"Betsy used Elidel for well over a year before she got really sick," says Laincz. "About two years ago she had a battery of tests and was diagnosed with liver cancer - she had used Elidel one year prior. Right away this medication seemed very suspect. The cancer doctors were very surprised that she had primary liver cancer; apparently it is highly unusual in Caucasians because liver cancer normally occurs from some other cancer in the body, such as breast cancer or skin cancer.
"We mentioned Elidel to her physician but he was looking for a cure, not a cause. However, there isn't a cure for primary liver cancer except a transplant. That was out of the question: by the time Betsy was diagnosed, the mass of her tumors was over the limit to be eligible for a transplant.
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Betsy and I brainstormed about how, what, why, where. Being a nurse, she read that Elidel was dangerous, and we did some more research about it online. We found out that people who took Protopic and Elidel had other cancers (such as leukemia and Non-Hodgkins lymphoma), not liver cancer.
But we were always so confused about why this happened, especially when the doctors told us that it didn't make sense. Maybe now that I have the opportunity to tell this, people will start paying attention. Maybe there are some people out there with liver cancer who used Protopic or Elidel and haven't yet made the connection."