also had to keep going for banding around the esophagus. He had cirrhosis caused from hep c. We both thought the Harvoni made him worse as well. He was doing good before treatment.

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Please don't take Harvoni. I had Hep C for years and I was fine, then I took Harvoini & now I have liver cancer. I also have been going for follow checks, before I was clear and after liver cancer. Don't take Harvoin

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Did anyone here of bioflavanoids? Naturalnews.com. It kills hep c. I took harvoni for 6 wks. I don't trust it. My hep c is gone and am now taking bioflavanoids. I was told not to stop harvoni but did my research. I'm not taking it no more. You can obtain them at natural health food stores. If they dont have it they will order it. Google Naturalnews/bioflavanoids kill hep c. I also know 2 people who now have liver cancer from the harvoni. Bless you all. Lisa Taylot

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I have a few questions to ask years ago I was diagnosed with Hepatitis C due to drug and alcohol abuse I sobered up years ago for seven and a half years during that time I was actually put on a liver transplant list my liver was that bad. Needless to say I relapse after those years I was out there again for another 10 years drinking and using. During my search for help to try to sober up again I felt my body diet I ended up in the emergency room February 2014 I have remained sober and clean 2 years in February period in January 2016 I was put on the medication harvoni the side effects very hard I ended up going into a depression so bad that I admitted myself to a behavioral health center. As I read depression is not one of the side effects not sure what was going on. Now two months on the medication I have a friend contact me and tell me her brother was on the same medication six months later he was diagnosed with liver cancer the size of a grapefruit he didn't want to know how long he had he just left it at that. I was not informed that this could be a possibility of taking this medication as I found in your guys blog. What did strike me funny is the doctor had mentioned they would be doing the Cat Scan 3 months and 6 months which kind of puzzled me because they didn't do any kind of CAT scan prior to me going on this medication and having no idea what my liver look like. I would like to say April 3rd was my last pill what should showed no detection of hepatitis C but now my worries are what is the percentage of me having liver cancer the size of a grapefruit like others that I have read please if somebody has any words I could sure use them I'm making myself sick over this.

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My mom has liver cancer after 12 weeks of harvoni. She was on routine scans prior to the trx the and had no previous cancer. She was supposed to do a 24 week protocol with ribavirin, but I'm scared for her to continue the drug

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WE took harvoni for 5 years and one testicle is size of football (large size football, not soccer ball but maybe english rugby ball with some hair). And Cancer? Cancer?? let me tell him about cancer. cancer everywhere. Gilead got harvoni recipe from god but god is the devil annd some ting in hranovi is not quite right bit more salt less devil sh*t!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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I took Harvoni for 8 weeks. I had no side effects and my HEP C liver function tests showed 50% improvement at about 4 weeks.and at 8 weeks it was NOT DETECTABLE! It has been over a year and the virus is GONE! I have a new lease and outlook on life. I couldn't be HAPPIER. If you have HEP C and you can obtain the drug then by all means do so!

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I also took Harvoni February of last year for 12 weeks. 1 year later I am diagnosed with liver cancer. Supposedly a mass the size of a grapefruit just appeared out of nowhere. I have been doing my follow up ultrasounds every 6 months and nothing, then all of a sudden, after taking the Harvoni, advanced liver cancer?? I don't think this is a coincidence, and I think that everyone who is trying to get on Harvoni should think twice! You may be trading one cause if death for another.

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My husband was diagnosed with liver cancer. He only have a few months left. A few years ago he had a liver biopsy and he was fine. In July of 2015 my husband took Harvoni for 12 weeks. In Feb 2016 he was diagnosed with stage 4 liver cancer. This drug needs to pulled off the market.

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Took harvoni for 10 weeks. It has been 6 months and I continue to have insomnia, depression and anxiety. I can't work. My life is upside down.

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My husband went through many test ultra sounds and biopsy on his liver before the VA decided to give him Harvoni. 4 weeks after he started he became septic the doctors said his liver was failing and he died 3 weeks later. I'm not sure this drug is a good thing

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It's no wonder insurance companies are denying claims for Harvoni! Why pay outrageous fees for a drug that causes exactly what it claims to prevent!! Has everybody here seen all the serious adverse events (SAEs) reported to the FDA from Nov. 2014 to Jan. 2016? It's horrifying!! Not only are peoples' livers being damaged, but numerous strokes, heart attacks and deaths have been reported. The public can obtain copies of these reports from the FDA through their website.

The toxicity of these antiviral drugs goes way back to the first HIV antiviral discovered, AZT. I can't believe an educated law firm hasn't by now, started a class action suit for all the people who have suffered these SAEs.

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My mother took harvoni to get rid of her hep c. After the 12 weeks she had lost 50lbs could only eat baby food and had severe pain in her abdominal area. They then told her she needed to have her gallbladder taken out immediately. During that surgery no issues were wrong with her liver. Now one month later she has a huge mass on her liver and has been diagnosed with liver cancer. Let's get rid of the hep c so that it doesn't cause liver cancer with a drug that causes liver cancer. These people and the fda disgust me.

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My Mom finished her Harvoni treatment on 1-18-2016. Prior to treatment she had no cancer. Today on 2-1-16 @ 4:17P.M. We found out that she has Liver CANCER.

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Has one been diagnosed with breast cancer since taking Harvoni or any of their clinical study drugs

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my husband was put off for several months before he received his Harvoni. By then it was too late. His transplanted liver was too badly damaged, but still showed good function. Guess what quit first......his liver. And there wasn't time to find another liver to re-transplant. He was gone in less than 2 hours after his liver quit. I am suspicious that it was the Harvoni treatment that caused his death.

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I'm not a hepatitis c patient,but am seriously upset.How is this allowed. The doc who discovered this,some say miracle drug works for the VA,claims he discovered this drug on his 1/8 time off. 400 million he profited on the sale of the company. 84,000 for 12 week treatment. wtf!

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took harvoni worked great viral load went down was hep free had all side effects sick as hell during process of taking it then was told was hep free wrong in s test my hep free is hep c viral load up feel like shit wife contracted hep from me she was denied what is use in giving one of us an not other not sold on it think success rate is false waqs not worth being sick for 12 weeks to be sick again

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In the last weeks of taking Harvoni I had bad diarea and developed a tumor that turned out to be anal cancer would like to know who else ended up with cancer

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I have contracted Liver Cancer since taking Harvoni. I have only a few months left. I have 2 tumors on my liver that are the size of a grapefruit and another the size of a baseball.
I don't believe in coincidences. I have had ultrasounds done every 6 months and the previous ultra showed nothing. Now 6 months late after I have taken Harvoni, I have 2 huge masses on my liver.
I think the Harvoni caused it. What can we do to make people aware of this side effect?

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I had stage 2 fibrosis in 2012. The insurance said I had to be at stage 2.5 to get Harvoni. I was Hep C negative in 2011 3 times. I was positive in June of 2012 and by December was at stage 2 fibrosis. Apparently my body is not fighting this at all. My ALT's are elevated and my viral load is at 16.7 million. But I am not sick enough for anyone to help me. I have e-mailed the governor, State rep and Senator. I don't understand why but my insurance wont help Gilead wont help. I told my daughter to sue everyone if I die before approval. At least my grandkids will have something when they lose their granny!

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I have Gilean willing to issue me a 23,plus thousand dollar coupon I can get to pay for my 3 month prescription of harvoni, in which Kaiser member service gives me the # to call to get this far and then they will not recognize the coupon. I have Kaiser Covered California plan which my out of pocket in this case is $6250.00 and Kaiser wants me to pay them $2444.71 every 2 weeks then I can go through Gilean myself for reimbursement and the thing is their Member Service is the one to get me started on this quest and now I have the Okay to get the coupon they tell me this. What rights do I have? Does anybody know.

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The situation seems to be getting even worse than I thought. Today I received a letter from Anthem, who is covering my treatment with Harvoni, literally threatening me with discontinuing my coverage unless I switch my pharmacy to a company-controlled pharmacy (through Express Scripts, who handles Anthem's dispensing). This is in spite of the fact that I have already started treatment through another specialty pharmacy, and they paid for the first month of medication. If I do not switch I may be cut off in mid stream, and that would guarantee treatment failure, and possibly also viral resistance for further treatment. This is outrageous to me. They are saying, in effect, use our house-controlled pharmacy or risk death. I cannot believe this kind of blackmail is legal, and it is certainly not ethical. Another example of what greed does to the ethics of Big Insurance and Big Pharma.

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It is horrific that people who have hep-C have to wait until their liver is in jeopardy before qualifying for a drug (Harvoni) that has reported a high success rate. The hoops a person must jump through just to get the insurance companies to review their claim is costly and unnecessary. I would like to know what happened to preventative medicine. As hep-C takes more and more lives, it is sad to report that what could have been prevented has been replaced with dollar signs and ignorance. I am currently waiting to see if my insurance company will pay for a 24-week treatment of Harvoni. I was a non-responder with the 48-week Interferon/Ribaviron treatment in 2006-07. At that time my liver was in fibrosis. I now have advanced fibrosis/cirrhosis. I find this game between the drug companies and insurance providers inhuman and terribly unfair to innocent victims of a disease that has already begun its damage by the time of diagnosis.

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The Harvoni tradegy is a poster candidate for why national health care is so woefully needed in this country

Think about it--millions go untreated for a prover cure sitting on the drug store shelves because nobody can afford it--very damn sad--and a hell of a way to run a railroad

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