Helena, MTA lawsuit has been filed alleging Humira side effects caused permanent damage to a patient who took Humira medication for Crohn's disease. The Humira lawsuit claims Abbott Laboratories knew about the risks associated with its medication, but did not adequately warn patients about that risk. This lawsuit is separate from another lawsuit alleging patients faced Humira cancer risk from using the medication.
This most recent lawsuit was filed by a woman who took Humira to treat Crohn's disease, according to Bloomberg Businessweek (04/26/11). The lawsuit alleges that the patient was treated at the Mayo Clinic for nerve damage in her feet; the doctors who treated the patient said the nerve damage was most likely caused by the use of Humira. The plaintiff alleges that Abbott knew Humira had a risk of peripheral neuropathy but still marketed the mediation to patients with Crohn's disease.
Kara Mae Pletan, plaintiff in the lawsuit, alleges that doctors reported in 2006 that Humira was linked to peripheral neuropathy. She claims that after receiving Humira injections for three months in 2008, she developed permanent peripheral neuropathy, which forced her to alter her daily activities and sell her store.
This is not the first lawsuit filed against Abbott Laboratories concerning Humira. Early in 2011, a lawsuit was filed by a patient with rheumatoid arthritis, who claimed she developed lymphoma after taking Humira. The patient reportedly took Humira as part of a clinical trial in 2005. The plaintiff alleges that Abbott knew there was a three- to fivefold increased risk of cancer in patients taking Humira but did not warn participants in the trial about that risk.
A spokesperson for Abbott Laboratories told Bloomberg Businessweek (01/12/11) that Humira has more than a decade of safety data and that the risks of Humira are documented in the label. The plaintiff, however, says she was not informed about the warning or about her doctor being paid as a clinical investigator for the drug company.
Humira is in a class of drugs known as tumor necrosis factor-blockers. Drugs in the class reportedly stop cancer-killing cells in the body from working. Humira, known generically as adalimumab, was initially approved to treat rheumatoid arthritis.
Meanwhile, in 2011, the US Food and Drug Administration (FDA) released a warning that young patients treated for Crohn's and ulcerative colitis with tumor necrosis factor blockers, azathioprine and/or mercaptopurine were at an increased risk of Hepatosplenic T-Cell Lymphoma (HSTCL). Hepatosplenic T-Cell Lymphoma is an aggressive cancer that is often fatal.
If you or a loved one have suffered losses in this case, please click the link below and your complaint will be sent to a drugs & medical lawyer who may evaluate your Humira claim at no cost or obligation.
Posted by Gary Bigley
I to WAS on Humira for a year, my eyesight got two times worse than what it was at my last eye exam, I got a lower intestine infection from Humira also along with numerous upper respatory infections. My doctor prescribed Humira for the ulcerative colitis I have had now for 25 years. I would not recommend taking Humira to my worst enemy.
Posted by Ann
Oh my goodness. I was just prescribe humira 3 months ago for RA.I'm injecting by weekly. I just did my last one on Thursday. I'm also on 4 2.5 tablets a week of Metho. Which I just started back I was on to high of a dose
It was causing elevated liver enzymes. I love my Rheumy but, he never said any of these things could happen from this drug. My Rheumy watches my labs like a hawk. I go every 2 weeks for labs for the meth. I was just looking to see if this constant leg numbness/tingling might be a side affect but, never imagined I'd be reading these commemts. I did notice after my last injection I had a couple of heart palpations but, iv had them off and on for over 16 years. Man I haven't had a quality of life for over a year. The humira is starting to help me but, after seeing this I don't know if I want anymore of this crap in my body. I will just pray about it. I'm so sorry to all of you that have had these issues and, the deaths. God Bless.
Posted by Tony Ibarra
My took humira from 2012 to 2014 when she was she to for tests and found breast cancer. She was 42 and we just had a baby and breast feeding. Which the doctors stated this is very rare. For someone so young and breast feeding. Plus the cancer she has is her2 positive. Now after 2 years of fighting the cancer we are told it is terminal. We where never told of the side effects because having a young one we would never risk it. She took humira for arthritis. I would rather my wife be around with pain than what is going on now. It's not worth what can happen.
Posted by Jeanne
I took Humira for about 5 years. Two years ago I started falling. After 4 episodes I saw a neurologist. He said he didn't find anything unusual. He told me to walk more each day.I continues with the Humira and about a year ago I was unable to climb any kind of steps.Anytime I tried my legs would collapse they were not able to hold me up. Soon after I told my gastroenterlogist he told me to stop the Humira and see an neurologist. The neurologist after doing an E.M.G. he concluded that I had bilateral neuropathy. I went to physical therapy which helped and I also went back to tap dancing which seemed to help with my balance. A few years ago I developed Afib which stopped after Humira was disc.
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l fibrilation which I believe was caused by the Humira. Since stopping the Humira I have not felt any A fib. I am not a defendant but would like to be.
Posted by Frank
Took Humira for 5 years for RA and developed a rash on sole my foot and the palm of my hand. It got so bad that I could barely walk. It was miserable, skin peeling and raw, tender to the touch. Doctors ruled out athletes foot and several other conditions and finally just called it "dermatitis". I went to doctor after doctor, went through all sorts of pills, creams, "cures" and remedy's, nothing helped. I moved to another state and found a rheumatologist for my RA, she said right away that I needed to come off the Humira. I did and guess what, the rash began to clear up. Within a month it was completely healed and has NEVER returned.
Posted by Ashleigh
First of all...my heart and thoughts go out to everyone who has suffered from this awful drug. Until I found this site I felt like we were the only ones....
My partner is a 36 year old guy with an auto immune disease called Ankylosing Spondilitis. In January 2012 he was put on Humira. In February 2012 he developed a fungal infection in his mouth and was told to come off Humira for one month. In March 2012 he was advised to start using Humira again because of the pain he was suffering with due to his A.S and on 8th May he had what I can only describe as a severe Panic attack. His vision went, his heart was racing he was sweating, dizzy, tingles in his head and highly anxious. We took him to the hospital and from that day onwards his life has been taken away from him. The hospitals and doctor’s visits became a daily occurrence. He saw copious amounts of doctors who did every test under the sun to find out what was happening to him and each and every one came to the conclusion that Humira had taken over his central nervous system. His vision was blurry every single day and he now has to wear glasses. He was having at least 4 panic attacks every week. He went from having 20/20 vision to needing glasses overnight. He suffers with Pins and needles in the left side of his head and he now suffers from severe anxiety and all his Rheumatologist could recommend was to wait for the drug to fade which could take years. He now has CBT, hypnotherapy and counselling on a weekly basis and our days now depend on how he is feeling which depends on whether we can even make it to work or not. He has gone from being the happiest, laid back, chilled out person to the most Anxious person Ive ever known. His life has been ruined, some days I dont know how he does it. This has a knock on effect on everything including myself. We understand that there may be 'cautions' on some prescribed medicines and these prescribed medicines are designed to make us better but this one in particular has ruined our lives. He has not been able to work properly since this has happened, luckily I have been able to support him but it has been the hardest 4 years of my life. There is no doubt in my mind that Humira was the cause of this and in some way I just want some justice for Joe and what he has and still is going through because of this nasty drug. He has been back on Enbrel now for over 2 years and it works wonders for his pain from his condition. His A.S is under control but his Nervous System is not. He is missing a part of himself. If anyone out there can help at all and get back to me with any advise as to whether there is anything we can do I would be forever grateful. This awful drug may well be effective for some but for those who are unfortunate enough to suffer the way Joe has from it makes me truly believe it should not be prescribed to anyone as the side effects can literally ruin lives as it has ours and clearly many others.
We live in the UK. I guess most people on here are in the USA.
Posted by April F Chaney
I was humira for 2 years and in November of last year suddenly developed cellulitis in my right leg, cost me 18 days in the hospital, 2 surgeries , close to 2 hundred thousand dollars in medical bills, and i still may lose my leg. My oldest son takes this drug also, both of us for psoriasis, it didn't work for me but does seem to help him . He was unable to get humira for several months last year, and with him having RA as well, without humira he couldn't hardly even get oout of bed. Hrs only 30 years old and should not be in the pain he's in IF he's taking a drug designed to help. Since I am no longer taking humira, and when he ran out, I became aware of how BAD things get when you stop using it, ever thing it's supposed to be treating comes back 100x worse, wish someone had told me before I started taking this damn poison
Posted by melissa lovett
My best friend had psoriasis so she went to the doctor and they prescribed her Humira she took it for a few years and then one day she woke up she was paralyzed today is reviewing tomorrow she'll be buried they are having problems paying for the bills and the funeral and I wonder why Humira is not paying for this
Posted by Charles
66 yo male, started on Humira for AS July 2015. A few days after shot had intensive sacral pain, tried everything no relief lasted 1 1/2 days. Same thing after next shots. End of Oct last shot, worst pain lasted for days. Result no bladder function or bowel function. Went to Urologist, told it was prostrate. NOT. Stopped Humira. Had to use catheters for 3 months while Humira worked out of my system. 55-120 days to get clear. Now have normal bladder function again. Still issues with bowel and erectile functions. I will bear the pain from AS, no Humira.
Posted by Gary Chapman
This stuff is bad bad bad, On August 30th 2015 My wife took her first dose of Humira at about 9:00 PM that night. She went to bed, played around on her Ipad as she always did to unwind, I went to bed, I woke up at 5:00 AM to go to work, I got ready, bent down to give her a kiss and found her dead. they say the time of her death was around Midnight. what I do know is she had a weak immune system and had trouble fighting infections. This medication should have never been given to her with a weak immune system. I know in my heart this medication caused the death of my wife. PLEASE anyone who takes this have blood test done before you take this medicine. what once was a loving family is now a family divided and it just breaks my heart. God bless all of you who take this. for the record she was diagnosed with Rheumatoid arthritis.
Posted by Gina stocker
My mother was taking humira for 5 years for RA..she started to get a rash on her legs..and feet that was red and blotchy..then it went to back and hands. .I started drying up and peeling. It was on her scalp..peeling.in Feb 2016 she had got septic bacteria in her blood and was in the hospital a couple weeks. The Dr told her it the rash was a reaction to the humira.. she stopped taking it.. came home but peeling rash came back and my mom is back in the hospital with another infection but it's in her foot this time. They did a CT scan today. Waiting for results. My mom is suffering because of the humira... she needs answers!
Posted by Joshua perry
I took humira in 2010 .skin cleared from my psoriasis. But could catch a cold flu with ease.i lived by the river in missouri on the gasconade river. Got sick from the water and algea and slime from river. Was in hospital with bacterial fungus in my lungs.have not felt good since i stoped taking the injections.recently. diagnosis. Of fibromyalgia and psoriatic arthritis.can't work. Daily fuctions hard. Cold sore's.sick all the time. Verry worried about my well being...
Posted by Dawn
I need to comment! Is there a support group? I was on Humira for two years, for pretty severe RA. (Please excuse any typos. I have floppy RA hands). At first it worked pretty good. All of a sudden I developed all these other autoimmune disease... Raynaud's,Sjogren's disease (which also increases lymphoma), lupus, an esophageal one... And it gets worse. In October 2015, I started getting really sick, ambulance rides and hospital stays... My brain started doing weird things. I got autoimmune syndrome... started having mini strokes and/or seizures. My right side was impacted most, but my left side too. My face would freeze, my eyes would shift quickly. My tremors were terrible throughout my whole body... Including my legs, they were bouncing type tremors. My head moved at times like I had Parkinson's. I'd have confused, bizarre behavior at times. I'd say things completely out of character. Then have a mini stroke or a seizure. My pulse would be at 140-160bpm, while shaking. My penmanship changed because I could barely hold a pen. In October my endometriosis flared hard. I'm not supposed to bleed but I was hemorrhaging and all my immune system was going crazy. On 2/2 they found a malignancy. On 2/3 my head felt like it was going to explode and moved to my entire spine. I have a high pain tolerance. When the pain shot through my arms out though my palms, and through my legs though my heels... Along my legs, the sides of my feet, each toe..my neck,my hips. I cried. My lymph nodes so swollen again I can't swállow...or eat. I slept 45 minutes. Woke up on fire.... There's no pain like this...
MY RIGHT FOOT WAS PARALYZED & I HAD NO FEELING IN MY ANKLE... EXCEPT THAT SHOOTING PAIN. Oh,... then they took me off frickin' Humira. Noticing my crazy Flippy foot limp, I was found unfit for duty at work. I've been off work a month. The tremors are gone. No more strokes or seizures. I still have trouble remembering some words at times. I'm still in incredible pain. I'm still disabled. In fact, I fell this week, due to my Flippy foot (parlaysis) and likely tore my MCL.I still need surgery on my cancer, once they determine my brain is OK... And likely on my back. Hopefully not my head and knee. I'm frickin' broke from copayments and deductibles and meds.
If I don't reverse this paralysis and get rid of this pain, I'll be fired,... I'll lose my job. I'm a single mom who can barely care for herself, let alone her child. I have move to get help from a friend.
Humira has destroyed my life. I am stunned reading these accounts! I had no clue I wasn't the only one! Seriously, support group????
Posted by Scotty B.
To Danny C. My father took humira a few years ago and it caused nerve damage to his legs and feet. Now he can hardly walk and has been told that it looks like he has peripheral neuropathy. The doctors have told him that this is because of the drug humira. He is still going to doctors today and has yet to find any relief. He has spent so much money on doctor bills and drugs. He is so disgusted and he wants to just give up. We are trying to find out if we have a case against the makers of humira. Was your lawyer able to do anything for you?
Posted by reham35
I was on Humira for about five months. A shot every two weeks the amount I don't remember. I had/have psoriasis and my dermatologist suggested I try Humira with singing praises of how well it was working for his patients. Skin cleared up well felt good. The after about four months horrible headaches especially if I laid down or got up from a sitting position such as driving. Long story short I had a subdural hematoma. My brain was being pushed to the left side of my brain cavity. I was is a lot of dull pain and decided to go to the local er. I was rushed via ambulance to a more sophisticated hospital and had to have surgery to contain and drain a subdural hematoma or Brain bleeding. Brain surgery and five days in icu. I questioned the Humira and no doctor seemed concerned that Humira would or could cause this? Docs were convinced I must have hit my head? I think I would have known if I had hit my head to cause this damage. My liver enzymes and cholesterol are very high now too and I eat a normal diet with not much if any fast food items. Missed three weeks of work due to this. I stopped the Humira. Heck my nurse embassador even called me while I was laying in bed post op t check on my status ha. She seemed shocked. Yes yes subdural hematoma is a side effect of Humira use!! Read the data. The awful effects are listed but you think that will happen to someone else certainly not me.
Anyone out there have a brain bleed due potentially from using Humira? I am curious to know and share information
Posted by Karen
I looked up class action law suits against Humira and found this page, I had been on Humira since roughly late 2013 - Dec 2015 when I stopped taking it due to psoriasis on my hands and feet..... a rash, not really - peeling of my skin, unable to do dishes or cook, peel potatoes.... really can't do much as they are still really bad and we are looking at other meds to go on, to control not the crohn's, but the psoriasis caused by the med (Humira) that I was on for the crohn's..... nice one med caused a whole other problem. I am so upset with them and would like to join a class action law suit. They should pay for all the medications I have tried to alleviate the psoriasis on my hands and feet
Posted by Paul ohanlon
I'm currently on humeria for rheumatoid since around June 2014 I was im in bed first few injection s with flu symptoms and joint pain after kicked in it was a life saver at the time previous I was bed ridden or poor mobility at young age of 21 till 26 I could walk again and live normally to the best of my ability it was brilliant for a year I couldn't praise it anuff until 8 months ago I started getting bloated been sick joint pain food allergies every day causing serious gastro problem s like you wouldn't believe . Alergies to tap water and normal day to day products basically most things I would touch even water was so sensitive and medications and is still on goin to this day I believe this humeria as destroyed my immune system making me sensitive and causing reactions and serous gastro and digestive problems I'm stuck because I am reacting to most medication I've tried when of humeria I've had to go back on it so if I come of it I'll be left in joint pain and back to bed ridden I've already came of for 2 mounts and my immune system stayed the same I no my own body and there test on going but I believe humeria has caused this as I was fine before and I believe something serious is goin on inside me life thenting like cancer tumour or tb I'm getting worse and doctors are not lisoning they are just labelling me saying its my anxiety I wish someone would just Lison but I'm gonna try get if this soon please help x
Posted by richard
took Humira for 10 years for Psoriasis... just got diagnosed with CLL Chronic Lymphocytic Leukemia Dot take it, its bad stuff! Psoriasis can be curred with lifestyle and diet changes, I wish I would have know more about the risks 10 years ago. I'm only 40, no history of leukemia in family, I'm 100% sure its from the Humira.
Posted by Danny C.
Is anyone out there actively trying to sue humira for nerve damage?
I have signs that are very similar of that of a patient diagnosed with MS.
I took humira from 2002-2012 to treat rheumatoid arthritis.
After complaining to RA doc of leg shaking he sent me for MRI of brain and spine where the neurologist looked them over and said that I had plaques on brain and spine. Now plaques are dead lesions, non active, butt where indeed active before dying off.
Then immediately I was taken off of the humira injections and was prescribed Rebif, a different drug to treat MS.
After been off Humira, no new lesions or plaques has showed up on any of 6 MRIs that I have taken subsequently after being diagnosed with MS, however my symptoms are differently has gotten worst.
Now here's my question, is anyone out there that has a similar
Retained an attorney, however he's looking for a doctor to collaborate with the theory that MS/nerve damage is indeed the main cause of damage.
Thank you ahead for your response, Danny
Posted by Cathy
I was prescribed Humira for my RA several years ago. I now have lupus, an enlarged heart and Kidney disease. No one ever told me about the possibility of Lupus. I am so mad. My life has been forever changed because of this. The last 4 years have been awful for me and if someone had just put 2 and 2 together this all could have been avoided
Posted by matthew
humira did to me side effects, youtube, you gotta see this. I need help now !!!!!
Posted by Kiza
So strange. I was on Humira for just over a year when my entire left side when numb from big toe to earlobe. I have been off for two years and I still have tingling and I wake up because my left side is 'asleep'.
Everybody who wrote about tingling/numbness over the past 4 years talks about it being left-sided.... how odd. I wonder what the correlation is (I get it, Humira...but how?).
Would love some insight.
Posted by Francesca
My husband today just had his appendix removed he's been on Humira over a year. I hope he stops taking it - seems like bad medicine.
Posted by Sara
My moms m is now in the hospital with liver failure because of Humira. I am so upset right now. Humira is truly evil. It costs a fortune and it kills you....
Posted by Susan Lake
I was diagnosed with RA in October, 2013 and prescribed Humira shortly after. In September, 2014 a rash appeared on my palms and soles of my feet. It gradually worsened until I could no longer walk or use my hands because the pain was unbearable. My feet, especially, looked as if I had been severly burned, and I had deep fissures that would constantly split open and bleed. My Dermatologist did a biopsy and diagnosed Palmar-Plantar Pustular Psoriasis - another autoimmune disease that I will deal with for the rest of my life. She said, and my Rheumatologist confirmed, that Humira caused this. The warning on the label about a "rash" is a joke, this is so much more than just a rash. I have not been able to work since, I have flares and remissions just like with RA, and I still have days in which I cannot walk due to the pain. I will NEVER take another biologic!!
Posted by Michelle
My husband has been on humira for 4 years, now has leukemia. I am so angry.
Posted by Matthew Adair
Watch my YouTube video. Humira did to me side effects.
Posted by Nads
I had two PET scans April 2013 and Nov 2013 to check that I did not have lymphoma prior to commencing Humira for RA. Both of those scans were clear, nothing was noted and I commenced Humira in Jan 2014. I was diagnosed a year later with Grade III triple negative metaplastic breast cancer, tumour was 5cm x 7cm and aggressive in nature in January 2015. What alerted me to the cancer was that my left breast was tingling but I ignored it for months until my partner forced me to get it check out...lucky I did. I had 8 rounds of BRUTAL chemotherapy and left breast mastectomy. HUMIRA definately caused my breast cancer and my PET scans can prove it. Do not take this drug. While I was having chemo I had no RA pain but now that I have finished the pain is returning very severely but I WILL NEVER TAKE HUMIRA AGAIN...PLEASE DONT TAKE IT WHAT EVER YOU DO.
Posted by heather mignone-penton
My husband was prescribed Humera for his RA...his very sudden onset of RA...After a few months of injecting Humera once a week, he came home, sat in his chair, and within 30 minutes was completely paralyzed. He could talk and move his head but that was about it. This episode lasted for about 4 hours. He stopped the Humera and has not had this happen again.
Posted by Heath
All of these posts remind me of a horrible incident that has ben linked to this drug. ON February 10, 2015, I had a STROKE that has since been linked to Humira. I was being treated for RA and Ankylosing Spondalitis, which has now been proven I never had! Despite that, there were no warnings or subsequent blood work completed before the prescription, and I was on the drug less than 3 months when the stroke occurred. At 40, in excellent condition, the term stroke was never thought of, but after researching on my own there had been 109 cases of stroke since 1/1/15 alone!! Obviously I ceased taking the drug immediately per the direction of the ICU doctor and Neurologist while at the Hospital.
Posted by Joanne Gores
My husband was on it for ten months for psoriatic arthritis. It quit working so he switched to Enbrel. Perhaps the expense of the drug has saved him from some of the damages listed here.
There was a time when he were uninsured and so exhausted $10,000 in savings in a matter of one month. Enbrel has a foundation that helps with low-middle income patients--if you have insurance. But now it is losing its effectiveness as well.
The pharmaceutical industry runs unchecked and this prescription habit of one size fits all--sometimes because the doctor is more worried about stock options-- is heinous and criminal. I wonder why the insurance companies don't go after these guys--the drugs are not cheap!
Wall street dictates our mortgages, our health and our safety. How do we begin to dismantel this monster?
Posted by ConnieMaks
After I started Humira I was sick all the time with strep, sinus infections, bursitis, bronchitus and more. One illness after another. I kept getting confused and tired. I would forget things. I was a mess! I stopped taking it 2 months ago but was just seen by a neuromuscular specialist who is worried I have early onset Alzheimers and put me off work!!
After reading all day and reading comments on this site, I now feel my fuzzy focus and forgetfulness is from the Humira. I have read it can take up to 5 months for side effects to stop.
I am so glad I quit taking it because my rheumatologist kept saying that he didn't think my symptoms was caused by Humira. I also gained 30 lbs in 4 months and he said that was not a side effect of humira, however that was the only thing that had changed in my life.
Posted by Stacie
To keep it short I had a MS episode from Humira injections. My dose had recently been increased to 1 injection weekly. Basically I cannot account for a huge amount of time and my entire left side was numb. My boyfriend and parents witnessed this horrific episode that I have no memory of that lasted for a scary amount of time. Another scary thing that happened is that I didn't even realize how bad off and sick I was and I went to work and ended up losing my job when I really needed medical attention! This wasn't the first reaction I had either! I had Humira induced SEROTONIN SYNDROME! Abbvie has reports from both of these incidents!
Posted by Nicki
Worst thing I have done was to take humira. it's been 5 months since last shot.. Lupus, fungal pneumonia, rash all over face, pins and needles sensation all over body, breathing difficulties and systemic candida. So sick I can't function..Looks like dollars come before peoples health. Love a class action lawsuit ..
Posted by Kathleen
I took Humira for Crohns Disease for about 6months 2a week but started developing antibodies to it so My GI sent me to another GI specialist. This GI Soecialist decided the best course of action was to "Flood my body with Humia" so I started taking injections weekly. After the 2 weekly Humira injection I developed numbness and tingling in my left arm, it then spread to my left side of my face. I'm now dealing with left arm neuropathy that has destroyed my life. I've seen a neurologist who put me on neurontin but the pins and needles feeling won't go away. The pain is horrible and I'm starting to think it's permanent. Now off Humira I'm afraid to take any medication. I never knew Humira could cause permanent nerve damage - my life is ruined.
Posted by Carley James-Heinisch
I have been taking humira for 4 years and was diagnoised with stage 2 breast cancer last August. I ended up havinga bilateral mastectomy and 8 rounds of chemo. I had had a mammogram december 2011 where 1 set of calcifications was found. When I had my mammogram July 2014 3 sets of calcifications were noted and after a biopsy I was told were cancerous. I believe that the Humira caused the breast cancer!!!
Posted by Debbie
Humira as Crohn’s Disease Treatment Came @ a Deadly Price
A couple of weeks before our sons 16th birthday, our son complained about a pain in his stomach. It turned out to be appendicitis which required hospitalization for about a week, because his appendix actually had burst and needed to be removed. For a couple of weeks afterwards he had a drain bag attached to his side that needed collected excess fluids from the surgical area before finally being removed. A short time later (right after his 16th birthday), he developed a lump in the surgical area which led to another hospital stay both in home town and eventually to a major city Children’s Hospital. It was then that he was first diagnosed with Crohn’s. Medication got it under control when only a couple months later another lump was discovered and he was once again admitted to a Children’s Hospital and a more aggressive medication regiment along with the right combination of routine drugs was found. (6-mercaptopurine (6-MP), Lialda) The doctors told him he would have to take these medications every day for the rest of his life. He was in the hospital a total of 42 days in 2006 and now he was faced with a life-long illness that he needed to control.
Not wanting a repeat of those events, we would always quiz him to make sure he was still taking his medications and everything was going OK health wise. After he left for college, he had a couple of episodes or flare-ups because he stopped taking his medications for one reason or another. Nothing Prednisone wouldn’t clear-up. In 2014 he had to get a new GI doctor, because his GI doctor at the Children’s Hospital had retired and he was over the age to see another Children’s Hospital doctor. At this time he saw a TV commercial about the drug Humira and it was for Crohn’s and was administered by a shot every two weeks vs. 6 pills a day. I mean who wouldn’t want to try it! He talked with the new GI doctor and he did not want to change him to Humira. Our son was not satisfied, so he searched for yet again another GI doctor. After a complete medical work up the new GI doctor put him on Humira, this was in October 2014.
The new drug Humira seemed to be working, and he loved the shot every 2 weeks. He felt good and went out with friends on Friday, December 12, 2014, however on Saturday afternoon he felt like he was having just another flare-up. He went to an urgent care clinic to get some medicine which they gave him an antibiotic. By 11:00pm he was in a great deal of pain and went to a hospital where he was admitted. It was at that time the doctors decided to go in for an exploratory look, the worst possible outcome occurred. (He’s GI doctor was not consulted)
Intestinal obstruction and rupture (perforation) of the small intestine with abscesses (collections of pus). They said his body was not strong enough to fight off the infection.
He passed away, Monday December 15, 2014 at noon.
We can only assume the drug “Humira” was not working and destroying his intestines. Or destroying his body auto-immune system to help fight off the infection. As this was not our first rodeo with a “flare-up”.
So much for the TV commercial for Humira, as it easily influenced our son to influence his new GI physician to prescribe Humira.
Posted by Audrey Wright
I went to see a Podiatrist back in 2007/8 because I was having squeezing pain to the top of my feet, right worse than left. She did cortisone injections with no relief. I do believe they took X-rays of me feet as well. She then sent me to a rheumatologist. The Dr I saw took X-rays and bloodwork and told me my RA Factor was borderline and that I have RA. I asked how she could say that when the result was borderline. She said that sometimes people with a normal RA Factor has RA and that it is not based on the blood work alone but clinical evaluation and my description. She said I needed to start on Humira or Metho or I would be crippled. She told me of the risks involved in taking the humira. Poss tb, lymphoma, and fungal infections. I was dazed and confused about the diagnosis but chose Humira. At least you can have an alcoholic beverage while using that drug! She left the practice about 3 years later and I was presented with a new Dr. I asked the new Dr how they could say I had RA with a borderline blood result. She said the same thing as the Dr before her. During this time I developed an imbalance while walking...not all the time though. I took out the insert that comes with the humira and began to read. Yep...it stated everything the first Dr told me about. But I happen to work in the medical profession and decided I would glance around the pharmacology section. Doubt anybody else looks there. Well much to my surprise...I find that there is also a risk of MS!!! I tell the new Dr about this and she tells me that the info is correct! So she sends me to a neurologist to r/o MS. Negative for signs of MS. But I continue to have imbalance issues and nobody seems to care beyond sending me to the neurologist. Now I also have Eustacian tube dysfunction, but I have had that for years...back in my 20's at least. So that is not new. I was also doing for the 5 year allergy shot plan, which has helped the allergies but not the problem I want it to help. So Dr number three leaves after about 2 years. They call my house to tell me that I will be seeing a new Dr. I tell them that I need a new Rx for the Humira. So they get me in to see one of the Dr's at that practice just for the refill. I explain everything to her. She told me they should never have told me I had RA but should have repeated X-rays and blood work. Well they had been doing blood work from time to time. So she had them repeated. This Dr told me I could have Osteoarthritis and not RA. Now my medical field that work in just so happens to be xray. So when I go to work I take X-rays of both my feet on my ipod...not an easy thing to do by yourself. I also look up all my blood work which I had done at the hospital I happen to work at. Some of the labs I had done at the Rheumatologist office so I don't know about those. I checked every lab result that pertained to a diagnosis of RA....and the ONLY lab result that was NOT normal was the first RA Factor that was done and was borderline. So i go to my appoint to the new Dr. I had the blood work and X-rays that the Dr I saw one time completed in November/13. My appoint with the new Dr is Jan/14. I tell her that there should be bloid results and xray results on my chart from Nov. She tells me there is nothing on the chart. I tell her that all the blood results are normal and ask her if she would like to see X-rays of my feet? She asks if I have the report. I tell her no, that I have the X-rays I took myself on my ipod! I tell her that as time has passed since 2007/8 it has become more and more difficult to find shoes I can buy that give me no pain. The first Dr told me I needed to buy a wide toe box, so this whole time I figure it is just because of the RA. Towards the end of the 2 initial Dr's it started to feel like a lump under my forefoot. I start looking "foot problems" up and come to realize I must have Morton's Neuroma. The new Dr looks at the X-rays on my ipod and tells me I have Osteoarthritis. She sends me for an MRI which confirmed the Osteoarthritis, of course not showing the neuroma on the MRI. So I go home and make an appoint with a ortho/podiatrist Dr. He tells me I have Morton's Neuroma, does injections, no help, and tells me to continually wear my orthotics. I also get a "pulling sensation" at my finger tips and toes from time to time. Obviously from the neuropathy that has developed. I call the Rheumatologist office requesting copies of my chart. Took me over a month for them to cough anything up and I still don't think I got everything. In my chart they had stated (spring/summer 2014) that I was recently diagnosed with RA. Recently??? Then they proceed to say I was on the Humira due to ulcerative Colitis induced arthritis!! I was diagnosed with Ulcerative Colitis around 2002/3 and was on Lialda for that....not Humira. My GI Dr kept me on my Lialda and was never prescribed by him, nor have I ever been tested for the 3 types of Ulcerative Colitis induced arthritis. I discontinued the Humira myself. Now since all the RA crap I had a GI specialist do a cololonoscopy. She tells me that they took biopsys from deep within the colon wall...and there is NO EVIDENCE that I EVER had Ulcerative Colitis!! I was just recently back to see the RA Dr and asked once again about the "imbalance" issues I still have and asked if it could be caused from the Humira? She told me that when the Humira was stopped...those issues would have been gone too. Well I just looked it up and it states that no...those issues would be permanent. Did she feel the need to look further into it?? No. So I received an email from their office that I can look up my chart online. I have a feeling the Dr's nurse sent it to me. Because I told the nurse my whole story when I was at the office and when I was leaving the office...she gave me a hug. Almost like she knew something was wrong. I may not be able to sue as I know it is very difficult to do so, but I can be my own healthcare advocate. It does make me wonder though how many people have been put on such dangerous drugs that have been wrongfully diagnosed. I called the Rheumatoligy office a few days ago requesting a password so I can look at my chart on line. They have not gotten back to me. There is something wrong with this whole picture.
Posted by margaret powell
2011 january ggt liver function test at 35 rose to 200 in febuary 2012 stopped for operation on knee ggt fell to 110 restarted humira started a month later then rose back up to 210 .severly ill in hospital nov 2013 march 2014 i have been diagnosed with fribrosis of the liver i have been classed as termanally ill i beleive this is all due to the humira.i have never suffered liver or cirrhosis before have scans and ultrasounds to prove it no one will give me a time but i am now going to spend a while in a hospice which is only for the terminaly ill,1year if im lucky.humira wa used in the whole aspect of treating chrons
Posted by Mrs. EAK
My 30 year old daughter just died on Nov. 21,2014. She had been on Humera for 8 years. She had neuropathy in her feet, blurred vision, very low immunity, stomach pain, , diarrhea,bleed from rectum , weak muscles, and nausea,. Her father and I rushed her to the hospital. She had 104 fever and had massive strokes. Stop taking Humera. I feel that is what killed my daughter.By the way we found out she developed tb menegitis. Hope this poison doesn't kill you.
Posted by tim eddings
my wife took this drug for three weeks and ended up in the hospital with every side effect and some. stayed in hospital for eight days went home for one week and is now back in the hospital. this drug has ruined our lives, is there any help out ther for us?
Posted by rami tawfiq maayah
My brother has a chrons diseases, doctors started with him HUMIRA needels since two month, after one month Palmoplantar pustulosis psoriasis appeared on his body and start spreading inside his ears, all his hands and feet, between legs, his back and head. Now he can't walk because of his feet, he has a strong pain and he is yelling from pain strenght, HUMIRA destroyed his life and our life as a family. HUMIRA destroyed us!! We thought that it will provide him a quality of life but it does not. We had a very bad luck in side effect.
now doctors says that my brother will not be treated!!!
Posted by Kiki
After being on Humira for over a year I took my normal injection on a Monday night and within minutes I had severe abdominal pain. A trip to the ER revealed an intussuception. More common to a 33 day old and not a 33 year old. I had to have a small bowel resection to correction the problem. Nothing will deter me from knowing that this was caused by Humira. The most painful part was after requesting my medical records I found that I did NOT have RA. My doc had used another patients labs which were mistakenly placed in my file. So now I have a huge scar and a shortened bowel. But at least the situation gave me enough insight to know I never have to take Humira again!
Posted by Margaret Merchant
After just 3 injections of Humira, for her Crohn's disease,my daughter, age 35, started having heart palpitations (or pvc's) She is now being treated for heart problems and may need a pacemaker. I am so angry at the doctors that encouraged her to take this medications, saying that "the good out weighed the bad". Obviously not. She has also had some types of hallucinations or "waking dreams"( being awake but dreaming). She is adamant that the Humira has caused this. She never wanted to start it in the first place, but like I said, was urged to do so by her doctors. This is an extremely expensive and dangerous drug that is padding a a lot of people's pockets at the expense of their patients.
Posted by Chris Broschell
My father-in-law took Humira and Remicade for RA for about 3 years and developed an extremely rare form of hemangiosarcoma from a cut on his head when he bumped it on the kitchen cupboard. He died in 2007 from this cancer. This "medication" is right up there with thalidomide.
Posted by Mary
I started taking Humira in 2011 for a year for my psoriasis. Back in the late 90s I noticed a cyst in my right breast which caused no problems nor showed signs of it being cancer. Just before I stopped taking the Humira, I noticed dimpling at the site of the cyst & nipple inversion, a clear sign of cancer. I finally got a biopsy in June of 2013 & was diagnosed with stage 2B breast cancer, had the cancer & nearby tissue removed, 2 lymph nodes removed that were cancerous, plus 30 more lymph nodes removed to be on the safe side on July 11, 2013 & went through 2 chemo treatments (I was supposed to have 6, but it affected me so much I couldn't continue with the other 4) & 33 radiation treatments, which ended January 6, 2014. I truly believe Humira targeted that cyst & turned it into cancer. I really believe people like me who were put in danger taking Humira should be compensated monetarily.
Posted by Joy in Irvine, CA
My sister died in 9-2013 from taking Humira for 3 years for a severe skin lesion problem. Humira damaged her liver and she was only 58 years old. Do not take Humira because it will destroy your liver, and then you will be in extreme pain and die from a stroke; like my sister did 4 months ago. She was a vibrant healthy person prior to taking Humira; and I am spreading the word how dangerous Humira is.
Posted by Val Disarro
Yes my husband started this treatment
Two years ago to control his psoriasis and
Reumatoid arthritis; needless- to-say,
He take the shot gets really tired, the next
Day he is still kind of tired, third day I see
A personality change in him and he gets
Upset for every little thing and yells a lot.
Fourth day he is not too bad but I have
To be carefully on how I approach him
To talk to him, fifth day out and out rude
Goes out in his shed and segregates himself
From everyone. Oh yeah, when I do ask
Him whats wrong " he says he is in pain"
Oh plus he has dystimia, HBP,high cholesterol
Smokes cigarettes . He is miserable.
Posted by Marie Homan
I was diagnosed with RA in 2007 & went on Humira in September of 2007. I am now on nothing & I refuse to take any & all RA meds because of this one. I do take asprin & motrin for pain. I now have sjogrens syndrome, systemic vasculitis, raynaulds syndrome, I had a spot of skin cancer removed from my right calf. I am scared of what will happen next. I only took it for 14/15 months, two times a month. I might be wrong & the dates might be 2009 I took the Humira...I will need to check my records. I hope you all are doing well.
Posted by Jessica Roberts
My father took humira for RA, he died of lymphoma 4/26/08. No one in our family has had a history of Lymphoma. 2 weeks before he died he had a nose bleed that lasted 3 days.
Posted by Claire Miller
I was diagnosed with acute lymphoblastic leukemia after taking two bi-weekly injections of humira last September. (ironically, September is Leukemia awareness month). My rheumatologist believes it was caused by the humira. I am in remission, but still on chemo for another two years. My life is so different now... Why doesn't someone hold Abbott accountable for this?
Posted by Donna Lapka
I have had RA since approximately 1990. I am now almost 55. I was given Humira by my rheumatologist to prevent the progression of my RA. He didn't warn me of any adverse effects. I started Humira right after Thanksgiving 2011, 2 injections per month. I had an episode of terrible night terrors around Christmas, chalked it up to a bad dream. In March I was unable to speak for a few minutes, this passed over. I had MRI and believe something was overlooked. The last week in April, I began talking to my son and my words became all jumbled up. I woke up the morning of Sunday May 5, or 6 2012, it was that Sunday. I have no memory of that morning. I woke my son up and told him things that didn't make any sense, tried to leave the house not properly dressed, began throwing things out my doorwall, my then 19 year old son was terrified. EMS was called, I was taken to Mclaren Hospital, Clinton Township. Apparently I was awake and having hallucinations, I do not recall. Next thing I knew I wake up Wednesday morning, so sick I'm not even wondering why I am in the hospital. I almost died. I had encephalitis secondary to humira. As a result the top of my head is numb, my nose is numb and now I am getting headaches. I was told I had, had a stroke they didn't know when and a possible seizure disorder. The doctor said he did not know if the numbness would go away. I cannot spell as well as I used to, I am a little confused with directions. I have developed headaches, and now a lump on my ankle and neuropathy of my left foot. Went to the neurologist on 6/16/13. She ordered EEG and MRI I had them done on 7/9. I am currently waiting for results. Recently had ultrasound of abdomen and pelvis. Fluid was found in my cervix, I was also found to have a "fatty liver" my ankle has a knot, perhaps I have congestive heart failure. I am scheduled for a biopsy on 7/19/13 I am scared to death of what humira has done to me. I quit taking it after being in the hospital. I had never had a stroke or a possible seizure disorder, numbness in my head and nose since humira. Does this stuff stay in your system forever.
Posted by Todd
I am a 53 year old white male.
I was taking Humira for approximately one-year to treat Crohn's Disease, however I have discontinued its use due to health complications. The damaging conditions and complications I am now suffering are not in my family (they are not genetic), nor have I ever suffered any related symptoms or conditions before taking Humira.
Approximately 3-4 months after beginning Humira, and not knowing that any of these conditions were possibly related or promulgated by Humira, I developed and was treated for several skin/dermatology conditions, such as "inflamed seborrheic Keratosis" and various "basal cell carcinomas." The Dermatopathology Report is quoted as saying, "This is a curious case and there appears to be a disconnect between the clinical and histopathologic impression. Certainly, there is no evidence of any atypical basaloid or atypical invasive squamous process, even despite performance of multiple step levels."
Soon after, I was diagnosed with "Gynecomastia," but in only my right breast. Again, the diagnosis was confusing to the doctors as I had no family history and that it was only in one breast.
Then, I felt a small lump near the heal of my right foot. Again, it was unknown as to what or why I had a suspicious area of inflammation.
In this year alone, I have suffered from nearly a dozen painful, and apparently unrelated and mysterious, inflammations and "lymphedemas." I have had to go to the emergency room 3 times and to many doctors. Multiple painful swellings have occurred in my testicles, penis, under my buttocks, arms, hands, face, lips, throat, and tongue.
I am now under the care of a Oncologist/Hematologist who, and again, is confused as to why this is occurring and believes it is a severe reaction to Humira.
Sadly, and as a side note, I apparently developed Crohn's Disease from taking the medication Accutane around 1993. Again, I stumped doctors when I was finally diagnosed with Crohn's as I was atypical of the general Crohn's patient and it is nowhere in my family.
Posted by AJ
I developed 'Saturday night palsy" in right hand the morning after a shot, after the next dose, the left hand to "went out" 2 nueros never seen anything like it, nothing to do. Lasted 9 months. Very scary to have both hands paralyzed & not have anyone know what to do. 2 years later still have atrophy
Posted by Beth
@ Tina...get a new Neuro, asap, I was on Humira for 2.5 yrs & was diagnosed with Humira Induced Multiple Sclerosis 3 yrs ago...most importantly get OFF the Humira ASAP
Posted by Tina
I've been experiencing the numbness/tingling on the left side of my face, my lips, left arm. Also, joint pain and chills. Sent to a neurologist for various tests, all negative. Neuro says it may be MS, but nothing conclusive. Asked GI doc about the possibility of it being Humira and she said I need to find a new Neurologist. Aside from a multivitamin, Humira is the only med I take.
Posted by Teresa Stephenson
I want to add its not just cancers and peripheral neuopathy. I have been diagnosed with congestive heart failure, stroke symptoms and I now have aplace on my brain that will have to be monitored from time to time that could lead to TIA's that eventually lead to strokes and I didnot have this issue till Humira. I also have visual and speech disturbances still even after being taken off Humira. I have numbness and tingling in my mouth, face and hands, extreme fatigue, worseneing of joint and muscle pain and tremors. Most of these issues will never go away. I urge people to do some research before they take such serious medications. But you can research all you want though and what do you do when important life changing side-effects, some can be fatal, are not mentioned or reported to you.
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