Houston, TX: Lisinopril, used to treat hypertension, congestive heart failure and heart attack, is associated with many side effects including liver damage. Beverly was diagnosed with angioedema (which can be life-threatening) as a direct result of Lisinopril, according to her hospital doctors.
Beverly started taking Lisinopril in 2001 when she was diagnosed with hypertension. "I took it for a few years and felt OK, but a few years later my blood pressure was out of control," says Beverly, "so my physician's assistant prescribed Lisinopril 40mg, up from the 10mg I was taking." At that time Beverly mentioned her swollen gums, thinking it might be a Lisinopril side effect, but the assistant wasn't concerned. "My blood pressure didn't drop, but the doctor dropped the Lisinopril back to 10mg??"I don't know why.
"About a year later I had difficulty breathing but chalked it up to a summer cold," Beverly adds. "One Friday night my blood pressure soared so much that my friend took me to ER. I was released Sunday afternoon??"the doctor didn't notice the swelling of my lips, gums, and tongue; he ordered me to continue the Lisinopril, but all my symptoms were getting progressively worse. The following Friday night I was just getting out of the shower when I called 911??"I could hardly breathe, I was gasping for air. I met the paramedics in the street and just about fell into the ambulance.
"An allergy specialist saw me and took me off the Lisinopril immediately; he told me that this med was causing the swelling and my breathing problems, so thanks to Lisinopril I was hospitalized for a week and racked up about $23,000 in medical bills." (Beverly doesn't have health insurance so this has also caused her severe financial problems.)
Beverly was diagnosed with angioedema, a condition that involves the rapid swelling of the face, lips, tongue, throat, arms or legs. It is an allergic reaction; although mild cases may not require medical treatment, severe cases can lead to life-threatening problems, such as difficulty breathing. According to the Western Journal of Medicine, severe angioedema and respiratory distress can be caused by Lisinopril.
"I was put on a different hypertension med and felt well enough to go home," says Beverly. "I tried talking to the clinic administrator where I was first prescribed Lisinopril but nobody would talk to me. I changed doctors but she advised that I go back on Lisinopril, despite me telling her its side effects. Needless to say, I talked her into prescribing another drug. I still have trouble breathing and often have inflammation in my ankles, feet and legs??"I'm certain all these symptoms are caused by Lisinopril. I don't know whether they are long-term side effects or not, and naturally I wonder if they will get any worse."
Beverly is hopeful that she has a case against the drug manufacturer and that an attorney will review her claim.
If you or a loved one have suffered losses in this case, please click the link below and your complaint will be sent to a drugs & medical lawyer who may evaluate your Lisinopril claim at no cost or obligation.
Posted by Rita Bryant
My husband was in the ER at VA all day on 5-5-15. He too had had numbness in lips. Had been doing this for a couple days. He had been on Lisinopril for many years. The doctor told him that was one of the side effects from this pill. He was very bless to find out this early. Then I found out on 5-6-15 that one of his cousin the same thing happen to her. Really scary. He just happen to be a the ER for something else and they asked if anything else was bothering him. As soon as he told the nurse about the numbness she called the ER Doctor and they sent him straight to have a CT-scan of his head. Which show he had a mini stroke sometime between 2013-and now.
Posted by shawn templeton
Six weeks ago I went to a detox center for alcohol, I was given lysinopril and was released 6 days later. The doctor wanted me to continue taking the high blood pressure med along with multi vitamins and anti anxiety meds. Been on it for six weeks now, stopped three days ago, broke out into a major rash all over my body, the joints in my knees hurt so bad I can barely walk, and my sex drive is non existant, I'm 37 years old. I believe it was the lisinopril because since I quit taking it, the rash is gone, knees still hurt but seem to be getting better.
Posted by kimberley broom
Been on lisinoprial for many years never noticed problems until this years cold and flu season, were I was constantly back and forth to the er. Now today after coming off meds about a month ago im back in the er, only to find out I have Ace cough. I also have notice that in the pass couple of years my joints have become more an more stiffer. I've had hair loss swelling of my face that though the grace of God didn't get worse. I see a lawsuit coming against the makers for these horrible side effects.
Posted by Amanda Burnett
I am on lisinopril 10mg with the diuretic in it. I cant even funtion, I cant stand without feeling like im falling, I have to sit in a chair to take showers, I am nervous, have panic attacks daily, and I feel extreme exhaustion. ? I amseeing things and hearing things now, I dont know what is wrong or if this is part of the side effects but I am scared everyday, im 35 and been on this med almost to years, for my bp being 140/100 at the time, I have been on 20mg to 10 to the directic version, I think im going insane and feel depressed and hopeless, cant even get out and do the things I used to, bc the anxiety is extreme
Posted by Shirley king
Have been taking lisinopril htz 20/40 for several years! My blood pressure has been under control except at times is goes very low. At my dentist office recently they found it to be 45 over 50. They were very concerned and would not continue until later when it was back up some 75/55. Also lately I would wake up with a very swollen tongue. Did not go to doctor, thought I might be an allergy.last year my left foot started swelling on the top of my foot.doctor said I have arthritis and a bone spur. He treated me with shots in my foot. A few months later the pain was back much worse than before. He now has me in a boot with bed rest. Now my right foot is getting really bad, almost impossible to walk. I also have neck and shoulder pain. Can't sleep for the pain. Wonder if this could be associated with the lisinopril.
Posted by Sherri Carlson
I have been taking lisinopril for a few years. I had stopped for a while because my joints were so stiff and I had seen something about a rare side effect of joint pain. However, my blood pressure went back up and my Dr. prescribed some other medication that didn't work.... when she wanted me to take 100 mg, I went back to the 2.5 Lisinopril. I have been back on this now for 6 months. My severe joint pain is back. I can hardly get up off the couch, or walk... even my hands hurt! I feel so stupid... I thought I had fibromyalgia.... and was scared, but now I realize it is the Lisinopril.... I can't imagine what kind of shape I would be in if I took a higher dose... I am quitting this medicine for good this time.... Thanks to all of you for sharing your stories... I know now that I am not crazy! It is this medicine!
Posted by Brandi BUckley
My mom was on Lisinopril for three years. Recently she noticed slight swelling of the side of her jaw. My dad quickly got her dressed and took her to the urgent care closest to them. She went into the bathroom and only two minutes later they had her on the bed trying to intubate her (awake by the way). Unsuccessful. They tried an immediate tracheotomy (again while awake) and that was unsuccessful because of how swollen she got in such a short period of time. She was life-flighted immediately to another more equipped hospital at which she almost died on the way there several times because her airway was so blocked. She had damage to her thyroid and underwent immediate surgery. She had the largest tracheotomy made placed and was put into a induced sleep and had a machine breathing for her. ICU for days, followed up with days in the hospital, and still a nurse comes to clean her trache multiple times a week.
Posted by cotina richmond
I have bbeen taking Lisinopril for seven years. I am 42 years old and have been suffering with chronic bronchitis. I have been having swelling in my feet and hands. I've also have leg cramps to the severity of the cramps from the dehydration and loss of too much potassium. I've been having a lot of post nasal drips along as well with a lot of sinus infections that end up causing me to getting a nasal surgery.
Posted by Eileen Glaholt
My husband had taken Zestril for several years when he had the tongue, face, and throat swelling. He ended up in the ER where he was given antihistimines. They promptly took him off the Zestril. But it appears the drug stays in your body for some time. Even after being off Zestril he had several incidents of swelling. When I looked at the reported side effects of Zestril I had to drill down through several pages on the site to find swelling as a problem. Now swelling is mentioned more prominently.
Posted by Finally Free
My experience is similar to many of you on this blog. I began taking Lisinopril 20 MG about 6 years ago. It seemed to work for a short while, then I had a 200/100 blood pressure spike. After a trip to the ER, Amlodipine was added. Between both of them, I found myself (mildly) depressed and lethargic. Over time, I developed allergic reactions to many things and deep coughs in the evenings. I had an annoying itch on my back. I gained weight. More recently, I developed serious muscle cramps in my legs and neck. I found myself steadily reducing weights on the machines at the gym. Over the last year and a half, I reduced the dosage from 20 Lisinopril and 10 Amlodipine to 10 Lisinopril and 5 Amlodipine, and then stopped everything. I feel better now. My weight settings at the gym are returning. My legs are stronger and my neck pain is down. My cough is reducing. Still working on weight loss.
I take taurine, magnesium malate, CoQ10, vitamin B and eat a lot of oats (not the processed stuff), and a lot of water. I watch my salt intake very carefully. At home, I use small amounts of Himalayan salt (not the processed stuff). A lot to be said for leading a balanced life with a good diet and exercise, and without a lot of stress.
Posted by Bill Smith
I dont know f its the lisinipril but I have hives for 2 yrs now, and am on prednisone, nothing else works, anyone else have severe Uticaria taking Lisinopril?? email@example.com
Posted by Maria Bowmer
I"m on Lisinopril and tonight I"m going to take another blood pressure pill . My doctor don't want to take me off of it , despite bad pain in my liver , headaches every night. I wondered why I was getting a headache, it was about an hour or so after the Lisinopril. I have chills in my stomach area and I wonder could it be these horrible pills. Doctors want to push this drug and I wonder why . I am not going to take them for about 5 days and see if I improve. Also I'm so shaky and I'm worried about that too. I read that Lisinopril causes Parkinson like symptoms in people . What a horrible drug. I will report back here if my liver pain improves and the shakiness stops after not taking this crap .
Posted by joseph horvath
Prescribed 2008 blood test taken 2-10-20014 stage three reinal failure, both kidneys hurt, have had a cough, New prescription of Carvedilol, both kidneys do not experience any pain, also now diabetic. Taking Lisinopril was huge mistake.
Posted by Amy Corbin
After 3 years of Lisinopril I started swelling in my face and jaw area. The next morning it was worse. My throat was swelling and my face blew up. My throat was the size of a pencil. After major testing they concluded to discontinue taking this pill. Went to er on Friday, kept me till Saturday for observation. Didn't get any worse. 3 injections of epi and Benydril. It is now Sunday night and the swelling is going down but my throat is still swollen. Wonder what my Dr will say tomorrow? My lips did not swell which is why they were so curious? They did make me stop taking it. I am glad.
Posted by K uwanna
On the second day of taking Lisinopril, my throat started closing up. I just barley made it to the ER. I was in a coma for 5 days. They tried to do a tracheotomy but due to my throat swelled shut, they had to put a tube in my nose. I almost died!! This drug needs to be taken off the market. I also contacted the FDA. I also contacted [a law firm], that has a website saying they were taking Lisinopril cases, but now they saying they can't help you. I tried other Law Firms, but nobody wants to do anything This happened to me on May 31, 2014. No one else should have to go through what we have.
Posted by Pamela Evans
Im 51 yrs who was prescribed lisinopril for high a little over 2 months ago and developed a horrible violent cough. I cough up a disgusting thick sticky clear mucus that causes my mouth and throat to feel tingly. Even if I lick my lips they become tingly. If I clear my throat real good i can taste the "vapor", for lack of a better word, enter my mouth. Its so bad it makes my eyes and nose burn. My tongue feels thick and if I swallow this crap my stomach get upset and it caused me to vomit. The only good thing is after I vomit i feel great of a minute. it but only for a minute cause it starts all over again.
I saw my Neurologist after having increase seizure activity brought on by these symptoms. I was diagnosed with Complex Partial Seizures and developed Focal Seizures as a result He noted that not all my symptoms were a presentation of seizures. He reviewed my medication and saw that I was on Lisinopril and suggested I see my Primary Dr and have him take me off of it. I called the following day leaving a message on the doctors voice mail regarding what the neurologist said and did received a return call. So, now its Christmas eve he's closed for Christmas still no call back and Im suffering. I feel weak, tired, my body aches and I have to work.SOMEONE HELP ME PLEASE IS THERE A CURE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Posted by sarah
having problem with dizziness ,and my legs and I just had a triple bypass August 25,2014
Posted by renee mollineda
Extreme dizziness and nausea.
Posted by Michael Carruth
I was prescribed and took Lisinopril daily for twelve years. I woke up one night and my throat was swelling in addition to my tongue. I could not dial 911 because I couldn't speak. I drove to an urgent care but they were closed so I continued on to a hospital. When I arrived there they immediately took me into surgery and conducted an emergency tracheostomy. I was told later it took several doctor's to force a tube in and within minutes if I had not arrived in the ER I would have suffocated. They told me this condition especially affects African Americans and the manufacturers of this drug are aware of this but have not disclosed it to the public. It is a shame that with the abundance of attorneys, none of them have the guts to fight to get this drug taken of the market. As a veteran of three branches I am ashamed the FDA (part of the government I defended) does nothing to protect it's citizenry.
Posted by Jace Shareel
Started taking Lisinopril a few months back for somewhat high blood pressure. After a month I started feeling dizzy, and like I was having a heart attack. Head to the ER, doctor says it's Panic attacks/Stress that make me have chest pains, hard time breathing, and pains in my sides. So I now take Adavan and Lisinopril. A week later again, swear to the lord it's a heart attack, head to the ER. Blood tests are all good, enzymes are normal...Not a heart attack. More Adavan and a ride home. Friend asks me what I take, and I tell him Lisinopril and he states he had the same thing happen, and the doctor he saw said not to take it anymore. So i went to see the doctor, explained I was taking this stuff....I was told to stop now. Haven't taken it for 2 days and the affects are wearing off.
Posted by Brandon bowen
I had bad back an chest pains an could barely walk so I slept it off it eventually wore off but it was not pleasant I eventually stopped taken the lisinopril an haven't had any problems I started doing natural things to prevent my blood pressure from going out of control
Posted by Brandon bowen
I had bad back an chest pains an could barely walk so I slept it off it eventually wore off but it was not pleasant I eventually stopped taken the lisinopril an haven't had any problems I started doing natural things to prevent my blood pressure from going out of control
Posted by Kevin Oakes
I am 32 years old and the dr put me on lisinopril 10mg about a month and a half ago for my high blood pressure. Everything was fine for about 2-3 weeks and then I started getting a pain in the middle of my back on both sides and it kept getting worse and worse and eventually the pain spread to my right collarbone. The pain in my back was getting so bad I could hardly get up from sitting and could hardly walk. I quit taking my lisinopril 4 days ago and now I am pain free and I am not going to take it anymore.
Posted by Connie Blackshear
I suffered a severe case of angioedema just recently; Sept. 12, 2014. I was placed on Lisinopril 40mg over 2 years ago. I would discuss with my doctor issues I was having, not knowung they were early symptoms of angioedema. My feet and legs would swell, my body would cramp something awful to the point I could hardly make a move without cramping so bad, my eyes, nose, face would swell and around my nose and cheeks area would be very itchy and welt with red like bumps, my asthma seem to have gotten out of control and just recently, I was rushed to the ER because I could hardly swallow and had so much swelling on the back of my tongue and throat was swelling shut. That hospital had to transport me to a bigger and better equipped hospital to deal with what the doctor told me.....angioedema. When I had discussed all these symptoms with my doctor; she said it could be from another med I was on but never once said anything about the Lisinopril. During all this time, I thought it was from allergies and was taking OTC Benadryl; which the first ER doctor stated that the Benadryl is what helped to keep my throat from shutting up completely. I have been taken off of Lisinopril and so far, haven't had any cramping, swelling of bodily members or so much with my asthma. This is frightening because now I'm anxious as to whether this will happen again but hope the med gets out of my symptoms. Damages has been done and I hear there's no reversing the damages.
Posted by C oleksy
I have been on lisinopril for over ten years. I have had huge swollen lips several times in the past year. Benadryl did not help. After several days the swelling would be gone. I kept thinking that it was a food allergy.
Today both lips are swollen so big that I can't speak, eat or drink easily and they are painful to touch. I can't close my mouth so I continue to drool on myself.
I went to see my doctor and he concluded that I didn't have an allergy to food but that the swelling is caused by lisinopril.
He told me to immediately stop taking it.
Posted by George tenney
I was hospitalized for eleven days in June of 2014 , nine of those days I was in I.C.U. , with pneumonia in both lungs and lost 24 lbs in 11 days , my tongue is still swollen and my throat hurts from the trachea , is there no help for us innocent victims of these powerful drug companies ?
Posted by marvin
I have been prescribed the drug lisinopril in june of 2014, and immediately I developed a dry cough, and when I went back to the doctors office they put me on an inhalant. Within the next two week I developed the Hives all over my back along with severe sweating mainly on my back I thought that was strange. Followed by a post nasal dripping that still continues after I am no longer takeing the drug. Today is monday morning and the doctors office have not opened yet for me to see if they change my medication for high blood pressure. Went to Emergency Room this weekend when lips start to swell along with toung, the doctors said I was lucky I came in when I did or I could have died from suffication of blocked airways, very scary time for me and my family. Also my arms and legs went numb/tingling often which still persist even after the emergency room doctors have taken me off this drug. Notice my voice stays hoarse a lot, thought it was from fhe weather but now I know it is from the drug lisinopril. Severe headaches, sleepless nights and dizziness and light headedness I noticed as well that still persist.
Posted by John Lofton
I, m trying to see if I have a case I have been on lisinopril for over 12 years and I just found out that. A lawsuit is going on.
Posted by Mary Johnston
This is an update to my post below regarding crippling effect from Lisinopril. My symptoms were so horrible and extreme that my doctor sent me for an ultrasound of my legs to see if I had blood clots. The test was negative. I told the doctor I refuse to take this medication or any other from its class. I simply refused. Within 24-hours of stopping Lisinopril, the pain in my knees began to subside. Within 48-hours it became easier to go from a sitting to a standing position. 5 days later, one of my legs feels closer to normal (but is still painful and weak) and the other leg is still slowing feeling better, but still painful. I don't know if or when I will recover from these side effects. I would like to know if others are having this experience? I'm angry about this, it has reduced my quality of life to that of someone twice my age.
To see if it was all in my head or not, I took a Lisinopril yesterday to see if it would have any effect, good or bad. Within 4 hours of taking a 20mg pill, I was unable to stand up from the couch. I had to get help pulling myself up. Once I was in a standing position, I could barely hobble around the house. Today I didn't take any Lisinopril and I'm able to stand up just fine without help.
There is something in this drug that attacks the muscles or cartilage around my knees. It's absolutely dreadful.
If I don't have a full recovery, I will be seeking legal counsel.
Posted by Mary Johnston
Began with mild pain, weak feeling in knees. Increased to crippling effect, with so much pain in joints around knees that I can't stand up easily and can no longer walk normally. I'm 45 and was healthier before I started this drug.
Posted by Tiffany Roberts
I too have been on lisinipril 20mg for about 4 or 5 years now, when I first started taking it I noticed some light side affects like ringing of the ear and every once in a while heart beat would be a little Un- normal and I would get light hot flashes but I never thought nothing of it because I figured it might be temporary side affects. About 4 days ago I was at a birthday party and a guy was talking a bout lisinipril and how a lot of people where having problems with this medicane, he told me to look up the lisinipril lawsuit after I told him I have been on it and he told me I should stop taking it too! I at first thought it was no big deal and was going to just go ahead and continue taking my medicane, but then I came on this sight and started reading all these horrific comments about how you all have been on this medication and have had severe damage and almost died, I have not taken any lisinipril now for 4 days and I'm not going to anymore! I've never had any problems with swollen eyes or face or tongue but I've had the tingling in my arms and different parts of my body but nothing really severe. But to be on the safe side I'm going to stay off this medication.
Posted by Stacey E.
I don't think it's appropriate to declare that this is a dangerous drug that should be taken off the market. Anyone that had a severe reaction is probably not representative of all of us taking this. I'm pretty sure the people this drug works well for aren't going online to talk about it. I started taking it 3 days ago, and my blood pressure is down 20 points. The doctor suggested I look into the DASH diet, which is also working quite well. My blood pressure on Thursday was 150/78, and today (Sunday) it was 129/68. I was put on 10mg.
I don't know, because most people didn't specify, whether these reactions are based on long-term use, or if they're immediate.
I do know that so far it is helping me.
Posted by kurt kujawa
Been on it for about 5 years. I used to live near the beach,(I thought the wetness held the pollen down) moved inland 4 years ago, started having SEVERE food allergies. The other night ,ate 2 fish tacos, 2 hours later Im in the ER. My tonge looked like a beef tonge you get from the butcher. Couldn't talk couldn't swallow. Ive had 7 or 8 episodes in the last 2 years, all bad ones. Im just now finding out about LISINOPRIL. only 1 dr. at the ER thought this could be the problem. I would like to 'kick the you know what' out of the other 'know nothing' doctors. They make it through med school and they think they know everything, not realizing that experience , comes with time.
Posted by May Lowers
In January 2014 I was placed on Lisinopril after an incident where my blood pressure shot up by one of my doctors colleagues. I returned in Feb for a severe ear infection and pain in my upper and lower jaw. all three were on the right side of my face. I asked about adverse reactions. I suspected the medication. I was seen by a different colleague of my regular doctor and she insisted it was not the case. Shortly after that I returned and saw my doctor and went over the problems that included a harsh, chronic severe cough that had my husband, boss and co-workers concerned. My doctor took me off the medication. It took over a month for the cough to lessen. I coughed up a white bile for more than a month and I have had a re-occurring infection in the lower jaw and ear. Today I had to have the molar on the right side extracted. In reading the case files on FDA-Reports.com I am more convinced than ever that Lisinopril should not be allowed on the market. I have had more people approach me to tell me their Lisinopril horror stories since.
Posted by Barbara
In December after being on Lisinopril 10 mg. for several years I ended up in the Hospital for acute abdominal pain, I was there for 5-6 days off of the Lisinopril and on morphine via IV, they said I had bleeding and swelling in my abdomen and pancreas I talked to my doctor about the blood pressure meds causing the problem, he said there was no reason to believe the Lisinopril caused the problem but if I wanted they would put me on another med. that was done three months ago and I am getting better the last MRI I had shows that I am healing inside. I do not take very many meds the blood pressure meds and thyroid meds and now omeprazole. I firmly believe that the Lisinopril was the reason for my abdomen problems.
Posted by keith Wells
I to have have been put on lisinopril which had me hospitalised with swollen facial area ,alot of coughing ,blood shot eyes and have the documents and pictures to prove it. Please help.
Posted by Alisha Naah
I had been taking lisnopril for over fours years when Ione day I woke up with my tongue and lips swollen so large I couldn't close my mouth never thinking It was my medicine that was causing the problem I thought maybe it was something that I had eat earlier that day immediately I went the ER be cause the swelling was closing up my airway the doctor treated me with prednisone ,Benadryl and another drug that I don't red all the name of But Thank God for Grace and mercy because I could have died
Posted by sally sillimon
In the middle of 2013 I was having blood pressure problems it was really high so I made an appointment at the nearest clinic very quickly wen I got there my blood pressure was very high so she prescribed me lisinopril I was taking them for bout couple months I notice I was having hot flashes and stomach pains and joint pains was horrible then latter I wasn't having bowel movements at all stomach swell I just thought maybe it was gas so back to the clinic and blood pressure still up told her my problems still told me stay on them so I did later on bout 2 weeks or so I went to work I came home took bath and was starting to feel funny my face felt like it was moving getting bigger so I looked at it couldn't see anything then my fiance told me omg look at ur lips and ur jaws I'm like running to mirror and said omg wats going on then my throat started to close in and wen I woke up i was in ICU stayed in ICU for 3 days and then they put me in room they told me if I had went to sleep I would've woke up i'm was terrified to death and now I'm still having problems with my bowels stomach hurts so bad these pills almost killed me.
Posted by Don Conklin
I'm 47 years old, watch what I eat and exercise regularly. Since I was in the military (almost 30 years ago), I have always been told, "Your blood pressure is running high". Doctors never bothered to address it until recently. A week ago, the VA doctors prescribed Lisinopril/Hctz for my high blood pressire. After first 2 days I felt awful, weak with a very bad headache. I thought I was just sick and didn't take meds that day, eventually got better. Next day, I took the Lisinopril again, several hours layer I felt very faint, heart palpitations, sweaty palms and numbness in my hands. I was scared and almost had my wife bring me to the hospital. Suspecting my medication, I didn't take anything the next 3 days and felt better. The 4th day, after speaking to the VA doctor again, I took the Lisinopril again and, several hours after, same thing happened but to a greater degree. This time, the faint feeling, palpitations and numbness were worse and I watched my blood pressure continue to rise. I went to the nearest emergency room and my blood pressure was 200+/110. Hospital gave me something and had me lie down. My blood pressure started coming down and they said they wanted to keep me overnight and watch my heart. The next morning, while still in the hospital, they gave me Lisinopril again. My blood pressure slowly started to rise during the day and several hours after taking the meds, I had similar episodes. They were to a lesser degree but that was probably due to laying in a hospital bed all day. They kept me another day. It is now 5:30 am and I will refuse my medication unless the doctor changes it. I do t quite understand why the doctors refuse to believe that Lisiopril could be causing my symptoms, particularly when many of them are documented as side effects. I'm interested in hearing from people with similar symptoms. (Don, dadtech@ live. Com)
Posted by B.C.
Just yesterday, I had the lip angioedema. Been on Lisinopril since 2003, maybe 2004. It was low dose regular Lisinopril. Was changed to Lisinopril w/ HCTZ around 2007 or so.
Posted by Kurt Nelson
I am a 42 year old male and have been taking lisinopril for well over 5 years now. It did the job of lowering my blood pressure but I never knew about its horrific side effects. In September of 2013 I had an allergic reaction that I could not explain. My eyes swelled and nose started running the top of my throat and palate swelled up but did reach my tongue. I went into a pharmacy and bought benedryl and chugged the recommended dose. I went to a walk in clinic I got a steroid regiment and went home. After a day or so the symptoms subsided. I could not find a trigger I did not eat or take anything out if the normal.
On Friday January 18 2014 I could have died. This why I am writing here. I was at work again mid morning in a meeting and my right eye started twitching uncontrollably. I went into the bathroom and saw my eyes swelling up right I front of me. Using my knowledge of what happened in September I went to a pharmacy and bought benedryl took the recommended dose but it was different this time my right eye swelled shut and my left eye was open a slit. I drove to the walk in clinic but I got swelling all around my throat and uvula and palate so badly I could barely talk. They dosed me with an eppi and called an ambulance who took me to the ER. I was admitted to ICU incase I got worse and needed to be put on a ventilator. I was given Pepcid steriods and more anti hisramine. They shoved a a scope through my my nose to see how far the swelling went down my throat . That was one of the most unpleasant things I had to endure. They said i was lucky to be alive the swelling stopped at the uvula and if my tongue swelled I would have never made it to the walk in.
Recanting the entire morning I did not eat or drink anything that I have not taken before. The ICU doctors mentioned this side effect of lisinopril and told me not take it again. They sent me home with 2 eppi pens and a prescription for pregnosone. I will follow up with an allergist in six weeks and my family doc next week.
Be careful with Lisinopril I had no side effects before these 2 incidents and I could have died. If this happens to you call 911 immediately and get help. don't think you can take care of it on your own I thought I was a tough guy I was a stupid guy that got lucky. I have a wife and 2 young kids that need me.
Posted by I Hate Pharma
I want to thank you all for sharing your stories.
I HATE being on Any kind of drugs and will even avoid taking pain killers as long as I can. I had no choice, though, when at the end of 2012 I started having a tingling/numbness start up out of nowhere in my lower left lip/mouth spreading up my face to my eye over a period of about 5 days. I finally went to E/R and they thought it might be a reaction to a hydrochlorothiazide (water pill) I had taken that was expired. My doctor felt differently, though, and said the numbness was more likely a symptom of having high blood pressure & prescribed lisinopril. Starting at 10mg/day, I found it made me too tired to get anything done so I asked if I could cut back to 5mg/day. He agreed as long as my BP stayed under 140/90. So far it has (as long as I really watch my salt intake). Fortunately, I hadn't noticed any severe or outstanding side effects (other than basic ticklish cough & the fatigue from the start), but I'm concerned now because I've noticed in the last couple months that even though my systolic readings have been within a fairly normal range, my diastolic readings seem to have gone up and remain on the high side even when the systolic is in the normal range.
I don't understand that.
Well, as I've been trying to find ways to get OFF this stuff if I can, I've used these tactics:
* Walking more often (usually 3X a week w/ the doggies)
* Reading food labels for salt content/cutting them out
* Avoiding cheese
* Avoiding caffeine
- cutting out chocolate
- sticking with herbal teas vs. non-herbal
* Drinking more water
All this has definitely helped - [the hardest for me is increasing the walking (should be daily), and giving up the cheese], but I continue the battle daily, and have discovered a few other things by Reading Reading Reading that I'd like to share with you that might help;
I came across an article in Woman's World Magazine (Nov. 11, 2013 issue - page 14) that suggested taking 6000mg of the amino acid Taurine daily.
Quote from the article:
It "can send your blood pressure down nine points in two weeks - outperforming even powerful ACE inhibitors - reveals research done at the State University of New York, Stony Brook. Taurine prods your adrenal glands to produce norepinephrine, a hormone that helps your arteries stay relaxed, even during high-stress times. The most economical way to buy taurine is in powder form; mixing 1 1/2 tsp. into water or tea daily will give you the optimal dose. (Important: Taurine is considered a safe and well-tolerated supplement, but, as always, check with our doctor before starting a new supplement.)"
My Mom eats oatmeal religiously every morning. She's 84 and "her heart is in remarkably good condition, especially for an 84-yr-old", says her heart doctor. I decided to start having it too and immediately noticed a significant drop in my BP readings. They went from (on avg) 135/85 to 138/89 to 127/76! I took my reading 3X in a row to make sure my cuff was on correctly and each time they came out in the 120's over 70s range!
I believe God provides the answers/treatments to our diseases in the natural foods & herbs (NATURAL being the KEY WORD here) He's placed on this planet ~
The information is just buried under a "hill of swill", if you will, from Pharma & FDA pushing their drugs down our throats. Drugs may provide a solution in a quick fix, but should only be temporary, not long-term. Let's all keep up the search & continue sharing our findings with others!
Posted by Ed
I am a 61 year old male and after taking Lisinopril for nearly 2 years this past Tuesday I round up in ER at the local hospital with a swollen lip and swelling in my throat, also covered with big red welps over my chest, arms and legs. I could not talk because my tongue wouldn't move correctly.The doctor just smiled and said yes that is a reaction to Lisinopril. I couldn't smile back because my lips were so swollen. They gave me Prednisone and sent me home. On Saturday morning I was back in ER at a hospital in Lexington,Ky. with hives covering half of my body and my throat swollen to where I could not drink water. This time they gave me a longer supply of Prednisone. I have decided I would rather die from high blood pressure than the reaction to this drug.
Posted by Lee Mason
I have diabetes and take a pill to control it. November 1st 2014 I went to my doctor for a check up,and the PA prescribed me Lisinopril 5 mg to protect my kidneys because of the diabetes . Never taken any blood pressure medicine before. After the 2nd week my body started to feel real funny,numbness and tingling on left side,fatigue upon standing and exhaustion,and some tightness of chest. On November 13th I really got sick from medicine and stopped taking it,still had complications. On November 13th I decided to go to the ER and I was admitted. Negative blood work,MRI,EKG,Sonograms. Doctors dodge around possible effects of lisinopril made me ill and released me 24 hours later, with no definite reason,and just prescribe me aspirin. Are doctors afraid to tell patients the real dangers of this drug???
Posted by Troy
Lisinopril gave me Peyronie's disease. Please help. I am depressed over this and it has ruined my sex life. I have been taking lisinopril for over 10 years at 40mg per day. When I told my dr about the side effect, she laughed and said it was a rare side effect. No one told me of this possible side effect and it was only through searching for the causes of a curved penis that I stumbled on this side effect. I am angry, depressed and at a loss of what to do. I feel used and lied to. My sex life has been damaged and I have been told the damage to my penis is not reversible. Please help.
Posted by CR
took Lisinoprill-HCTZ for 4 months. Tongue swelled up so much I couldnt close my mouth, vomiting and severe (I mean severe) stomach pain. Ended up with pancreatitis and spent 9 days in the hospital. Every doctor that saw me said this drug is notorious for mouth swelling and acute pancreatitis
Posted by evelyn bellamy
I have been taken Lisinopril for years not knowing how bad it is. I have the swelling in my face , rash, panic attack, and dry cough. It' s scary what can I do?
Posted by rhonda mclain
My husband has been taking lisinopril for 5or 6 years now..today he had to go to md..his face and lips are swollen and has rash with welps on his back..has had a cough ever since he has been taking this med...and he always feels tired and has back pain ....dr took him off lisinopril she said this was the cause of the problems he was having...
Posted by Dora Campbell
I was in coma for 3 days from taking the Lisinopril. The Doctor said do not take that product again.
Posted by Cindy V
My husband took Lisinopril for 6 months and he has had 2 episodes of his tounge and lip swelling. The Dr. took him off of this med. 6 months ago and now for the past 2 weeks has had 2 more episodes of angioedema. How long does it take for this drug to get out of your system and when will these side effects STOP?
Posted by Dorothy Stallworth
I am a nurse and have been taken Lisinopril for years. I had not noticed any side effects but woke up this morning with severe facial swelling. I had noticed for a few days that at night my bottom lip felt heavy and wondered was I having a little reaction to some watermelon. It was not bad enough for me to check out. This morning due to the tightness in my facial and throat, I went to the bathroom to see what was going on. Was I surprised to see such severe swelling! I immediately started taking Benadryl but no relief. After a few hours, I decided that I needed further treatment. The swelling in the face was affecting my swallowing. I went to an urgent care center and received 2 Epi pen injections and a Benadryl injection. I would not recommended waiting to anyone. It was dangerous for me because u can't give CPR to yourself.
Posted by Faye Pelzer
I started taking lisinopril 3 to 4years ago. Since then I have had 3 bouts of severe face swelling. I recently was rushed to the hospital with severe lips, face, tongue, and throat swelling. I was diagnosed with Angioedema that was cause by the Lisinopril. I was told to stop taking the medication right away. I thought I was going to die. I could not breath. I have severe facial scarring from the rashes on my face which has lead me to severe depression. My doctors did not know what was causing the swelling. I have an appointment to get allergy testing. I cannot believe this medication is still on the market.
Posted by Francis Efaw
Seems I'm not the only one to have issues with this medication. The symptoms others have mentioned have also affected me. First I was on Triamterene and then I was also put on Lisinopril @ 40 MG right from the start. I was told to take them both at the same time. I had a rash develop on both shins and it did itch. The doctor tried a couple of treatments to get rid of the rash. I was prescribed a tablet steroid and also a prescription corticosteroid cream. Both treatments failed miserably. Due to the itching from the rash I have scars now. Another doctor told me he felt the Triamterene was the blame for the rash. It gets much worse though - between those blood pressure medications it caused my blood pressure to drop dangerously low! I can remember 87/56. Indeed I was dizzy. I was sitting on the couch and I knew I was passing out. I called the pharmacy for advice. They told me my blood pressure was too low and I should call 911. Well, I didn't want to do that so I just laid down on the couch with my legs elevated, (propped up on the wall). I don't know if I fell asleep or passed out. Another instance was when I was walking in my house and all of a sudden I passed out and hit the floor. That was awful. I managed to break three bones in my face according to a CT scan. The worst was I was driving home from work and I almost made it home. I was only about five homes from my house and I passed out cold while driving. I crashed into a truck that was parked on the street. So as you all can imagine I stopped taking the Triamterene and the Lisinopril immediately and I will never take them again - not ever! I have been monitoring my blood pressure every single day and take three readings every single day and come to find out I do not need to be on blood pressure medicine at all. So, that irritated me. Now I have some issues going on with both eyes. Just had my third comprehensive eye exam yesterday. The doctor told me I have one nevus in my left eye and two or three in my right eye. I saw the images taken. This is only a little unsettling, however they are no different than a nevus, (mole) on the skin. They can turn into melanoma. A condition I am way too familiar with. Unfortunately there is no way to safely remove melanomas from the inside of the eyes. I do not know if the medications could be responsible for that particular condition, but I'm carefully researching. The eye doctor asked me the strangest question yesterday. She wanted to know if I had had a colonoscopy so I told her that I did have one and a polyp was found, removed, biopsied and the results were benign. The eye doctor said I should have another colonoscopy. That is what I don't understand. What does a colonoscopy have to do with the nevus in both of my eyes? The eye doctor told me she was sending this information to my primary care provider and I have an appointment with my primary care doctor in three days. We will discuss this. Bottom line, if you can avoid Lisinopril and/or Triamterene I strongly urge you to avoid them. Throw away the salt and use a salt substitute, such as a product called "No Salt," but don't use the salt substitute if you are taking potassium sparring diuretics or any blood pressure medication. That is dangerous and it can be potentially fatal. After you ditch the salt shaker it's also advisable to get groceries with little to no salt added. If you smoke, try to cut down or quit, if you're overweight try to lose a few pounds. I do not believe in taking medication to offset our food and spice consumption. Best wishes to all. We can beat this and more than likely we can beat this without medicine.
Posted by Amy Richardson
Have had swelling tounge- horrible uncontrollable coughing and terrible itchy skin and swelling all over my body!! My tongue swoll so badly it almost cut off my breathing!!! Do not take this drug!! It is dangerous and wrong to prescribe to anyone!!
Posted by Randy Chaney
I have been taking lisinopril for over 4 years. Last week I woke up with swelling on the left side of my face but it went away by the afternoon. This week I experienced swelling on the right side of my face and my lips swelled to three time the normal size. By the afternoon hours it had spread to my left side. The next morning my left eye was swollen and my left jaw was swollen. My hands and feet began to swell as well. You know how we men are about going to get this stuff checked out and my wife urged me to go to the doctor. He immediately took me off of the lisinopril and gave me a steroid shot. Today my eye is still swollen but the rest of my face has gone back to normal but I now have a rash developing. The doctor couldn't tell me why this happened after 4 years with no problems. He said it could be because I had lost 40 lbs and my blood preasure was looking better. I hope I can stay off ALL BP medicine now.
Posted by Alma Gomez
I had been taking Prinizide (lisinopril/hctz) for about a year on May15 I was at work (luckily I work at a Hospital), I was feeling fine but after lunch I started noticing my tongue started swelling & I went back to work & 5 minutes later I was having a hard time moving my tongue when talking, the pharmacist gave me benadryl to see if that help but it didn't so I went to ER the PA quickly told me to stop taking my Blood pressure medicine, they gave me all the antihistamines they had more Benadryl, Zyrtec, etc.. by this time I had a hard time drinking water or squalling my own saliva they Put me in a room and gave me a shot of epinephrine the next time they came & check on me I couldn't close my mouth because my tongue was so big coming out of my mouth & had a hard time breathing the Dr. Told me he had to call ENT & Anesthesia in a couple of minutes my room was full of Drs & they told me they were going to try to put a tube down my nose but if that was not possible they were going to have to do a trachonomy, they took me into The OR to try to put a tube down my nose, I was vomiting & at the same time trying to breath I felt like I was drowning & I passed out, I went into a respiratory arrest when I woke up I was in ICU hooked to a ventilator & had to stay there for 3 days, I am so lucky to be alive, if you have food allergies with history of Angioedema don't take Lisinopril it can kill you!!
Posted by Lena
I have taken this pill for only 2 days and my legs and feet are visibly swollen and tingling after only 2 days of this medication. I am stopping this medication and going to be monitoring myself for the next few days. This medication is the only new med I have introduced to my system so I am certain it is the cause. If it doesn't clear up I will call my doctor Monday or go to the emergency room if necessary. I googled the medication after I noticed the symptoms. I am very uncomfortable and hope this medication gets out of my system soon since I have note taken it very long.
Posted by amanda
Last week, my doctor put me on 10mg lisinopril. The first 3 days I had nagging headaches and nausea but wasn't horrible. Day 4 I woke up in the morning with horrible cramps in my right leg. It got better as the day went on. Day 5 I woke up with both legs , knees, thighs , ankles everything but my feet, in horrible pain and my low back is killing me.
I called my doctor and they said stop taking the lisinopril. I'm in horrible pain now and I hope this junk leaves my body ASAP. I took a pain killer last night and I NEVER take them. It hurts so badly. This drug is horrible. I'm 32 and have a toddler to chase and I can't even put her on the potty.
Posted by ARIE
I was rushed by fire rescue on 4/4 to the E.R. My arms and legs were numb and tingling. They thought I was having a stroke. MRI and CT scan were negative for stroke. They said it was my Potassium was low and gave me 4 huge potassium pills and sent me home the next day. I kept taking the Lisinopril 10mg, I kept feeling tingling in my hands and lightheadedness. Today I felt like I was going to pass out and again the tingling and weakness in my arms, and also short of breath. I came home crying. My husband thinks it is all mental and told me to relax. I then started reading about other people with the same symptoms. As I type this I am dizzy and have trouble breathing and concentrating. I am drinking a lot of water trying to get it out of my system.
Posted by RONALD OUELLETTE
Been on lisinopril for about 20 yrs. All sudden october 4, 2011
broke out with itching all aver my body to the point of having
dermography. Where you can write your name anywhere on my skin and it would swell and raise so you could read whatever word you would write. That same day extreme ringing of the ears started in the evening. Doctor said I was allergic to something. I knew it was Bs because this was every day all day, no matter what I ate. Dr said take an allergy otc. Knocked down the itching for 3-4 days then start right back up. Histimine the bodies response to a problem, was being block but not solving the cause. This went on for 1 yr this spring coughing got worse after a bad cold. couldn't take it any more. I knew something is not right. till 4 weeks ago she started me on benicar at $105 per 30 day. after 2 weeks itching stopped ringing stopped. Right front intestinal pain stopped (Which felt like a kidney stone) Coughing stopped. Only thing left is extreme pain rh chest where last rib is next to esphogus. Feels like a somthing is torn ..May be a hiatal hernia from the hard coughing. non smoker
Posted by Vicki Crouch
I was prescribed lisinopril back in 2011, Feb. I tried for many months to take this medication, but it always made me feel as if I was going to pass out. My blood pressure was high and I had many people tell me that I would get used to it. So I would try again to take it, only to have to stop taking after about a week, because I felt like it was killing me (No joking) I had weird heart palpatations and felt like it was sucking the life out of me. About a year after taking this medication on and off. I started having breathing issues, along with shaking. I just found out that I have an enlarged liver. Before taking this medication my Doctor ran liver panels on me and I was fine. So there no questions as far as I'm concerned where all these issues came from(Lisonopril).
Posted by Carol Allen
Lupin makes this horrible drug lisinopril, enalapril and ramipril are also made from the same thing, i stopped it immediately after only five weeks, got a severe skin reaction. i do not know why my doctor chose to give me this, she knows i am very sensitive to drugs.
today my hands are very swollen burning pain in both hands and arms so bad couldnt sleep.
you can find out what it is made from on line, and if I were anyone i would stop it immediately even if no side effects.
Posted by pat kirkbride
Started with severe swelling and burning of the eyes and neck last october. Saw immunologist in january after having 10 of these episodes, she didn't think it was food allergy but could be reaction to lisinopril, I stopped takng it immediately but have had 4 mild reactions since. I started with what I thought was another mild reaction yesterday but today am badly swollen and burnt around my eyes and neck yet again. Doc says it can take 6 months or so for drug to leave the system. I had taken lisinopril for 18 months without any side effects and it controlled my blood pressure very well. I have been tested for all allergies so I do beleive lisiopril is the cause of these awfull symptoms.
Posted by Joanne Waite
I have only been Lisinopril since January 25, 2013...it is now February 22, 2013. After five days, I could barely get my rings off. Mentioned this to my doctor, but no response was given. Since last week I have felt very fatigued and even felt like I could sleep while at work! Still feel pretty tired and have not been able to get my rings back on -- never had that issue before. It seems that my knuckles have swollen -- scary. Will that go away when I stop taking the Lisinopril? My doctor has finally said these could be side effects and I have made a follow-up visit with her.
Posted by Kc
All this happens I'm in the hospital right now:/
Posted by Sara
Ive been taking lisinopril for 2 years now with my high blood pressure (for a twenty year old) last night my lip started swelling up. I thought it was a cold sore or something at first until I woke up this morning with my upper lip twice as swollen! Immediately I went to my doctor who took me off it and prescribed me prednisone for the swelling. I've taken one and already my lip is back to normal. I have been getting hives the past couple of weeks but didn't think any thing of it because the weather has been so cold and every once in awhile my knuckles And palms would swell. I'm glad I've been taken off and luckily in time before my throat swelled up. My doctor said these side effects can happen randomly no matter how long youve been taking lisinopril. I was only on 10mg.
Posted by Nicole
Ive been on Lisinopril/HCL and then plain Lisinopril for a period of about two years for high blood pressure. I had a gap in my health insurance when I moved, so I stopped taking it for about two months. When I got new health insurance, my doctor called in my same prescription, and I started taking it. About three weeks later one night, my top lip became swollen to three times normal size during a phone call. I thought it was a food allergy, and took a benadryl. But the next morning it was still swollen. I went to emergency and as soon as I walked in, the triage nurse told me, "Oh its the Lisinopril."
Of course I had taken one that morning, so they gave me steroids and a digestive aid, observed me till my lip went down. They sent me home with a script for HCTZ. Im continuing to walk and yoga to keep my blood pressure down. But why is this drug still on the market if it can close your throat and kill you?
Posted by Michele Andrew
I have been on Lisnopril/HCTZ for a number of years but this AM awoke with left side of my face swollen - lips, cheecks and lower eye. I went to work ( I work in a hospital) and our dr. on call said it was angioedema from lisinopril. Contacted my PCP and he changed me immediately to a calcium channel blocker and told me not to take NSAIDs. I took Claritan and benedryl and now, after 9 hours, my face is nearly back to normal. Maybe my aches and pains ( for which I took the NSAIDs ) are part of the lisinopril problem.
Posted by R. J. HUTZENBUEHLER
WELL I'VE BEEN TAKING IT QUITE A WHILE, NEVER THOUGHT ALL THE JOINT PAIN AND SWEELING WAS BEING CAUSED BY MY MEDS. DOCTOR PUT ME ON AN ANTI-INFLAMATORY MED ALSO.
Posted by Anita Clark
I was on Lisinopril 20mg for over a year. I was seeing the doctor that prescribed it, and voiced complaints that my hair was falling out, I was extremely fatigued, my joints ached, and I felt like my mind was in a fog. She was unconcerned.
One morning I woke up with my left eyelid swollen, and both of my hands swollen so bad I could not go to work. I ached so bad! I had my daughter-in-law drive me to my doctors office because my hands were too swollen and in pain. My doctor looked at me and said she had no idea what the problem was. She told me to put ice on my hands.
I was angry and saw a different doctor a few days later. He immediately took me off the Lisinopril, and with in a couple of days, I saw a tremendous difference! I still have trouble will over all pain, especially in my joints. My (new) doctor has run every test in the books and can not discover the cause of my pain.
Recently, I have begun to wonder if it could be permanent damage, caused by Lisinopril. If anyone else has had this problem, and can help me, I would be more grateful than you could ever imagine.
Posted by Stanley E. Bryant Sr.
I have been on Lisinopril for about 3 years and I just experienced a bad reaction of this medicine while at work. While at work one of my co-workers told me that my lips look like they are swelling , I thought he was trying to be funny until I saw the look on his face. I than took a picture of my lips with my cell phone and saw that my top and bottom lips was so big I went to the ER at the hospital. The first thing the doctor ask me was I on any high blood pressure medicine and what was it, I told him that it was Lisinopril and he told me to stop taking it wright now, do not take anymore of that medicine because that's what causing the swelling. The doctor than told me that I was lucky it didn't cut off my air way.
Posted by linda a avery
i have been on lisinopril for approximately eight to ten years & just experienced a new onset of angioedema involving the bottom lip. i was treated at kaiser (antioch ca) facility & released, prescribed prednisone 50mg for a five day period. should i expect further/additional complications as a result of this new onset of angioedema. i have been taken off lisinopril put can this reoccur. i await your response. thank you,
Posted by Jerry Flanagan
My husband has been on Lisinopril for several years, currenlty reduced to 10mg. should we be concerned.
Posted by Tom P.
I, too, have been taking lisinopril or several years. Where do I stand with this issue?
Posted by Mary LeRose
I have been taking 20 ml of lisinopril for many many years, do I need to be concerned?
Posted by Cheryl Jennings
Oh Great! I have been on 40 mg of Lisinopril once a day for YEARS!!!! I am fortunate to have a Dr who listens to my desire to get off of as many pharmaceuticals as I can, because they ALL have side effects!! THANKS FDA!!!! I took my medical care back into my own hands when Instarted taking a food supplement called ZIJA made from every part of the tree, Moringa Oleifera. I have lost 130 pounds & have gotten off of Advair 500/50, Albuterol, Flovent, Flonase, Singulair & Actos. I feel like a different person now, when I can get off the rest of my meds, I am sure I will feel 100% better.
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