MRI Health Risks: NSF/NFD Without Kidney Failure?

I've had several MRI some with contrast and some without within the last 5 years, I've suffered a lot of muscle and joint pain and neuropathy and memory loss,, Doctors still don't know what is causing it, although I am taking medication for it ,, "that's just a bandaid "
I tried to submit a claim and was told that there's no proof that the dye that was used several times in my MRI's was the cause, apparently once it leaves the body there shouldn't be any effect,,, I hurt so much with everyday pain, headaches and memory loss smh

How soon after the contrast agent did the signs begin to show?

please be aware that out of the 7 contrast agents in use today, 5 of them will cause NSF/NFD if given while having any kind of renal dysfunction. I received my dose of gadolinium dye on July 17th 2006, while in the middle or a thoracic. aortic aneurysm that dissected. all that means is the aorta's inner liner tore from the top of the arch to the diaphragm just below the lungs, during this surgery to repair the aorta they collapsed both my renal arteries with the gore tag they put in my aorta to fix the tear. i have spent the last 8 years trying to get a diagnosis for this disease from my doctors at the VA and after 8 years me and one of my doctors went around and around, because he refused to get me tested and then he told me why. he said he didn't get me tested
because all i wanted to do was sue someone for malpractice,
i then asked him if he had any ideal how long the statute of limitations was and when he said no i told him it was 2 years and that he has been letting me die of this disease without any kind of treatment. now 2.5 years ago i was diagnosed with Multiple Myeloma, which i believe is related to the NSF/NFD being that slightly over 30% of Multiple Myeloma patients have kidney problems. and of course since i have been diagnosed with Multiple Myeloma 2.5 years ago i am still waiting to receive treatment for it, personally i think my doctor is doing everything in his power to let me die to cover up what they have been doing at the clinic. i am currently trying to move to Portland, OR. where i might be able to get into a clinical trial, its the only chance i have to live more than another year or two. this disease NSF/NFD is a very nasty disease besides turning your skin to look [at least in my case] like orange peel or old shoe leather and the skin turns shades of gray and brown, but thats not the worst of it the worst part is the ligature contraction which causes severe muscle spasms from my stomach down through my legs and feet. every morning my calves and feet and toes get muscle spasms, the toes turn down and the foot points straight down and at the same time the foot tries to turn sideways like your trying to walk on the outer edge then the calve starts and it works its way up into the groin muscle and stomach and they are so strong that it tears the muscles. 2 months ago i had a episode where a muscle tore away from the side of my 3rd lumbar vertebrae leaving a 1/2 inch wide gap next to the spine thats about 2.5 inches long, where you can sink your fingers into the hole and feel the side of the vertebrae. so far i have had about 6 muscles to tear from muscle spasms in my back, but the worst is the severe muscle weakness and lack of stamina. i used to be a black smith and made truck trailer leaf springs by hand using an anvil and 16 pound sledge hammer, now i am lucky if i can pick up the sledge hammer thats how weak i am. sometimes i get out of bed to go to the bathroom i am so weak i cant walk the 15 steps to the bathroom and make there in time to keep from peeing on myself. the ligature contraction has the toes on my feet acting like there are springs in them that keep my toes pointed straight out, and when i walk and the toes bend it feels like they are being broken off with each step. and it makes the skin hyper sensitive to touch and at the same time makes it itch like crazy all the time, so that when you try to scratch the itchy spot it feels like you are ripping the skin right off of the foot and also watch out for the hard skin nodules that start out on the arms and back and in the hair line they kind of feel like a callus but itch real bad. all in all this is one very nasty disease that punishes you every minute of the day and i wouldn't wish this on my worst enemy not for all the money in the world!. if you need to have a MRI with a contrast agent please make sure they give you dialysis immediately after the they get their pictures with the MRI, this will insure you wont come down with this disease. please don't end up like me because i pray to God every night to let me die and i cuss him every morning that i wake up alive. and now they tell me that my kidneys are about to fail and that i need to find a civilian doctor to take care of this for me, but the reason i still go to them is because i cant afford to pay the 20% copay so here i was worried that i was going to die from the Multiple Myeloma which eats holes in the bones to the point where your body can't support its own weight but it looks like death will be coming sooner than i thought thank God. but for those of you who are still healthy please heed this warning and stay away from gadolinium dye especially the one made by General Electric, its the worst one and the one thats caused the most cases of NSF/NFD. sorry almost forgot, it also makes your body feel like you have had someone beating you all over with a ball bat all of the time to where you go through the day in severe pain. i hope i can get to Portland,OR so that i might have a chance because i love living even in this bad of condition, and i really don't want to die at 59. if you do get this disease you need to contact Dr. Shawn Cowper he is the foremost expert in this disease. i will tell you a way to help control the muscle spasms but you will probably wont like it, but it works so much better than any of the pain pills and muscle relaxers. marijuana/ cannabis will help to control the muscle spasms so well that most days, if i have any of it i don't have to take the muscle relaxers!. and that is a big thing to me because i have seen 2 friends die from muscle relaxers in the last 5 years, and most people forget that their heart is a muscle and that if you take to much it stops your heart!. at least you don't have to worry about cannabis killing you, because it would take you smoking several hundred pounds in 15 minutes to give you enough to kill you. also for those of you who worry about getting high, don't because if you do get high it only last for about 2 hours and if you are in severe pain it don't do anything to you but take care of the pain and muscles spasms. i quit smoking this stuff back in the late 70's and only took it back up about 4 years ago and i wish i had taken it up sooner. for those of you with these diseases my prayers go out to you, just remember what the Bible said in Genesis about how god gave us all the plants of seed and bud for our use, its just a shame the government don't believe in God, otherwise why make such a harmless plant a schedule one drug that is worse than speed and heroin.

My son had a BMP put in to correct some vertibraes in his neck, it collapsed and never healed they found out in his last surgery on his neck. After he had the BMP he still had problems so he would go see a surgeon and they would send him for an MRI with that dye..he had 7 of these after he had the BMP implant and he should have never have had this dye at all. After the surgeon seen the MRI they said they could not do surgery ion him because they didn't know about the BMP. That happened with every surgeon till he found one in Pittsburgh that would do surgery. That is when they found the BMP had never healed and the surgeon had to replace screws to straighten it up. Every time he would go to a doctor something else would be wrong, like one time, his liver or his blood pressure or his heart that was bothering him. Well I sent an email to Lawyers and Settlements snd they posted about him but used the name Roger instead od Rex Rodgers. He eventually got sick and both his kidneys had failed, he went to the hospital and they got them started again, then he had blood drawn to see if his gall bladder was causing him pain [which the doctor told him it wasn't until the blood test showed it was his gall bladder] and so he went for gall bladder surgery within a month after the failed kidneys...he thought he would only be there for a couple hours for the surgery but when they went in they found gangreen gallbladder and even in the tube going to his liver. and every since then when he had to urinate he had to set down because his bowels would move, he tried to find out about what was causing it but the doctor told him that happens sometinmes after gall bladder surgery. His legs and feet bothered him, he could not walk very far as it hurt him, the nurses could not fine a place to give him a shot his skin on his arms and legs were getting so tough and they could not find a blood vessel. In August he told me his toes was turning black and he might have to have a foot taken off and that his kidneys were bothering him again. Then in September he was helping to load a freezer on a pick up and he lost his balance and fell hitting his head on the tail gate of the pickup and as I understand he was stuck between the tail gate and the freezer but finally got out. This was about 5 or 6PM on Friday the 9th of September. He died at around 1AM Saturday morning the 10th . All going back to the MRI's and the dye that weakened his legs. Also the BMP that was incerted was meant for the lower back only not the neck area. I had colon cancer surgery on Wednesday before he died on the 10th and was in there 13 days. I got E Coli while I was in there. They had to cremate him because of me being in the hospital. He was planning on taking me home with him when I left the hospital. But he died before that happened. They did an autopay and all they had on it was an overdose of Tramadol. His wife didn't think he had any but that is what they put on his death certificate. They said they had a hard time trying to find out what he died from. They didn't know he had slipped and bumped his head and neither did his wife till a couple days later. I believe he was assigned an attorney in Florida for his case but I have no idea who it is. He did not have bad kidneys before he had the MRI's with the dye. I would like to have an attorney on this case This illness of his goes back to 2005 when he turned in for disability. I am so sad and hurt that I lost my 47 year old son to this MRI dye, I shoukld say I am fighting mad. I grieve several times a day because there was no excuse for his death, MRI dye killed him! He had high blood pressure also and could not control it as far as I remember.

Just to report on my husband who is the one above. This was 3 years ago this month. Well, he is totally disabled, has been in the hospitals over 45 times, got cancer from one of the kidney medications he had to have to keep him alive. He had to be an inpatient during his 4-1/2 months of chemo, picked up there each day for 6 weeks for radiation by ambulance taken to another hospital for that, then transported back to his room which became home away from home. He had a heart attack this year, had to have his gall bladder removed just because he had gall stones and they couldn't take a chance of him waiting for it to go into an attack in an emergency. He cannot ever have contrast and there has been times it was the only way to go and we have been so fortunate to have this wonderful nephrologist who will not allow anything to be done without him having to go through this very long flushing procedure before, during and afterwards. His muscles are ruined. He lives day to day but only by the GRACE OF GOD. Not one of his many doctors thought he would live but God has other plans for him yet. He has gone through internal bleeding more than once. been transfused twice. blood clots , colon disease and spend much of his time to this day having to rest even after just taking a shower. He has to have weekly renal and blood work for the rest of his life. This could end today, tomorrow or anytime since we just never know. These hospitals still are killing people and could care less since they get funding and kickbacks from this poison being used in humans. One thing I will end with. IT IS A BLATANT LIE WHEN THEY SAY THIS JUST HAPPENS TO PEOPLE WITH KIDNEY PROBLEMS. IT IS A LIE. My husband had not one iota thing wrong with his kidneys. They stoled his life from him and it was out of pure neglecence and stupidity and for money. It is time these doctors and hospitals quit killing the people and learned from the older doctors who we could trust because they cared about human life. I ask everyone to stay in prayer for everyone who has to go into the hospitals today. ASK QUESTIONS. CHECK THE INTERNET ABOUT ANYTHING YOU HAVE TO HAVE DONE. CHECK YOUR MEDICATIONS WITH THE CONTRAST DYE. Not that the medication is bad, but there are some to get off of before getting any dye. Just be your own doctor and don't allow yourself to be discharged without a proven diagnosis. One more thing. GET ALL OF YOUR MEDICAL RECORDS FOR YOUR RECORDS. DON'T ALLOW THEM TO TELL YOU THAT YOU HAVE TO PAY FOR THEM. TELL THEM NOOOO. THEY ARE YOURS.

This is really disconcerning.I was going to have an MRI with constrast dye but now Iam against.What if someone has sensitive kidneys but still has a very serious reaction.I'm for getting a second or third or more opinion.Even someone with somewhat weak kidneys or sensitive could have major complications.Everyone at an individual level is so different.Also it may pose a threat more to heavy patients because of the strain on the kidneys from the weight.
Certainly there must be safer ways to scan.I'm so sorry to hear about what happened to Darlene's husband.This is so sad.Even before I read this article I was thinking I don't want this dye in my system because maybe it would effect other organs or I would be allergic to the dye.