"I was first given another pain-killer called oxycontin when I was diagnosed with fibromyalgia due to viral hepatitis C," explains Marlene (not her real name). Then I got tests back that I had carcinogenic cells in my blood. When I was given Fentora, they knew I had all kinds of serious problems.
This drug made my heart beat incredibly erratically but I couldn't stop taking it. The doctor wrote on my prescription not to substitute Fentora with something else.
As if I didn't have enough on my plate, I broke both my feet—my bone density from the chemotherapy was shot. I got a stress fracture just from walking—a little tiny bone broke. I had a cast on that foot. Then a dog (who was happy to see me) jumped up on me and I fell over, breaking the other foot.
Then I was given the sucker form of Fentora. At first I got 800 mgs and they upped the dosage to 1600 mgs. I was supposed to feel some great, immediate relief of pain using these suckers. But the Fentora wasn't working: my doctor explained that I needed more because my body was used to it. And I was an opioid-tolerant person due to taking a lot of painkillers because of so many illnesses throughout my life.
Then she told me I was getting transferred to another doctor because she was moving to another city. I showed this doctor all the meds I was on and he flipped out: he said he wouldn't give me a prescription for Fentora because it was so addictive. And it would destroy my teeth.
I panicked, big time. 'No, you don't understand,' I said. 'I need these meds, I have a specific dosage and it reduces the pain just enough for me to get by.' He wrote me another prescription and changed the strength for one I already took. He also suggested methadone in place of Fentora but I refused. He told me that getting off Fentora is as hard as getting off methadone, but there weren't too many options.
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I will never take this stuff again. I think Fentora should be used only on an inpatient level and only on stage 4 cancer patients.
I know some people will pay anything for Fentora. My prescription was $1,400 per month and I had to co-pay (I am permanently disabled). The doctor who prescribed Fentora said she won't write prescriptions for oxycontin or my break-through meds because they are 'too addicting' but she wrote one for Fentora—this was the most addicting drug I have ever taken!"